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LONSURF Suggested By My Oncologist
Bulldog2 Posts: 1 Joined: Sep 2021 Sep 29, 2021 - 6:50 pm LONSURF New Hi. My oncologist suggested I start on the Lonsurf regimen in a few weeks. Been reading the posts here and it looks like Longsurf only works for 10-12% of patients who take it. Some get terrible side effects, others hardly any. I was diagnosed with stage…
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Emotionally draining weeks
Hello, So, normally it would be the last week at home. Lucky me I will have 6 weeks of internship here cause tbh last year it was difficult to go. No I think impossible. Last year at this time, we ralked about cure, the cancer is gone. Now we have only Lonsurf left. I think I need to fo some recap. 17th August we got to…
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Stage 4 colon cancer spread to both sides of liver
Hello all, I was diagnosed yesterday with stage 4 colon cancer that has spread to both sides of my liver. The colon tumor is large and obstructs elimination of faeces. The treatment they have told me will be 1) a colostomy to relive the constipation 2) a port 3) chemo to reduce the cancer/tumor 4) once reduced, removal of…
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Father newly diagnosed and we need direction
Hello! My father was diagnosed with colorectal cancer after a colonoscopy about 6 week ago. They sent him for CT scan to check for additional masses in the abdomen but it looked clear No bloodwork was performed he was then referred to a surgeon who specializes in colon surgery and 3 weeks ago he had a colonectomy and…
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Pam's Scan Results and What Follows
It was very unusual not to hear promptly from the Oncologist about Pam's CT scan. He has always been on top of these things. The report was finally posted on MyChart on Friday last. The report found small lesions in the lungs that have remained stable in size and number. The Liver mets continued to shrink and some…
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NewHere
Anyone heard from NewHere and know how he's doing?
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Promised update on kyphoplasty
I'm back from my 2 procedures this week at Sloan Kettering. First was the kidney stent, which immediately relieved my very severe hip pain that I had no idea was kidney- related. The relief is amazing. Kyphoplasty was the next day. Painless procedure done under general anesthesia. I don't know what pain relief it provided…
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4 years ago
September 2017 after a year of surgery, radiation and chemo to resolve initial cancer, I had my 6 month ct and there was 2 small nodules in my left lung. We waited 3 months to see if it would go away. Stressful 3 months to say the least. Well December came and we did another and, of course, they had grown. My cancer had…
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niacin and melatonin in cv19/CRC
In case you all missed it. Article older but still stands test. Network Pharmacology and bioinformatics analyses identify intersection genes of niacin and COVID-19 as potential therapeutic targets | Briefings in Bioinformatics | Oxford Academic (oup.com) There is no magic bullet but there are things to help!
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Chemo and Cancer Pain
Hello So my dad is on folfiri chemotherapy and overrall things are going okay expect his pain level seems to be going up . He says his neuropathy is getting worse also that he has bad pain in his buttocks which got me thinking is this kind of thing normal ? Does the chemotherapy make pain worse or could this be something…
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Eyes on the Sparrow (trials)
Super old, American pop-culture obsessed people will immediately remember the title of this thread as the title to the theme of the old cop show "Baretta." Others will just scratch their head. The reasons I was thinking about it has little to do with cancer, but then again, the lyrics go: Keep your eye on the sparrow, When…
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Some things discussed in Germany
Hello, Atm I am more active with German people suffering from colon cancer. I figured out 2 interesting things for people to consider. Both of them do lack scientific research for now but there is no harm. Sulforaphan: appearantly this substance blocks cancer growth and increases the effectiveness of chemotherapy. For now…
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Is it safe to have a glass or 2 of wine a few days into off week?
I was not a big drinker by the time I got diagnosed. It i kind of miss having a glass or 2 of a nice wine.
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When it rains, it pours. Kyphoplasty, anyone?
My latest scans show decrease in size for my lung mets, but increase in size and number of my spinal mets. Basically, I'm now on palliative care; no cure options. My chemo is being changed from Irinotecan and Avastin to Lonsurf and Avastin. I'm having a hard time wrapping my head around the idea that this cancer will kill…
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Recently diagnosed
I was diagnosed with Colon Cancer on July 19, 2021. I had surgery on August 24th to remove the tumor in my colon and a tumor was also found on my liver that was removed. A CT scan was done prior to surger and a "likely cyst" was noted on my liver, well guess that was wrong. So now facing Stage 4 colon cancer. Still waiting…
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2nd opinion tomorrow
We will get a second opinion from an university cancer clinical center tomorrow. They took our neighbor under their wing, hopeless case for others doctors, and these doctors cured him. Maybe they will give my dad time? I dont know but after these last weeks: progressive disease, peritoneal mets and surgery (which was…
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Why not a delete button in editing?
Doubled posts are exceedingly annoying!!
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It's a month of mile markers in my life
Today, the 6th being the last marker, 7 years since my second liver surgery, with nothing but watching andtesting between then and now. I note it, but don't really celebrate it, given the other markers relate to my late wife. Sep. 1st would have been our 26th anny. The 25th wouldd be her 60th birthday, and my day of…
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Support for my Mom
Hi everyone! I’m here looking for some support for my Mom. My Dad was diagnosed with stage IV colorectal cancer 4 1/2 years ago. My Mom struggles with leaving the house and having people ask how my Dad is doing. We live in a small community so it often seems that people are maybe being a bit nosy. When my sister had…