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Colorectal Cancer

Archives for October 2019

On clinical trails——Dah.......
First, sorry for the lack of paragraphs because I am typing from the mobile.... When a year ago my cancer returned to lungs after a brief remission, I started to look on clinical trails. I found a couple of databases and invested my effort and time looking on those trails. First, I noticed that the vast majority of them…
Coping question
How do you deal with the fact while have been fighting this demon for a while, that you may have another year or two left and have to leave behind people whom you truly live and they do need you?
Clinical Trial
After 6 months of NED after right hemi-colectomy, liver resection and SBRT as well as 12 rounds of chemo (6-folfox, 6-folfiri) a new met has shown up in my liver. My oncologist has suggested a clinical trial that he is part of at UTSW that is using cetuximab with durvalumab w/without monalizumab. Sounds like it's all…
Chemo breaks
For those of you on lifetime chemo, is there flexibility as to when you get breaks from chemo. I am really hoping that I could get a month of chemo free time before my next vacation so I have some energy. Just curious how the whole lifetime chemo thing works since my oncologists never want to discuss past next step.
Exhausted!
Had my 10th erbutix/irinotecan infusion Tues, and cannot get enough sleep and rest. I am so exhausted. I wonder if the fatigue is cumulative, or if it is because my flight back from my reunion was 12 hours before my infusion Tuesday and the combo of fatigue from vacation is making this rounds fatigue worse.
NED!!!
Another Ned for Sandy.....yippeeeeeeee! 3 1/2 years now. I'm so thankful for finding this site it's helped me so much along the way.
When are you considered a survivor?
I go for my first scan since surgery tomorrow, and I've been thinking a lot about this lately. I shy away from the term "survivor" because I don't feel I've met that goal yet. I'm interested in know what all of YOU think the term survivor means. Anne
Hope for Neuropathy‎?
I came accross this article in abstract form only that may provide some hope for those with neuropathy (please note that this appears to be a very preliminary mouse study): Oxaliplatin is a cornerstone chemotherapeutic used in the treatment of colorectal cancer, the third leading cause of death in Western countries. Most…
Stage 4 colorectal cancer mets to liver and tiny nodule in lung
Hey All, My mother was recently diagnosed stage 4 colorectal cancer w mets to liver an dtiny nodule in lungs. Was on oxyplatin and avastin and 5fu for about 6 months (2 rounds) and now on maintenance chemo (just 5fu and avastin). Cea was initially 587 prior to treatment and went down to 7.1 and since maintenance chemo of 4…
Happy Birthday, Cinda
Happy Birthday for tomorrow, 21st. I will be heading off to the airport early, and did not want to miss your celebration. I hope you have a wonderful day, filled with love and light, family and good food. This will be me tomorrow, celebrating you as I fly high through the sky. Tru
is there anything else we can do?
I'm afraid my mother is reaching the end stage 4 with mets in liver/lungs since September 2017, we tried everything we could (Folfox, Folfiri, avastin, lonsurf) - nothing worked for long, now off chemo for a couple of months as we have run out of options. She has been hospitalised quite a few times over the last month, now…
Anyone use Subsys (fentanyl under tongue spray for severe pain?
I was called by my oncologist's nurse this afternoon with an update on my pain med refill. We have been trying to get my subsys refilled for the past two weeks (since my last treatment) and it was taking much longer than usual to get a call from the specilaity pharmacy to schedule a delivery day and time. When the nurse…
Hubby is NED again! Was stage 4
Hello all, i think of you all daily. Richard just returned home from MDA for another 3 month checkup. He remains NED at this time. He is becoming more and more of himself each month. A couple of weekends ago he traveled a few hours from home with some old buddies for a friends 40th bday and a football game. He did this…
Extension
Hi all I just came home From my first scan since I have been away from chemo for 2 months. NED My break from chemo was just extended another 3 months, then i’ll get next scan etc . I don’t have to go back till mid January. Go Science!!! (feel like dancing) SK
Metastatic Colon Cancer
Hi all and let me say that I am so sorry that we are all here but thankful for others to talk to. I know we are not doctors but we do have experience so I'd like to ask advise based on that. My husband's cancer has returned in his lungs, a lymph node and ribs. He was given one infusion of Vectibix and Irenotican. A few…
Call me a lurker & Opdivo update
It's been a while since I have posted, but I wanted you all to know I have been checking in to see how everyone is. So sad to see some of the recent posts, so happy for others.....It really is a rollercoaster ride this horrible disease! I just don't want to keep posting the negativity going on since it could scare those…
Signet Ring features?
Hello Everyone.. I am so glad to have found this web site and this community. Last June my husband was diagnosed with Rectal cancer, adenocarcinoma with signet ring, stage 2/3. Everything we found online referencing signet ring was ominous and we've been trying to understand what it means to have signet ring 'features'.…
My husband starts chemo next week
he had some atypical cells come back in a scraping from his bile ducts. He has a structure in his duodenum as well that also had atypical cells. Cancer in Situ they called it. He has tissue growth around his common bile duct they are watching didn't biopsy it because he knew he was doing chemo so if it shrinks it was…
My oncologist said NO to wine
I was hoping it would be okay to have a couple of glasses of wine towards the end of my 14 day cycle, so I asked my oncologist. He very adamently said NO! and gave me a mini lecture. How disappointing.
questions about pump infusion following oxyplatin
I will start 6 months of chemo for colon cancer next week. The plan is to receive oxyplatin infusions every 14 days followed by a small pump taped to my chest delivering FU-5 into my port for 48 hours. The pump will require removal after the 2 days necesitating another visisit to my oncologist Is there anyway a patient can…
Bent But Not Broken
It's 4:30 and I am wide awake...nothing new. I've had this post on my mind for a few days. So much has happened within the past year. September of last year was when all hell broke loose for me. My life did a complete 90 degree turn in a matter of days. Ever see the movie "The Perfect Storm"? There were days when I felt…
ovarian and colon cancer
I have ovarian cancer and colon cancer in 2 areas with large tumor almost causeing complete blockage, lucky a small path so I can go to bathroom. I was told I had the colon cancer 1 year ago all they do is keep sending me for test . I did do radiation and 5fu. but it just burned tumor and didn't swink it. Now its in female…
Wondering if something else is going on
I was diagnosed with signet ring cell carcinoma of the right side of my colon...from terminal ileum thru to cecum. However, I have a lot of pain in my upper abdomen. This pain is what first brought me to see a doctor in June. I was told it could be an ulcer and told to take Prilosec. Months later, I find I have colon…
Colorectal cancer stage 4 with mets
Hello everyone. I am new to these Boards. I am living with Bladder Ca stage 4. But that is not the reason I am sharing and looking for input. I am sharing because my best friend/neighbor just passed from colorectal cancer. She fought a good fight for approximately 5 years. She was being treated at the Mayo Clinic in…
New Meat Study
"This week the Annals of Internal Medicine published studies arguing that eating red meat poses minimal health risks for most people, and that even our certainty about that link is weak. With these conclusions in hand, the authors offered a set of recommendations that most people could continue their current levels of meat…
Bolus
Appereny a bolus infusion of FU 5 can be reduced to 50 percent or dropped all together. There is no evidence that it is makes chemo better. Reduces side effects. Also you ca by your own disconnect the pump at home after 46 hours or request a home care nurse to come and get it done.Just learned it.
Newly diagnosed and need surgery
Hello. I was newly diagnosed with signet ring cell carcinoma in my colon. Seems the terminal ileum, ileocecal valve and cecum ate affected. CT shows non metastatic. But when I read about this it’s scary. Diagnosis was from biopsy during colonoscopy. I have kaiser. I hear mixed things. I’m meeting several surgeons because…
HollyID has passed
While Holly had not been on here the last year, I know there are some of the "old timers" who will remember her. She passed away due to cancer on Sept. 25th. She was a wife, mother, grandmother, nurse and a great lady. She will be missed by many. Marie who loves ktties
Tears come too easy
Does anyone else cry easily at emotional scenes now on TV? I had to stop watching This is Us after I was diagnosed. I love the show 911 but I am guaranteed to cry. I wonder if it is hormonal and has an actual physical cause or if now I truly know how easy it is to lose it all and it is all my fragile mental state.

Colorectal Cancer

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