Colorectal Cancer
Discussion List
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Folfox 9th cycle
Well ladies and gentleman- It's that magical time again. Chemo round 9. I have a meeting with my oncologist today, who will nod his head when I complain and say let's just keep going. I know I can do more. So far the challenge has been big but not undoable. I have 4 more to go. Thanks to everyone who prepared me. The first…
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Take a minute please
http://youtu.be/tNy3WY6TW2c I'm so proud to call this man my friend. On my down days, his plight gives me strength. Yolanda
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returning colon cancer stage 4
I had colon cancer in 2009, stage 3 and now it has returned in my uterus, colon and 1 ovary, stage 4. I have had 5 months of chemo, Avastin and Oxilaplatin. Got another CT scan last week and my tumors aren't shrunk enough and one tumor is too close to a major artery to my leg, so, surgery isn't possible right now. I have…
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Kathleen808
Just wandering how you are doing?
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does it get better
Dear Cyber Friends, Its been 3 months since my brother passed away. I thought by now the pain would have been better but its only gotten worse. I cant get past this. I have so many questions in my mind and in my heart. I miss him so much that my heart just aches. Everything in my home reminds me of my brother. Yesterday I…
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Wish me luck!
Hey everybody, my liver resection surgery has been set for September 23. The GI oncology center at UCSF does 5-10 liver resections a week, sadly we're not alone. I have a 1.6 cm tumor in lobe 7. The surgeon is very optimistic and thinks he might even be able to do it laporoscopically. I told him whatever size incision he…
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One reason drugs cost so much?
This is for ONE individual only at twenty companies........ www.genengnews.com/insight-and-intelligence/what-the-top-20-biopharma-ceos-are-making/77900249/ (yeah, i know this sort of pay applies to just about every business,including nonprofits;that's one reason such NGOs are nonprofit:by the time all those on the board of…
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Sore muscles
After 3 1/2 years of chemo anyone experince sore aching muscles. My oncologist said it's not them. Could be menopause ? Oh pls! I did fall four weeks ago and get avulsion frac in pelvis, which takes long time to heal. But this is crap. Mind u went walking in pool two days ago. Coud explain why good leg aching
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Question about a CT Scan
In regard to a CT scan, does a finding of "no evidence of metastatic disease" suggest there is no cancer in lymph nodes? If "no evidence of metastatic disease" is the finding based on a CT scan, approximately how reliable is that finding in regard to whether the cancer has invaded the lymph nodes? Also, the CT scan report…
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Winter Marie
How are you doing, are you gaining some weight and strength back I hope.
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Jucing, advice and recipes
So, I thought I would give juicing a go. I started by purchasing some different kinds of bottled juice at the store, being careful to look at the ingredients. I find that certain ones make me head to the bathroom rather often (or more rather often, as I already head there allot). But it also proved to me that I like juices…
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Not good news about hip
Didn't get good news about my hip. They took an x-ray in December and things looked good but 8 months later my ball joint blood vessels have died and now my used to be rounded hip bone is now flattened. It's like rubbing bone on bone. Dr. told me to limit my walking, which is the only exercise I love, and to limit any…
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And so it starts...
I had a colonoscopy on August 18, CT scan on August 22, surgery on August 26 with a diagnosis of Stage IIIB colon cancer. Today, I met with my oncologist and mapped out the short-term future. I will be having my port put in on September 18 and begin FloFox6 on the 30th. I am shell shocked...I was expecting, perhaps, IBS or…
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PET scan tomorrow
PET scan tomorrow. It's been 14 months since I finished Chemo and everything has been clear so far. Also 26th wedding anniversary tomorrow so the scan has to be good!
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Loma linda/ Regorafenib
Dr. Wants to try REGORAFENIB for George I feel very negative about this drug, because of side effects. I am wondering if anyone on this site has had any experience with Loma Linda in So. Calif? Also please give your experiences on REGORAFENIB OR STIVAGA I am also sending prayers out to Winter Marie, hope she checks in soon…
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Happy 50th Birthday, janderson1964
Jeff, you deserve a special thread, because a birthday is a special day and 50 is a special number. Half a century. So, Jeff, our wonderful forum friend, I hope that in spite of all that is going on in your life, that you are able to set a little time aside to do something very special for yourself, even if its just a…
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Its been a tough month already
I have been fighting with the insurance company for almost a month now to get SBRT done on the chestwall spots. Then I went for treatment last Friday and all of my blood counts crashed so they delayed it until this Friday. I never had problems with my blood counts before. Then I just got a call from my wife that her mother…
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Dying to be me. Death experience.
http://www.youtube.com/watch?v=rhcJNJbRJ6U&sns=em http://youtu.be/-DExbitdDfA k
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Hip Pain Continues
I'm going in to an Orthopetic (now Sport's Medicine) doctor on Tuesday to find out about my hip/leg pain that has been bothering me since beginning of the year. It has been on and off for the last year but worse the last two months. Don't like taking pain pills every day but seem to be taking Neproxin almost every day just…
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FOLFOXIRI/bev Treatment 1
I'm on the tail end of treatment 1 of FOLFOXIRI/bev. I have to say this was the hardest on me compared to FOFOX and FOLFIRI/Erbitux treatments in the past. I had a lot of nausea/vomiting over Friday and Saturday. It was very hard to eat anything. Managed to eat some saltines and mashed potatoes. I feel a ton better this…
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Chemo Holiday
Doctor put me on a Chemo Holiday for about thirty days. Apparently the blood work is slipping but the CEA is holding at between 2.5 and 3 for the last couple of months. We discussed it and it seems that there is minimal danger of backsliding, in his eyes. Regardless, this has me spooked. The last short holiday CEA spiked…
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Considering stopping chemo while things look good
I was diagnosed with stage iv rectal cancer (spread to lymph nodes and liver) in February of this year and have about run my course for the initial heavy chemo regimen. My last PET scan showed that my tumors are no longer visible, so they say I'm in remission. I'm not sure if that's out of the norm, but happy that my 9cm…
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What to do...
We went to the onc and the liver surgeon to see if there is anything other than chemo that we can do for my brother. Both doctors said that it is ultimately up to my brother, but it looks like in order to do the surgery, ablation or embolization, my brother would have to come off blood thinners and chemo. For surgery, it…
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Cancer Summit Replay podcast - Worth listening to
Here is the repley link if you missed my last post. If you can listen to the cancer ones at least, they contain a lot of good information. Somethings discussed on the podcast I istened to Many bllood tests to determine if cancer cells are in your body, as early as 10 years prior to a tumour. Nagalase Blood Test: Herpes,…
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Its been 22 days
Hi everyone, it has been 22 days since my husband passed. So far this has been the hardest 22 days of my life; i am really grieving the loss of my husband. i know he is in a better place and not in pain or suffering anymore, but i just want him back. I would gladly take on all the caregiving all over again, to just have…
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My Sweet Husband is Gone
My beloved husband and best friend left this world last night. I got to spend the whole day by his side talking to him, loving him, and telling him it was ok to go. He went peacefully and quickly. I was so lucky to have him for 27 years and my heart will forever be filled with his love and precious memories. He fought so…
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Beautiful memorial to our Lisa
I have permission to share this Youtube video memorial to our dear Lisa. https://www.youtube.com/watch?v=66ys2DFzEqQ&feature=youtu.be
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Pet Scan Results
Hi all - we've had lots of sad news here lately and I wanted to share my husband's good scan results. He had a pet/ct last Friday and we met with the onc yesterday and she said it was a perfect scan - nothing of concern. First scan since he was diagnosed 2 years ago that had nothing of concern. I know I have to update my…
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Good Thoughts Please!
Going in tomorrow for a colonscopy/anoscopy a year after my surgey. I swear, the prep is different every time I go. This time the goodie bag is full of dulcolax and zofram and magnesium citrate. I'm pretty sure this is the worst yet. The dulcolax has me in an incredible amount of stomach pain, and the magnesium citrate is…
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Going in for 8th round of folfox
I'm heading to the hospital with my friend for the 8th round of Folfox. This last one was mighty tough. I know with all the love and support, I'll be fine. I am talking to the onc this morning about the black toes and hands. The neuropathy has definately raised it's ugly head. Yolanda update at bottom