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Colorectal Cancer

Archives for October 2013

Anyone hear from Ren?
His news about the ALPPS surgery not going forward was distressing to say the least. I've been checking his blog and nothing new. Has anyone heard from him? I do hope he's doing okay. Traci
Resection surgery opting out
Has anyone opted out of a resection surgery who initially have total removal of cancerous polyp with clean margin underneath? I was told that some consider it curative (mine was 2cm) in signmond colon, but they also recommend talking to a surgeon for resection of 12-18 inches to check lymph nodes. I was told CT scan lymph…
Certuximab and rash...
Greeting all, I've been on/off on Folfox and Certuximab for the last 3/4 months. All things considered, treatment has been going well. Up to this point I'v had 7 doses and up till a week ago all the side effects have been very manageable. This laste week I've got some major skin rash/acne on face, neck, scalp and upper…
I need some info from you beautiful heroes!
My dad was dx stage 4 in January of this year. Started chemo had complications with clots on in April on avastin. Now on oxiliplatin and 5fu pump every 2 weeks. In August back to hospital after fever after testing and some meds sent home cell count was 4.1 then Here we are again today at the hospital after dad was shaking…
Big Billy
I can not begin to describe how excited I was today to receive a copy of "Coping"! I practically skipped back in to the house. Thanks to Craig for bringing brave Billy to us and to inspire us to keep on keeping on. Hope you are feeling well! Hugs, Mary Carol
Soreness
These are the chemo drugs my brother takes: 5 -FU every 14 days, irinotecan every 14 days, leucovorin every 14 days, 5-FU over 2 days (infusion pump) and erbitux once a week. He is also on diphenhydramine and famotidine, zofran, and dexamethasone. Also atropine for the irinotecan. He is going to the bathroom a lot. He is…
How long to take Cimetidine, L-Arginine
How long after surgery are we supposed to take Cimetidine and L-Arginine to prevent metastases? Thanks, Laz
Bone Biopsy
So, my husband is still in the hospital, but at least they are controlling the pain pretty well now. They did cultures on Tuesday through the port and after 2 days they started growing something. Yesterday they wanted to take more cultures - some from the port and some through a vein. None of those have grown anything yet.…
Checking in
Hi everyone! I had my second CT scan last week and everything was good. Cancer still gone and my blood clot is gone. The doctor still wants me on the blood thinners for another 3 months. He also said I could get my port removed which is scheduled for Nov. 8th. Yah!! I want that reminder gone. It breaks my heart to see the…
Winter Marie and Sundanceh-how are you guys doing?
Haven't seen too much from either of you lately. Would love an update if you are feeling up to it. If not, just remember we're thinking of you and hoping things are going ok! Lots o' love~AA
Laz's Pathology Report.
Great news! Everything they removed was Dead cancer. There was so much crap in there, it's scary. The fibrous tissue that used to be the cancer was the size of a walnut. Plus a big abscess and 17 lymph nodes. All negative. I have to go through 5 rounds of chemo and should be done. Let's pray that's all that is. All of you…
I'm new and have a colonoscopy question
Have any of you had cancer show up in a colonoscopy after clean scans and a good cea level?
Zaltrap queston.
I did a search on zatrap side effects but did not get the answer I was looking for. Anybody ever been on zaltrap? How rough was it? Were you still able to work while on it? Another question, My wife will be on the zaltrap and xeloda for her treatment, since folfox and folfiri with avastin didn't work for her. Has anyone…
Why cetuximab may not work while vectibix will:biomarker S492R mutation in EGFR
www.digitaljournal.com/pr/1530586 and an item on another nano approach to CRC http://phys.org/print301131024.html while a US-Russian collaboration is developing something called entolimod,CBLB502(some might also want to delve into OncoVax or TAS-102 or U3-1565 or labetuzumab)
petscan result and bloods from yesterday
clear peritoneum, liver and pelvis, only active disease lungs two small stable spots, see blog. one year since removab worked so well for me. still ketogenic and qigong and supplements. I am overjoyed and grateful, back to Germany for more treatments focusing lung spots, feeling very well.…
Mom's Petscan is today
Hi Everyone, I'm just trying to get mom some good vibes today. She's having her Petscan as we speak while I am home with Vertigo. I'm as nervous as a cat so I can't imagine how she is feeling. Just needed to verbalize this. I hope everyone is hanging on there. Just wanted to say that it's mom's 72nd Birthday today and I am…
proud mother
hi everyone just wanted to share my daughters new blog , family and friends encouraged her to write her story and share her recipes ,so that is what she did her blog is BETHANYWITHACHERRYONTOP.BLOGSPOT.CA
Varmint5
Wondering how your daughter is? And that cute grandson?
CT Scan - update
Just back from the hospital. We met with the oncologist yesterday because my husband's pain has gotten worse and he can barely walk at this point. Mostly hip pain that he has thought was a disc issue, as he's had them in the past, but he's popping pills and in so much pain that we have to figure out what is going on. The…
Update on sister
Sister begins 10 raditation treatments today...one each week day. Doctor hopes to get enough early results to get her home early next week and then I will just take her back daily for the remainder of the treatments. The morphine is making her a bit loopy and she is really not eating much. I did speak with the doc and as I…
Stage 4 Signet Cell --Colon Cancer
Dad is 61 battling cancer for 3 years... Reaching out to see if anyone out there has experienced Stage 4 Signet Cell Colon Cancer??? We know its a rare agressive cancer and not much information specifics. Doctors say it is in-operable because it spread from the peritoneum and is infiltrating the outside colon walls in…
Genetic vs. genomic vs. chemo sensitivity test.
As I understand it there is three types of testing done on cancers. 1. Genetic test to determine whether you have certain genes that increase the possibility of cancer in you or your relatives. This can be done on a healthy person with family cancer history too. 2. Genomic testing is performed when you already have cancer…
WHAT IS A REAL SECOND OPINION!
When I was diagnosed I got plenty of "second" opinions, but I believe these were not incompletely independent second opinions. I had my oncologist and my radiation oncologist of the same institution, which is good as long as it is just routine chemo. As soon as you have options of different chemo drugs or type of…
I'm new here... stage 4 colon cancer Good News!
Hello everyone, I Have been reading this forum since I was diagnosed with stage 2 colon cancer after having my 1st colonoscopy at age 42, just over a year ago. I finally decided to join so I could give others hope. Soon after my stage 2 diagnosis I was called in for more tests... ultrasound, MRI, and a liver biopsy (ouch!)…
News on RENW's blog
While I may have missed recent post here by Renw, I went to his blog to see if it had been updated since his aborted surgery. He has posted there... http://www.mcrc4.com/ He is sounding pretty discouraged but still making plans for getting more treatment while he can. Please keep him in your thoughts and prayers as he…
Post-chemo, is this normal for my bowels?
Hey, guys. A tiny bit of background. I'm a 26 year old female who had stage 3 colon cancer found mid-January this year. I had a partial colectomy and have 40% of my colon left and hooked up normally (no ileostomy or bag). I was on FOLFOX and completed 10 of the 12 treatments, albeit not always on schedule. The last…
Tired of Pinktober
Having had enough of everything being breast cancer awareness (even my prescription refills come with pink breast cancer awareness caps), I posted the following as my FB status. I also made an additional significant donation to my surgeon's research project - if what he's working on comes to fruition, there will be a lot…
Xeloda- Dose- Mouth Sores
I recently finished my first round of Xeloda. Two weeks pills and I am in the 5th day of no drugs. My dose was 2800 mg twice a day. I am a big man, 250lbs, 6ft. I am wondering if this is a normal dose. and, what did your Onc give for minor mouth sores? Mine prescribed a Lidocaine "swish and swallow" and I do not like it.…
Leaving hospital today.
I have been here a week and as it has been planned they are letting me go home. My brother is coming to get our stuff since my wife has been here with me the whole time we have some laguagge. She will drive us home that will take about two hours. Have to make stops cuz I can't sit yet, so ill be laying down on the back…
some interesting articles of late
http://eon.businesswire.com/news/eon/20131014005426/en/oncology/biomarker/EGFR http://online.wsj.com/article/PR-CO-20131011-908185.html http://medicalxpress.com/print299932834.html http://ecancer.org/news/4575-licorice-compound-offers-new-cancer-prevention-strategy.php…

Colorectal Cancer

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