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Colorectal Cancer

Archives for July 2015

No More Ox As Of Today, Plus Interesting News About FOLFOX Study
So went into #10 today. As I mentioned in other posts, my Onc really keeps on eye on the Ox and the effects, with neuropathy being big concern. He wanted 9 with the Ox, but my hand is increasing and he said it snowballs, not linear. So this treatment and the reamaining 2 after this one are Ox free. He also mentioned Japan…
Folfox treatmens protocols, europe vs america
Has anyone heard or read that the standard protocol treatment in europe is only 6 rounds of folfox vs US is 12? Any reason why this is so dramatically different?
I've been DEPORTED :)
Hello all... this morning I did it... I'm 4 weeks post chemo and against some others thoughts that said I should leave it in I decided to go ahead an remove my port.. has anyone removed theirs as early as I did? Feels wonderful not to have to look/feel my lil buddy everyday. I just wanted to start a new chapter, a clean…
Different type of Poop Question
I thought I would post here rather than on the anal cancer site where I belong because there are never many people on that and you guys have the same sort of bathroom issues that we do. Last week, while on vacation on my friend's boat, I managed to get a sloppy lump of poop on my favorite, italian leather, woven belt. Only…
Bacteria concerns, am I being a nut?
Okay, so my understanding is that our bodies can fight off cancer cells to a certain extent if we're healthy or our immune system is strong enough. I live with my husband and his son moved in in January because he never finished high school and his mom kicked him out for beating up his brother and my husband is trying to…
After surgery chemo
Well just finished up my surgery, they pretty much took everything......rectum, colon....and created a stoma for me. Dealing with the "bag" isn't all that bad, its been 4 weeks and more uncomfortable than anything else, still not fun...but a fair trade to get rid of the cancer. I met with the Dr. and wondered what is next?…
This is tearing my family apart
Hi. I'm a newbie here and was hoping to get some advice. My mother is fighting colon cancer and the whole experience is ripping my family apart and I feel like I'm going to lose my mind. I'm going to put it all out here and hope that no one judges me. I am married (marriage is strong), have 1 son who is married, 2 young…
Got a reminder how time flies...
Dear Fellow Cancer Assassins ! Its been a long time since I posted. I was lurking for a long time but was in no state of mind to actually post. Been a tough time with a revised j-pouch, removing the last inch of colon, new temporary ostomy, reconnection, paralyzed bowels, TPN feeding, strictures, etc etc. The last 6 months…
ahhh the smell of vomit in the morning
still stage four almost 3 years out 2nd round of chemo on 6 of 12 keep geting it it my groin i gues thats better then brain,liver ect
Phil64 Update / Wedding
Hello all, The last time I posted was about the big CEA scare we had. My CEA had jumped to 8.0 on a 6/25 test. A retest and scans on 6/26 confirmed that the 8.0 was a glitch. Yesterday was the third Under 1.0 CEA test since the scare. I continue to receive Erbitux and continue to battle the Erbitux achne, AND CONTINUE TO…
Lovekitties...................Need Your Help
Have you or anyone else heard from Ann recently? I don't have facebook, but I know you do and she probably does. I PM'd her a few days ago, but no response. We have been "buds" on here for a long time. Just worried. I remember her mentioning a vacation in the Tetons, so hopefully that's where she is and I'm real jealous.…
How are things going Jeff!
Hopefully you are back in the comfort of your home by now and that infection is subsiding. Just wanted to open a new page so everybody can give you support we all can use during hard times. Wish you speedy recovery and lond term resolution, Laz
Daughter recently disgnosed at age 35
My daughter was recently diagnosed after a colonoscopy for what the doctors thought was an ulcer,she then had a ct scan,an appointment with a surgeon,more bad news the ct scan showed something suspicious in her liver,had a liver biopsy all within a week and a half.She had the biopsy on friday and now we are just waiting to…
update and good colonoscopy
Coming up on 9 years surviving and thriving as a stage 4 guy. Just had my 4th colonoscopy today since dx and everything looked good. All the nurses and the Dr. were amazed and happy at my journey. Many peeking in the room to see this "bigfoot' like survivor. All my best to everyone out there. I know I don't post as much…
Job hunting, what do I tell a potential employer?
I looked it up on the employment guidelines for Canada and it said I don't have to say anything unless I'm asked why I was off work for a long period of time. Also, that they can't refuse me insurance coverage which I was surprised at. I have to look for a job because I owned my own business when I was diagnosed and had to…
NED or in remission?
What's the difference? The few times that I share with someone that I had cancer I'm never sure what to say. I say I had cancer last year. Do I say I'm in remission? Or that it's gone? People are always curious and I'm not sure that I'm saying what's really happening. Is it ever really gone? If I get tests and it's back…
Newly diagnosed-hoping to talk with similar Stage 3 healthy, active, descent diet...
I'm a 44 year old man and was diagnosed with colon cancer a feew weeks ago. The CAT scans showed that it was only in my sigmoid colon so surgery was performed. I healed quick and was back home with three days - normal bowel movements again within 5 days! After extracting 48 lymphnodes the pathology showed that 14 were…
Diagnosed at 34 with stage 4 colon cancer. Been battling for a 11/2 years. Need Help!
Hi everyone! Someone please help me understand more about the CEA & how accurate is it?
Life after rectal cancer
I am post surgery 4 weeks. I came out of surgery with a temporary ileostomy and an intact rectum and anus. I am dealing with the ostomy pretty good, but do any of you have any suggestions on dealing with the discharge coming from my recturm? It seems to come mostly when I get up and walk and the odor is horrific! Does this…
How are things with you, Winter Marie?
I've been thinking of you and hoping things are going as well as can be expected. Would love an update. Sue - Trubrit
Splenectomy for low platelets
Has anyone had their spleen removed for low platelets without a significantly enlarged spleen? If so, was spleen removal successful with respect to increasing your platelet counts, how much did they come up, and how long were they at a higher level?
Clear Scan!
For those of you who don't know me from other forums- Clear scan!! 11 months NED and 3 scans in a row! Thank you for all the support and well wishes, this is an amazing group of people. Next step is port removal! Easyflip/Richard
RFA advice
Doc has recommend I see a liver spec for a RFA. Need advice on this procedure. Anyone have this done?
Delays, good news and an update
My third chemo treatment last month was delayed a week because of a low white blood cell count. The count was back up after the third week. Went for my fourth treatment today after two weeks and the same thing happened, so we're waiting another week for the count to come back up. I asked my oncologist if she was going to…
Newly Diagnosed
Hi, I am 38 and was recently diagnosed with colorectal cancer. A 4cm mass was found in my sigmoid colon. My surgery is booked for July 29th. Been waiting for a month to get this tumor out of me. My blood work and CT scan all came back normal which was somewhat of a relief. I'm freaking out as I have never been put under…
Children
Wondering, My kids are 22 and 24. Completely in denial. I'm stage 4, mets to liver but Ned since resection in May. More to come no doubt. They think when my chemo is done in two months that life continues the way it was before. Anyone else experienced this? I don't want my mortality to dominate their thoughts but realism…
Husband skipped chemo yesterday
He was diagnosed stage IV last October, mets to liver, lungs & stomach lining. Been on two cocktails of chemo and over the past week or so has been in severe pain in his stomach and back (stomach pain is new). We went in for treatment yesterday and Dr recommended doing a scan and to forego treatment if my husband didn't…
Need advice
hello all, my wife,47, has been diagnosed with stage 4 colon cancer with liver mets. This was in April last- it's tragic- her mom had same but we were not told to screen her. May 3 we started with chemo - the size of the lesion in liver was big. docs advised to do chemo and hope for window of surgery to open. After first…
Port Removal Update
Today I get to remove the dressing and take a shower! The burning at the incision point is getting better. I am beginning to adjust to not having my "little buddy" riding on my chest just below the skin and having tubing up my neck. I see my counselor next week. We will work on feeling comfortable with this big step.…
close your eyes...count to 10...and FLY!
Hi all, Today I had my chemo port removed. I guess you can say I was "deported". At my Oncology appointment last Monday, she really felt for my emotional healing I needed to have it taken out. I am now on every 6 months for CEA tests and once a year for CT scans and she felt that going into the infusion center monthly to…

Colorectal Cancer

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