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Colon cancer returned 6 months later
hi, my grandmother was diagnosed with colon cancer in April 2019. She completed chemo in October 2019. this past Monday my mom took her to the ER because her face was drooping on one side. The doctors have determined that it wasn't a stroke but Bell's Palsy. But they found a mass on her liver, spots on her lungs and a spot…
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crazy bloodwork
Bloodwork showed elevation with alt, ast, chloride, glucose and sodium. What the heck! Does folfox cause all of this?
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Scan results
No evidence of disease! February marked 4 years since original diagnosis of stage 3 rectal cancer! May will mark 2 years NED since recurrence. I post this to let newcomers and those who are going through treatment know that there’s hope. I went from stage 3 to 4 and out! I aggressively fought this disease and you can too.…
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covid19 hustling rip offs
My grandkids mom told me baby formula was hard to get. People without babies are buying it up and reselling on fb. I told her she should get the seller to meet her for buying and group of them should meet the persons and take the formula and just give the person store price. SMH
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I've tested Positive for Covid-19 - UPDATED
UPDATE (3/29): My husband is in the hospital with coronavirus and pneumonia (bacterial, so antibiotics are helping.) OUr daughter's cough and breathing are still worsening, tho she's in pretty good shape. She hasn't been tested, but county health assumes she has it as well. (She does.) My symptoms remain minimal - more…
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got this on facebook...feel free to print and post at your home
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Surgery can be soon
Hello, Wherever you are I hope you are all safe. During these times my mom and me are more worried about my dad of course. Still we are taking all precautions we could do. Mom is taking distance, I am not travelling home. Of course docrors visits still need to be done. Blood work needs to be done but my dad will wait in…
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Hospital update
Automated call from the major hospital in our state. All patient apts have been canceled to include maternity and end of life care.
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18 Years Later
18 Years Later Hello CSN Family, Just wanted to share hope and inspiration to anyone starting this journey. Brief History: Surgery March 20, 2002 Stage 3C rectal cancer with 10 positive lymph nodes. Had follow up Chemo and Chemo/ Radiation Combo No Recurrence Thrilled to be starting my 19th year in Remission Lisa Rose
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Maglets
I can hardly believe I am here. It all seems so strange ...so long ago. I wonder if anyone is still here from those days when I depended on this site so very deeply. I am still going after colorectal to liver back to liver and then a fresh battle with breast. And now coved 19..I feel so deeply sorry for cancer patients…
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Considering resection
Stage 4 colon cancer since 09/24/19. full blockage in colon, spots on outside of colon, small intestine, and abdominal wall. Was surprised with ileostomy during original attempt at resection after a false negative on primary tumor during colonoscopy. would have to be chemo free for one month prior too and after surgery.…
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Scary times
I just lost my little part-time job, and my husband's job is on the line. EDIT: On re-reading my post, I worded that wrong. I didn't LOSE my job as much as it has been put on hold for 30 days - or more, if the powers that be, decide. Our state governor just announced that all non-essential businesses are to shut down for…
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Anyone else worried a lockdown might happen, then how to get chemo?
I have hunkered down in my NYC apt. I think my biggest fear right now is if we lockdown, how will I get to chemo since I take a car service.
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extra markers
Going to go out on my own tomorrow and order extra markers, ca199 and LDH. As of now I still have no idea if he ordered genetic markers, kras/bras, etc. i hope he did. We are going to have one serious visit next Monday for sure. Last visit I told him about seeing a nutritionalist and gave him the blood work. He wasn't…
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Autoimmune?
Forgive me if this is a dumb question, but as a cancer survivor, am I still considered to have a suppressed immune system? I'm 15 years NED. Thanks,
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Autoimmune?
Forgive me if this is a dumb question, but as a cancer survivor, am I still considered to have a suppressed immune system? I'm 15 years NED. Thanks,
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picture
Hoow do I add a ptcture? I can't find anywhere that shows it.
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Older members please shout out
Hello all! I joined in May 2013 and went straight into the battle against colon cancer- restaged 3C. I have not checked in here for quite some time but hold all fellow fighters and survivors in my thoughts, prayers, and heart. If you are just beginning this journey, stay strong, be brave, and know that at this very moment,…
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Three years
Three years ago, I faced a nearly totally obstructive colon tumor and I did not know if I would live a day, a month or a year. After surgery and a not too happy course of chemo, I have managed to make it through my three year CT and blood tests with no evidence of cancer. There have been side-effects and challenges, some…
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Scan Not Great, May Try Folfox again, neuropathy tips?
The tumors in my lungs are having a field day. This includes one that is close to (if not actually started to) affect my airway. Yippee. I may be able to have radiation, but it is not clear cut based on the location and potential damage. The chemo options left would, at best, stop growth for a bit. The FOLFORI is…
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A message from SandiaBuddy
I am posting a message from Sandia, as he is having trouble doing so. This is my 2nd attempt, so something is not right. I have composed several posts and lost them (blocked???) when I tried to post. In case others have this problem, it might be worthwhile composing in a word processing program, then cutting and pasting to…
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Tumor marker CA 19-9
Hey guys, I have a question to the tumor marker CA 19-9. Yes during colon cancer they use CEA a lot. But in the case of my dad they use both CEA and CA 19-9. Apparently, they like to test it when mets are present... Does anybody got tested in this one as well? What are your experiences in treatment with it? Does it rise…
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Stage 4 colorectal I need some positive survivor stories right now
So I went to MSK for a second opinion today. The dr told me she would recommend the same treatment my dr recommended. she told me that after liver biopsy that it's in my liver and my rectum and lymph nodes. And there are nodules in my lungs. Also I have ascites in my abdomen and she said it was there too. she didn't seem…
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2nd round of folfox
On 2nd roound of folfox and man my stomach is hurting tonight. I took some colace but it takes a while, the bottle says. Any ideas in the meantime?
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MODS: Figured Out Issues ( ) Seemed to block reply
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Apt canceled
Got portal notification that my follow up apt with surgeon has been cancelled for next week. Since I have done so well, no issues, I am at low risk so can miss the apt. Its because of this coronavirus. The plastic surgeon wants to keep apt with him but do it via teledoc style.
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WELCOME BACK CSN BOARD!!!
Missed you. This is the only thing I use ACS for really, the one time I called was not much help, and this is something important for people in terms of support.