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soundboard
Hello, I am new to his forum and was diagnosed with sage 3 colin cancer after a colin resection to remove tumor. It was discovered I have mets to lymph nodes 12/24. I went to the Doctor yeserday and she said I was "cured" but unfortuinalty have mets to the lymph. I asked how she was going tohelp me through it and she said…
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Low white cell count
So when I was first diagnosed, my WBC was in the normal range. During chemo, it dropped to as low as 1.8, at which point my oncologist delayed the next treatment. Really...in the last 4 years it has remained low all during treatment. I still can’t get it to normal and in fact in the last 9 months, it has dropped from 4.0…
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Immunotherapy for MSS number.
MD Anderson 2017-1339.
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Any men develop prostate cancer?
I have a biopsy in a few weeks because it seems I might have prostate cancer now. Wondering if anyone ever had a spread to the prostate. Coach
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This Yr 20 Rounds of Chemo, Biked 1,500 Miles, Ran 375 Miles, Swim 30 Miles
To go into chemo or continue chemo is a personal decision. And many times, depending on diagnosis and other things, passing on chemo for quality of life choice makes sense. And on the scale of things I like to do, chemo is not high on the list. I had surgery and 12 rounds of chemo almost 5 years ago. Then a lung met with…
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Useless CEA, nearing one year since surgery
Is anyone else here have this situation where your CEA was in the normal range even with a tumor present? I didn't have the test done before surgery to remove the colon tumor. I had it after and it was 1.5, the same week they discovered the liver met. I've had three tests and it has never been higher than two, it actually…
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Worried
In march my dad was dianosged with stage 3 rectal cancer and told it was curable . So he had radiation 24 treatments and 3 rounds of chemo treatment . Last week he had surgery to remove the tumor and the doctor said it was one of the worse she had done . But they ended up getting the tumor out but he ended up with a…
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Big Talk On New Years Day Coming
Hanging upside down in limbo this morning is a weird place to be. I plan oh hiking today and soaking up some fresh air. I know that none of us know when our time is up but I am a realist as well as a dreamer. Hope for the best and prepare for the worst has always been my plan for life and still is. I got a call from my…
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Pre-surgery stage results
Stage T3N1. Mass 1.6cm from anal verge. 1 mesorectal lymph node involved. Another small lymph node presacral. Positive circumferential resection margin. Negative lymphvascular invasion. Does this mean I might dodge the bullet for APR surgery you think? I am going to research all these terms this weekend. Any knowledge you…
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New Caregiver - brother rectal cancer
Wish we weren't part of this group, but here we are. My younger brother (52) was diagnosed about four months ago. He had been dealing with bloody stool for six months to a year. Finally took him for a colonoscopy and was notified right there that he had a very large tumor about 10 cm up and it was about 85% blocking his…
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Merry Christmas!
Merry Christmas to everyone on this board and their families. I wish you all good health and if you can’t get that, I wish you all peace and strength in your journey. Thank you all for the advice and comments on this board. We each have our own struggle with this disease and it helps to read about trials, drugs, helpful…
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Slow-runner's husband has passed
I am copying and pasting Slow-runner's post here, so that we can share our love with her at this time. My husband just passed on November 27. He was diagnosed in August 2017. He had a tumor in the ascending colon with liver, lung, peritoneal and lymph node involvment. His only symptom was shortness of breath when running…
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Butt/Karen and Other MSS Types - Immunotherapy Trial
This trial is looking for MSS patients who had chemo stop working https://clinicaltrials.gov/ct2/show/NCT03953235 A bit more here https://cancer.columbia.edu/clinical-trials/phase-12-study-grt-c903grt-r904-vaccine-targeting-shared-neoantigens-combination It is one I am trying to get into. Note that they do a blood test to…
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Re
How to post a picture?
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Progression of Symptoms With Lung Mets
Thanks to all of you for weighing in on my results from Charleston. I have some choices to make but for now, I am still leaning towards no more chemo. My oncologist told me that he didn't forsee the mets causing me any issues six months from now or even a year from now. I am wondering if anyone here has had experience with…
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Getting ducks in a row
Question: How many here had to have blood with APR surgery? I want my donor to be a family member if I do need blood.
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Happy Birthday TruBrit
Happy Birthday to TruBrit (Sue), the central pillar of our online community and mistress of birthday greetings, who I believe is turning 19 on Sunday, December 22nd . Birthday song!
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New treatment being tested
One day they may hit the jackpot, and find something that cures. Until, then, the trials continue. New Trial in England Tru
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Chemo Is The Only Thing On The Table
fDid not get the news I wanted. I have 7 tumors with some size to several which makes me a no go for anything other than what I dread most.. chemo. If and when the chemo destroyed or shrunk the tumors, we could talk additiona/other treatments. What happened to a simpler life? My daughters are in tears begging me to do the…
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Praying For Hope From MUSC
Just wanted to leave an update and beg for good energy and thoughts in the process. I thought the tumor board at MUSC was meeting today but after talking to the nurse, she said it would be first thing Wednesday morning. I'm usually not full of anxiety but I feel it this afternoon. I hope that ablation or surgery will be an…
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Happy Birthday Melanie67 for the 17th
Just flying by with a Birthday greeting. I hope you have THE most wonderful day; filled with all the love and laughter that your soul needs. Tru
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Dreams
My thoughts are all over the place right with the anticipation of surgery. The past few nights I dreamed I had surgery (one of the dreams I was in Mexico).
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Happy Birthday, Sestra17
May your day be filled with as much joy as you can fit into it. TRU
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Things "WE" Don't Talk About With Most
I am posting this because I have had several members contact me about "no chemo for life" stance thru email. I am very open and straight-forward and in no way want to impose my own decisions into someone else's. I respect each of you and the turns you have to make to navigate this crazy beautiful thing called "life". This…
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Happy Birthday Joan M
I know that sometimes it is a struggle to celebrate, when you're not feeling on top of the world, but still I wish you a grand day, in any way you and your family can make it. May you be surrounded in love and joy, family & friends and I do hope there is cake, or something equally as enticing for you. Tru
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Folfox chemo before APR surgery?
Hello I am new to this forum but have been reading a lot on here as my husband who is 60 years old found out in July he has Stage 3a rectal cancer. He had the 5 weeks of chemo radiation and added a few more radiation days to try to eliminate the cancer. Unfortunately the tumor shrank a lot but it's still there. The surgeon…
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Pushing For MY Life & Not Waiting
After crying a while and thinking of all the what if's, I picked up the phone and called MUSC where I had my liver and colon surgery. My liver surgeon's nurse called me back, heard me out and gave me something I needed...a plan and HOPE without waiting. The tumor board meets every Tuesday to go over cases and make plans of…
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Good News/Bad News - CHEMO DONE!!! Chemo Not Working
The good news is I am done with FOLFORI The bad nes is I am done with FOLFORI K-rap. What I thought was happening last scan has happened. It stopped working. More mets and the bad boys have started growing again, one pushing 6 cM. Yay. Looking for trials now and then at other possible chemos if there is no trial or the…
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Lung Mets/Time
I am trying to gather as much info as possible to make descisions to come. I am waiting for my referral appointment back to MUSC in Charleston and thinking a million things at once. Does anyone have information to share on the growth rate of colon mets to the lung without treament? I know everyone is different but any info…
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So Thankful For All Of You...
To know I can come here and alway find a hand to hold is priceless....thank all of you. I am so humbled by the genuine love and concern I "feel" from the members on this board. I wanted to post just to answer some questions I found in the posts you left for me...Two small nodules were noted in June when I had a scan but we…