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Head and Neck Cancer

Archives for November 2009

9 Days in Mouth Excercise hints?
Well guys I will have my 9th Rad today. First Chemo was last tuesday. Doing OK. Was hoping for a better week but doing ok. Pretty much already lost all taste for food. I have a appointment Monday for the speech therapist to do excercises. It hurts only when I open my mouth fully wide. Was wondering if anyone had some ideas…
HELP head and neck cancer
Hello my name is Carla, and i am asking for help. Please!! My brother has been diagnosed with squamous cell cancer, head and neck cancer. They said it was terminal. Any how since then he has had about 7 chemo treatments. He is now immune they say. He has begun radiation treatments, 18 out of 37 treatments so far. He has 2…
Turkey neck getting worse this week, does it go away?
Is it because of thanksgiving fast approaching that I have developd a bad case of the turkey neck? I'm seven weeks post treatment and it really got bad this week, while brushing my teeth I can feel the fat moving back and forth. The area is swollen as if retaining water and is the classic turkey neck side effect. Does it…
suggestion of foods that don't cause mucus
HI, I was wondering if anyone could give me foods that they eat that don't cause a lot of mucus and are easy to swallow and will help you gain weight . I know about ensure, soup, add gravy to foods. Thanks. Peeps4
Dying from laryngeal cancer, need help
My husband has end stage laryngeal cancer. No treatment options. He had a trach tube put in September to help with breathing. The lymph nodes on neck and collarbone are growing. Some days there is blood coming out under trach. Went to Dr. last week to have trach tube changed. Some bleeding upon change. Dr. said everything…
Jaw problems after extensive radiation treatment
My brother was diagnosed with Squamous cell carcinoma in 2000. He was treated at Sloan Kettering by means of chemo and radiation,he did not choose to have the radical neck dissection or surgery. The treatments itself was very grueling and very intense at times where he would get radiation treatments three times a day. He…
Do you have to get sick from radiation to know that it is working?
Hi there my mum is starting week 4 of radiation. The tumour could not be removed totally due to its location. They are giving my mum mild doses of radiation also due to its location. Not that I want there to be nasty side effects it just worries me that there has been no nausea, weight loss, loss of appetite or strange…
PET scan results show spots on lungs
My husband just received results of PET scan. Original SCC in neck, too large to remove...radiation/chemo all summer. Very strong/stubborn high school football coach. Never missed practice or work! Still can't swallow and using PEG. Waited 90 days for PET scan and now it shows both lungs are full of 'spots' and more lymph…
GREAT PET SCAN RESULTS
I just want to thank everyone on this site for all the helpful info and encouragement over the last 5 months (seems like 5 years!). Jim from Delaware, soccerfreaks, seifken, hondo... naming is tough because i read them all and got help from all. I had tonsil cancer stage 3 and 2 lymphnodes involved. 35 Radiation and 3…
post radiation side effects
Hey Everyone! im six months post radiation treatment for tongue cancer and still have a little "bronze" color on my face and some slight swelling in my cheeks. when will this disappear? thank you.
Exposed bone
I had bottom of mouth cancer. I am keeping a potentially long tail short by not going into details about how I have complained about post opterative symptoms for several months. I was prompted to see my surgeon over moderate pain during and after radiation treatments. It turns out that I have some kind of ulcer, maybe…
Newly diagnosed
My husband has just been diagnosed with Stage IVA squamous cell carcinoma of the tongue. The tumor is small, less than 1.3 cm but it's in two lymph nodes on the same side of the neck. This is all so very new to both of us. It feels like everything is moving very fast and yet, dragging very very slowly. He's seen the first…
getting off pain meds
I need some advice about getting off pain meds. My husband started wearing fentynal patches two weeks before his treatment ended 5 weeks ago. He was at 50 mcg for much of that time, and now both the doctors and Kevin are ready for this to decrease. Last weekend Kevin decided that he would quit cold turkey (a REALLY bad…
Radiation for tongue cancer
My dad will be doing radiation for his tongue cancer and he and my mom are scared out of their mind. My mom is terribly afraid that my dad won't be able to eat anything at all, is this true? They are going to put in a feeding tube so he will be able to get nourishment but he still needs to be using his tongue so he won't…
Anyone here beat stage IV B throat Cancer?
Recently was told that the initial diagnosis of stage II was waaaay off. ENT based it on PET scan results, problem was the techs at the scan unit had a no show patient before me, and used the 45 + minute old glucose/tracer cocktail, and it did not highlight properly. Most people would have been happy to have their doc say,…
At My Wits END! Argh....
My husband has hypopharyngeal cancer and is currently in the middle of rads and chemo. Has completed 23 of 33 rads, may or may not have another chemo session, depending on how his labs hold up. Does not had a feeding tube (his stupid choice), but was doing ok with hydration until last weekend. On Monday when we went in to…
Something to drink besides water!
My husband is 6 weeks out of treatment and drinks water. Has is just dying for something to drink that just might taste like something. Any ideas??? PK
Hiccups
Had Chemo first round Tuesday and yesterday got hiccups. They come and go randomly.
Anyone heard of Stevens-Johnson Syndrome?
Sometimes this skin reaction is related to radiation therapy. my boyfriend checked into the hospital tonite to undergo the placement of his feeding tube and txted me to look it up. Depressing to say the least. Dont know who told him about this, why, as far as if they think he has that, or what. His skin is all blistery,…
the feeding tube or "Peg"
Ok people, my boyfriend tried and tried and just hasnt been able to go the entire distance. He is 10 days out of a 6 week radiation treatment, 1 chemo a week. He is so very miserable and in agonizing pain even with pain meds. He isnt taking in any noticable nutrition because its too much pain to swallow. Throat and mouth…
Anyone have experience with Dr. Eric Moore or Dr. Guy Petruzzeilli?
I am hoping someone on here has some sort of experience with one or both of these docs. My dad has been diagnosed with SCC at the base of the tongue and is looking to get an appt with one or both of these doctors. Also, I keep hearing that there is a greater success rate with a "board" of doctors working for you (like they…
Starting road to recovery
I had my first radiation today. 32 more to go. I have my first of 3 chemo treatments tomorrow. I just wanted to thank everyone on here for their prayers and support. Mostly I want to thank everyone for just being on here. To repay all of you for just being here I will make sure I am always on here to help others in the…
SCC of the tongue
11/8/09 at 4:00 Hello to all! My father Tim (a 65 year old non smoker and non drinker) was diagnosed Monday with SCC of the base of the tongue. He is in stage 2 with no spread to the lymph nodes at this time. He is getting his PET scan on Monday and will also have a chest x-ray this week. We really don't know much at this…
Anxious NPCsurvivor -- turmeric / curcumin ?
Next week I am due for my first MRI after treatment for stage 2 Nasopharyngeal cancer (T2-N0-M0). I had 30 IMRT sessions followed by 3 Cyberknife sessions with concurrent Cisplatin (3 doses) which ended on July 1 2009. I didn't receive any adjuvant chemo. Recently, I have started becoming anxious that cancer has returned…
Five Months Out - Scans & Labs
I have just completed my 2nd set of scans and lab work since finishing treatment June 2009. SCC stage III right tonsil and a lymphnode, all HPV derived.... Nine weeks of Chemo (Cisplaten, Taxotere and 5FU) followed up with seven weeks of concurrent Carboplaten once a week and 35x Radiation exposures preceeded each day with…
First time thread starter is healthy but not better. I think I need help?
Hello everyone!! First time thread starter on this forum. In February of 07 I was diagnosed with stage IV base of the tongue cancer. All treatment were successful. Seven weeks of radiation and four weeks of chemo. The whole radical nine yards. Everyone who has tongue cancer knows what I am talking about. It has been almost…
Nasopharynx cancer, draining out of residual after radiation therapy
after a series of radiations, my problem is the residual inside my head cannot be drained out.. can somebody please advice me how to do.. i already undergone an operation drilling on the left air. but still there are residuals inside which results to infections. i have been taking ciprobay for almost 3 months now as per…
Scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
SNUC (sinunasal unadifferentiated carcinoma)
Would like to know if anyone out there has this. It is a very rare form of cancer. My husband was diagnosed in February 2009. He has been through 6 rounds of Chemo(cisplatin+taxotere) and 33 rounds of radiation. Had surgery on Sept 29,2009 and had remaining tumor removed. Due to tumor still being present in scar tissue in…
Humidifers--do they help and what's the best kind
My husband is 7 weeks out of treatment for SCC HN, Occult Primary. He's having such a hard time sleeping at night, such a dry mouth that wakes him constantly. The doctor suggested using a humidifier to get moisture in the air. We bought one at a local drugstore (Vicks brand) but it was so noisy that neither one of us could…

Head and Neck Cancer

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