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molecular tumor profiling
found out that there is molecular tumor profiling avalible in india and at the hospital my dad is being treated at. however i am not sure how useful genomic testing is. Are there folks here who have been able to action on the findings of genomic testing? finding out abt the wrong genes are right chemo is one thing but…
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Please offer your strength
Dear Friends, I found this site when I was diagnosed with a rectal tumor and it has been a lifeline to many thru the years. As some of you may know, I have been trying to help my sister who was diagnosed with stage 4 endometrial cancer last October...mets to lungs. I have been going to doc appointments, chemo treatments,…
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Update on Zach/BigmanforChrist-UPDATED
I just wanted to let you know that Zach is in the hospital today. His wife came home yesterday afternoon to find him on the couch, unable to speak or move. He is doing a little better now, a little more responsive, and is having an MRI done to check for tumors pressing on the spine or brain. I'll let you all know how he's…
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Hi Everyone. Im New to this Site.
Hi Everyone. My husband was diagnosed in July 2010 with Stage 3 colon cancer (he was 49 at that time and our daughter was 1 1/2 years old). They removed 10 inches of his colon. He did 6 months of chemo and presto we thought we were in the clear..... Well then in 2012 one of his scans showed a spot on his liver. His doctors…
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Seeking opinions about my dad's oncologist, please help
Hello, New member to this forum, second post. I'm am seeking advice for my dad. Hope somebody can provide her/his insight. Quick background: In September'12, my dad went to ER for massive fluid build up in his stomach. After he was released from the hospital, he refused to go back for any followups. When December'12 came…
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Changing to FOLFIRI next week, can anyone compare to oxaliplatin xeloda avastin combo?
Hi Everyone, My onc is switching me over to FOLFIRI for my next treatment. It will be every two weeks, with a pump for 46 hours. I know that we are all different, but I am interested in how others tolerated this regime. I got into a rythym with the oxaliplatin/xeloda/avastin combo and liked being able to plan things around…
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We haven't had a picture thread for a while,
so here goes! Last time we did it, some posted personal pics, others got photos off the internet that they liked. It was fun, so let's do it again! And thanks to Ketz for mentioning the idea of pictures in another thread. I've been meaning to do this, but kept forgetting. Here's how you do it when it's a photo on your…
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Unstoppable constant hick-ups.
Ever since I woke up from surgery about 80% of the time I have hick-ups. It stops me from falling asleep And wakes me up at night. The doctors don't seem to be concerned and say that this is pretty common after abdominal surgery. I'm ok, but after 5 days now it's getting really annoying. I tryed all the conventional…
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Sharing a news article
I hope this is not against any forum rules, but I read this in the BBC online news this morinng. I was just thinking what a wondreful bunch of people we are and even though this family may never know it, our prayers and good wishes will still reach out and touch them. I think they need it.…
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new here
I am new here My husband has been given a report of stage 4 colon cancer, part colon removed, in 4 lymph nodes and spot on liver. Please give me hope and advice We are with the Veternans Hospital, please give me advice and experience of treatment from the Va We are being scheduled to see an onocolougist, Thank you, Karen
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My Five Year Doctor Visit
Went to the oncologist to get the results of my blood tests and CT scan. I'm pleased to report that my scan was clear and the blood tests were all good. The only problem with the blood results is that my white/red count are still below normal. She told me that they probably will never go back to the normal range and should…
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Needing Hope
Hi, I'm brand new to this as a discussion board member. For years I've been involved as a volunteer and I guess never thought I would be typing this. 10 days ago our lives were turned upside down. My Dad was having some stomach problems so decided to have a colonoscopy. They found a tumor and when they did the CT scan…
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results of genomic test
After a little over three weeks I finally got the results of the genomic test. There were only 2 genomes that appeared hopeful for more direct chemo. Unfortunately only one of those is currently in a stage one trial in Massachusets. I can't travel back & forth and can't afford to go for an extended stay. We have opted for…
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Happy Turkey to Us Canucks.....update
I know.....it's weird but yes!!! Canadian Thanksgiving is this weekend!!! roll out the pumpkin pies.....if we waited for the USA date we would be under 10 feet of snow.....just kidding..... I love this holiday...so much to be grateful for when you are a cancer warrior.....hold my hand my friends.....(still waiting for this…
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inoperable, really?
My wife was told at dx that her colon cancer was inoperable. I refuse to believe this and I know there must be someone who was told this and proved them wrong. The problem is, how do you go about finding the right surgeon who is willing to take a chance. My wife is running out of options when it comes to chemo. Folfox and…
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Still plodding along, fourth year in remission.
I haven't posted an update in ages, and I am sure most of you will have forgotten me To the newbies I was diagnosed with stage 3 colon cancer in February 2009, 10/11 lymph nodes infected. Had my final dose of chemo in December 2009. My marriage crumbled because of my ill health and depression in the same year, so I lost…
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Never Give Up...From Hospice to Cancer Free
I just wanted to offer some hope to others. I've been fightinig cancer for about two years now. Seven surgeries, months and months of hospitializations, at one point unable to walk, 5'11 and weighed 90 pounds, feeding tubes, iv nutrition,...the list goes on. In January I was put on hospice and told I had a couple of days…
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Awesome Update
I went to my Oncology appointment yesterday and received wonderful news. My CT Scan came back "great" It was NED!!! Also my CEA went from a 35 at the start of chemo in June to 3.8 as of yesterday!!!!! They said I am NOT cured, but I am in remission!!! I don't want to celebrate too much because it could come back, but I…
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Powerful experience today
I was getting chemo today and there was a former patient visiting and talking with the nurses. She was Jamaican or maybe African (not good with accents). Anyway, I'm not the most religious guy in the world but my wife is a devout catholic so I go to church with her and the kids. Back to the story. This lady was walking by…
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Anyone familiar with Dr Nancy Kemeny?
She invented the Hapatic Artery Infusion therepy. She is located at Sloan Kettering memorial hospital? I was wondering if anyone checked it out or had the procedure done?
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ONC visit - keep doing what your doing
Two years ago my husbands ONC mentioned that there was a good possibility that the cancer would come back on him. Since then we have made many changes to our lifestyle and diet. Not sure if all the changes made the difference but all his scans and blood work have been normal for the past two years. Our Onc told us to keep…
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Update update from Laz
Dear Friends, I'm back amongst the living again. Or shall we say amongst the awakened. Yesterday the sungery lasted between 11 am to 9pm. Everything went really well, I barelly had any nausea and the pain is minimal. I sleep a lot, but they always wake you for something. Everybody is so kind an professional. This afternoon…
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DPD Deficiency
Hi All, Does anyne have any info on finding an Oncologist that specializes in DPD deficient patients with colorectal cancer??? The test was never mentioned until after I had first treatment of 5-FU and didn't die from all the side effects. I tested positive. I live in Connecticut. Any help would be appreciated. Thanks, KD
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Floating stools, nausea, bloating and lower back pain
Hello, I was diagnosed with stage 2 colorectal cancer in Jan 2012 with no nodes and had LAR surgery in April 2012 and had reversal of ileostomy in September 2012. Tumor was removed with LAR with clear margins. Colonoscopy in January came all clear and PET Scan in October of this year showed an 8 cm mass in the presacral…
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- 1964 -
I've noticed several people with a 1964 in their screen-name here on CSN. How many of us colon cancer fighters were born in 1964? And, just how many times have YOU said your birthdate? (bahahaha!) 2-22-64
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It's just too much.
Hi everyone, I keep up most of the time reading your posts and praying for everyone who is going through the roller coaster of cancer. it's been four years of my husbands stage iv fight. Today I just need to Vent! 2 months ago my hubby had his second liver resection. Since then he just feels like crap! The past few weeks…
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CEA/ PET
Hi all, Saw onc this morning. My CEA has been rising. Today, 5.6. Plus, abdominal pain has been increasing. Will have PET scan on Friday. Prayers and good thoughts welcome. I have not been through half as much as most of you have.... CM
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Stage IV - Oncologist Appointment Very Positive
Hello all, I posted a few weeks ago stating that my father was diagnosed with colorectal cancer and it was determined through a PET scan that there is a .7cm nodule on his liver and two .7cm nodules on his lungs. Therefore, Stage IV. However, the appointment with the oncologist was interesting and in my opinion very…
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Medicare Options
My brother will be eligible for medicare on December 1st. I was told he should add part D and get a supplemental plan to help with the cost of chemo and all the other issues with cancer. He lives in Dutchess Count NY. Do any of you have any suggestions on good plans for part D and good supplemental plans? He is only 49, so…
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helping
I have just been reading articles in FORBES about Giving. To give to the american cancer society is good. But where do the funds go? I hope not a raise for the executive director!! It has been my experience that the real help is one on one. To give some financial help to the cancer patient who cannot afford the test their…