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Colorectal Cancer

Archives for May 2015

Cea
How much is a cea supposed to drop initially on chemo? Can this happen where it drops 1 round and goes back up? My dad's cea was 65 befor chemo , 80 after round 1 and 55 after round 2. But I'm wondering if this 1 drop really means anything ?especially as previous irinitecan had not worked .
One hundred and eighty seven MILLION dollars stolen from Cancer charities
Edited to make it readable. One really has to wonder what the world is coming to. Just a few charities involved here, but really, how can you steal money from good people and not just Cancer patients but children suffering as well? Sue - Trubrit Not sure where my head was when I wrote this post. Thank you, Marie who…
Help and Advice needed
My dad has so far had 3 chemo sessions - oxyplatin and raltitrexed .surprisingly the neuropathy is not that bad but he has bad appetite issue dad lost a lot of weight and had now had fluids on 3 ocassions . Is it common to get dehydrated where to bp and pulse drops too ? I am Very worried . He as no vomitting or dirrhea.…
Color
Is our (CRC) cancer ribbon dark blue or purple?
Germany
Has anyone been treated by a professor vogl in Germany ? We are thinking of seeing him for my dad who has liver mets and peritoneal mets and chemo not really working .
Other options ?
Has anyone had A Situation where chemotherapy failed ? Are there other options ? my dad has liver and peritoneal mets , he waa a stage 3 initially .
Port placement tomorrow- any advice?
I haven't posted in a few weeks but have been reading and learning from the vast amount of knowledge you folks have shared here. Since my last post, I've met with the clinical oncologist, had a PET scan, met with the radiation oncologist and am now scheduled to have a port put in tomorrow morning. One of the spots that…
Brand New Caretaker Seeking Advice
Hello All! I'm sorry to have a reason to join this tribe, but I'm glad I'm here. My husband was just diagnosed with Stage IV colon cancer (mets to liver and peritoneum). It's so new and, frankly, screwed up that I don't even know the specific diagnosis yet. Asking his oncologist to write it in the notebook I'm keeping for…
Tell me about port removal, please
I'm having my port-o-cath removed next Thursday because it's coming through the skin where the bumps are. Two bumps are already exposed and it hurts and it needs to come out. Anyway, how rough is it to have one removed. One woman at the cancer centre said when they take the tube that goes up the vein out it feels horrible.…
PET scan question
As I've mentioned, My brother recently passed from cancer. It was of the esophagus. Anyway, I was talking to me sister-in-law last night and she said that at one point he had a PET scan. I've heard of them but never had one or had it explained to me. She said it's just a blood test. Is that right? The word scan makes me…
Neuroendoctrine tumour
has anyone had a neuroendoctrine tumour in their small bowel. I'm told I have a rare cancer. I had the one blocking my bowel removed but there is three more small ones in situ. I have to wait three months while my surgery heals before getting scans and tests to see what treatment I need. I put a search on the site but…
I'm having Hipec
Just got home last night from the Cancer Treatment Center of Americ. This was my best trip so far. I had a cea marker done. My original marker was 13.9 before surgery. It then went to 21.1, then to 28.1, then to 19.1 and now it's down to 8.1. This being after only 3 treatments. :) . I had a Ct scan done while I was there…
Never been so happy to be told I am fat!!!!! (lump update)
So, today was scan/biopsy day....WHEW, to tell the truth, I was nervous!!!! The Ultrasound of my neck didn't show anything. YAY! The Ultrasound guided biopsy of the node could not be done because the ultrasound could not pick up anything other than....wait for it.... "Normal looking fat tissue"....first from the tech, and…
Upper respiratory problems seem more frequent after chemo. Is this common?
In the last six months, I've had three bouts of severe upper respiratory congestion combined with coughing and nasty nasal drip. This is three more than I had had in the two or three years before my diagnosis and treatment last year, so now I'm curious. Could it be that chemo left me more vulnerable to the common cold and…
Hey Phil64, you are famous!
My husband had his second opinion today. This doctor suggested erbitux being adding to folfiri. he mentioned the rash and my husband wanted to know what sort of rash so when we got home I looked it up on google images and guess whose face I saw?! Yep, I said hey I know that guy. We always knew you were a rock star, now we…
Mothers day and birthday all in one week.
Hi everyone, I have not posted in a while, but I have had a tough week and need to vent. I do pop in every once and a while and read other posts. My mom passed away in November 2014, at the age of 58. This week was not only mothers day but also her birthday is tomorrow. She would have been 59. Mothers day was very very…
CEA results
I finally got my CEA results today. It's 2.9 which the doctor said is within normal range and actually is lower than it was when they last did it in the hospital. It was in normal range then, too. I don't remember anyone telling me what it was before today but that's okay. I didn't realize how scared I was until he told me…
Relay for Life :)
Hi All, This is a completely off topic, but just wanted to let you guys all know: I'm going to do the Relay for Life (24 h walk for those of you who is not familiar with what this is) this coming weekend! I am doing it for my Mom who passed away a while ago, for my friend who just passed away last Friday, and for you all!…
My Dad
Hi, I am from the anal Cancer Forum. My dad 84 was diagnosed today with colon cancer. He is going forward with treatment, chemo and radiation to shrink the tumor. Do you know of others who have undergone this treatment at this late age? what was the outcome? thank you for your help.
Hello darkness my old friend
Bittersweet news, my wife passed ten days ago of brain cancer, her celabration was amzing, family together and an Elvis impersonator to boot, cause she loved Elvis. Today I was scanned for my colon cancer, and the onc. calledd at 4, which usually is bad, but I'm clear on the PET scan. So my feelings are torn, but I get to…
Hoping for same trial as Lilacbbroller (Karin)
so, my Onc let me know today when Irenotican and chemo fog, forgot chemo I do evey week, (just did both today)quit working which they might in three months or maybe six months, that I have no options left. I asked him about Maryland trial, he said he's been in touch with Standford hoping they would do a likewise trial and…
a caregiver's depression
My husband has had a pretty rough weekend. First day he was in excrutiating back pain which he took morphine for it which barely got him through the pain. I asked to take him to ER and he refused. He's only been to the hospital once and that's when the cancer was diagnosed and surgery, chemo after. Today he has slept all…
Another anti-EGFR,KRAS wild treatment:Sym004 (plus other items)
http://medicalxpress.com/print350534912.html Walnuts and CRC, www.aicr.org/press/press-releases/2015/new-study-walnut-diet-slows-tumor-growth.html www.mdpi.com/1422-0067/16/5/9976 www.businesswire.com/news/home/20150422006657/ has "Cold plasma used in world's first clinical surgical procedure performed tp selectively kill…
Thank you Laz & Helen
Not too long ago one of you started a thread or two about living with a colostomy bag. It was both funny and informative, and wonderful to be able to talk about the issues. Laz mentioned that he cleans himself out so he only has to deal with things every 4 days. That got me thinking since I was heading out for two weeks of…
Recovering at home after first (only hopefully) liver resection
Wow, You guys were right, manageable but painful. Huge Frankenstein incision, must have 50 staples holding it closed. Starting to walk a little better one week later. Good news, the chemo worked before surgery, folfoxiri plus avastIn. The right lobe lesion was down to two centimeters so a 4x4 divot was taken out. And the…
Second opinions
Does anyone have any information on Tufts Medical or CTCA for second opinions? Trying to get a game plan in order. Would love any input or thoughts on these places. On a better note .. I hope every Mom out there was able to enjoy your day.
For Mother's Day(Not Cancer Related)
For all of you who remember me and those that don't know me, I hope eveyone had a pleasant Mother's Day. As you know, I lost my husband Ron two years ago followed by my daughter Debbie just ten months ago. It was a rather sad day for me as all holidays are for some of us. For the first time in nearly 50 years, I did not…
Anyone ever feel WORSE ???
This is a weird one.. 2 outta 8 treatments they had to forego the OXI becuz platelets were below 70k.. Those two times I have felt WORSE.. bad stomach problems and bad foot neurothopy... Thought it was other way around.. Anyone ever get this??
Question for 5 year Survivors
I have been NED for 5 years after being Stage 4 and not expected to make it thru chemo. YAY I feel like I am kind of in this purgatory of being far away from all the bad stuff but one foot in the I had Cancer will it come back realm. Know What I mean? Anyhoo - for those of you on the mend, can you share your plan of care?…
more good news!
I just had my 11-month post surgery blood work done and my CEA went down a bit to 1.8. It was 2.2 two months ago. For me that is huge! Last year marked my 4th surgery in 7 years (to the day). This is the first time I have not had a CEA over 5.0 a year later. By now I would be either going for scans to find the tumors or…

Colorectal Cancer

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