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Boyfriend with Stage IV mCRC - MSI/MSS status until now not performed - what to do
Hi, I am a bit in a bind, to put it gently. So as it turns out I went to a couple of doctors for a second opinion because my boyfriend currently being on Avasting and Xeloda (having previously operated twice on for liver mets) has had a progression in the last three months while on them (5 new lung mets, they were two in…
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Xifaxan experience
Hello again everyone! Quick background... 10cm stage 3 found two years ago. 8 rounds of chemo, 25 sessions of radiation, surgery (with bag) and then reversal surgery. I'm a year past the last surgery and was NED (yay!) at my last oncology appointment I had been complaining to my oncologist about my bowel functioning for…
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K
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CEA Level drops without treatment
I have pretty consistent CEA levels. When its high, cancer usually has grown quite a bit. It has never dropped without any treatment. And my doctor says it's not possible for it to drop without treatment. However last result it drop about 25%! (330 -250 w/o treament). Unfortunately, current CT scan vs 3 months ago shows…
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Scared
I’m sorry if this isn’t the right place to post. I’m so scared and don’t know who to talk to. I recently had my annual physical and my blood work came back with a low MCV and mu doctor recommends a colonoscopy because it could indicate a GI bleed. I spent way too much time on Google and all seems to point to cancer. I’m…
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Recently diagnosed at 28 years old
Hi everyone, I’m new here… I am currently 29 (diagnosed at 28) and was diagnosed with stage II small bowel cancer. I had the obstruction removed in May and currently on the FOLFOX regimen. My hair is thinning out… I never heard of neuropathy, until I experienced it… metal taste…. I’ve fallen into a depression and not sure…
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Any Recommendations?
Hello, I am new here. My 34 year old niece just got diagnosed with stage 4 colon cancer with met to the liver. We live in Buffalo NY. She has her first appointment at Roswell Park Cancer Institute this Thursday. She will see surgeon Dr. Steven Nurkin. Any recommendations on a good oncologist at Roswell? Thank you so much.
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C-Diff
I had colon cancer in my Sigmoid colon in 2020 I didn't have any treatments they did surgery on me and took out 1 and 1/2 feet of my Sigmoid colon. Well, I have yet to have 1 full 30 day month since my surgery on 11/2/2020 that I am not having to stay close to the restroom due to frequent trips throughout the day. And just…
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Checking In
A dear friend has recently been diagnosed with cancer and I wanted to share with him the site where I found so much support many years ago. While he doesn’t have colorectal cancer my visit to the CSN page to find the link for him made me think of all the times I would read through each new post in this forum, obsessively…
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Any others feel like they are learning a lot about nutrition?
I don't always eat as I should, but I do feel like I spend a lot of time looking up the nutrition facts of various fruits and vegetables I like. My latest interest is the antioxidant found in high levels in blue, purple, and some red produce- Anthocyanins I am now trying to get at least one serving of these a day. It…
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Hi, I’m new
I’m Dove, My husband has had a tumor and lymph nodes removed (stage 3) He’s in chemo now. I have no one to talk to, even my husband has shut me out. I feel like I’m already losing him or like he’s already leaving me. I hurt so bad. I know it’s not about me, but damn how do I get through this?
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Powerful video
While it doesn't happen for all of us, who knows if you could be the one.....or not. I guess, if you act as though you could be the one, then you pass, you've not lost anything along the way. Tru
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Kras mutation. Second line of treatment not working
Dear All, As a mentioned in my previous post, my mom was diagnosed with Stage IV colorectal cancer back in December 2022. She started with FOLFOX but after 4 rounds she was fully constipated and had to had surgery to place a stomach bag. After that, she was moved to FOLFIRI and she had already 6 cycles. The sides effect…
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Told primary is colon cancer, then liver biopsy just came back saying primary is pancreas
Hello, We were told in June mom has stage 4B colorectal cancer metastasized to liver, lungs and peritoneum. Doctor called last night leaving a message that liver biopsy came back and shows primary is pancreas with certain percentages of other GI malignancies. We hope to catch the doctor’s call again today to learn more,…
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That evil LARS- Constipation
I've browsed the topics on the discussion boards, and it seems I am something of an anomaly. I survived Stage 3 rectal cancer, chemo, radiation, a bowel resection for Christmas, and an ileostomy reversal for my birthday. Unlike everyone else who struggle with diarrhea, I have serious constipation issues. I eat a reasonably…
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Psoas/Colon Abscess with JP drain
Hi everyone, new to the boards. Thanks for sharing your knowledge. My husband had an infection that on initial diagnosis, turned out to be either a psoas abscess or diverticulitis. They have placed a JP drain in his Lower left abdomen (and it is very uncomfortable) which he has had for 3 weeks. Drains ~20 ml every 12…