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Colorectal Cancer

Archives for September 2012

Immunotherapy - NK Cell Therapy
I am thinking of undergoing Autologous Immune Enhancement therapy. Has anyone got treated this way? Kindly share your experiences.
Does anyone have flank pain?
Hi everyone, I was wondering if anyone on Foliri and avastin ever had or have flank pain? Over the past three days I have had intermittant pain in my right low back and low right abdomin. The pain comes and goes and often is worsened when I change positions. I still feel very good. I am functioning at 100%. I find it hard…
PET and Labs Results!
After 4 rounds of Xeloda /Avastin this are Cea Results. Started on 67, after 4 rounds Cea 11. PET some lymph nodes completely disappeared ,all the others shrunk in a 70% also SUV intake maximum 1.7 coming from 8 in some of them. Doctors expect everything will be off in 2 or 3 more Rounds!
Things are good but for how long!
2 yrs since dx stage 3c, then secondries 10 mths later, 12 cycles of oxliplatin has had to stop NHS guidlines, on avastin and capcitabine. Things are going so well for us, my husband works part time, swimms nearly every day, and we are even going to ibiza 1st oct. I want our happiness to last, so scared when cancer takes…
Operatic Irony for Pepe - not cancer related
On the weekend plans post, Pepe and I got to discussing Wagner's Ring Cycle. I was even thinking about for this weekends fantasy, including going to Sydney to catch the Ring Cycle there. Now, this week PBS is airing the Cycle, one performance each evening! I'm about to spend the next four nights in melodramatic heaven!
PET Scan results etc
The PET Scan which I had on 17 Aug and which also showed the pneumonia had some otherwise good results. There is a non-reactive node in my left lung. We'll be following it to err on the side of caution, but otherwise not much concern. The tumor in my right lung is very small and shows minor activity. The best part is in…
Treatment plan and surgery in place
Sooo, I will be back on Xeloda (he prefers that to 5FU with the pump for me, thinks it works better, since it's taken over 2 weeks verses a couple of days of chemo fluids)and Avastin again, (I had asked my heart doctor to be taken off of the blood thinners for the heart due to my upcoming colonoscopy last month so can go…
Just a quick hello
... from Avignon, France. We are passing a great time and so far, everything is going fine. Although this is about our 6th oder 7th stay in this region we discovered soooo many nice new things (thanks to geocaching (->ask wiki) - e.g. caves, old mines, waterfalls to bath in, cute old villages and so much more). Hope this…
Free scarf for those with hair loss
I just wanted to let you guys know about a great organization that provides free scarves if you or a loved one is experiencing loss or thinning of hair as a result of illness or treatment. The scarves are made from soft, silky, breathable fabrics and they have various designs to choose from. Just a heads up, it took a few…
Steved - can you post your picture before surgery?
We all need a image of you before your surgery. Just been thinking about you and would love to see a picture of you and family. Sandy :)
FOLFOX- how many treatments did you make it through? Lasting symptoms?
I just had Folfox #5 today and vomited while there. That was the first time this happened. I usually get sick on disconnect day. So I wanted to know how many people make it through all 12 treatments? What symptoms did you have and are still lasting? Did you stop treatments and did your onc agree with it? What stage were…
at least 20 lung mets in both lungs
So scared. I just read my CT/PET scan and am terrified. i have had three lung wedge resections with only one or two removed by vats surgery. My last episode has been going on since last year when I had 3 1/2 ribs removed on my right side due to tumor seeding from prior surgery. With this last surgery (4/24/12), the surgeon…
To steved
Wondered if you checked out the clinical trial that is suppose to begin this year at either Leeds (or Bradford) university. It was news for a while when they announced it. Has to do with the Autumn crocus plant and a molecule that they already discovered to use with it........etc. Is that just a hoax?
MOM. stage 4 recurring mets to liver/lungs
First off, we reside in Ottawa Ontario Canada..so any advice would be appreciated. My mother is 54. She was diagnosed with stage 4 colon cancer in September 2010 with mets to the liver. She had undergone a right hemicolectomy on her colon that fall as she had to go into emergency due to the risk of blockage/busting her…
Cancer Cure video
Cancer Cure? A stranger walked up to me yesterday and told me about this Youtube video on this cancer cure. I've never heard of this. There are dozens of videos but this is the movie Dr. Oz linked to.
Back to reality this week.
Traveling back to MD Anderson today. Tests Tues & rest of lung mets surgery wed. To prep for this have not had any Chemo since Jul 2nd. Hope no further spots have showed up somewhere else. (next body scan will tell) Like before once I stop chemo they pop up. Then surgery to remove ect. Praying this time is it as will be my…
anyone go to a Don Porter event?
Is this worth attending or is it just more of the stuff we read in all of the curing cancer books and websites?
high b12 and folate reading
Should I be concerned about a reading of 2000 pg/ml b12 and 24 ng/ml folate serum on last blood test? Read somewhere elevated b12 could be indication of not such good news to come? 4th infusion today of 5fu/oxy
I'm law abiding...really,
but, I was tailgating at a football game yesterday and got into a conversation with a guy who's had brain cancer for 12 years. They gave him 3 months, so he's very happy to have proved them wrong, of course. But he told me if I have any problem with nausea that pot has been his saviour. He said that just a few puffs and…
Special Thanks
Basically, not everyone that reads your comments on the discussion board responds, each one of you are so often a tremendous gift to others!!
Feedback on Hyperthermia in Germany
Hi All After 2 cycles of extreme whole body hyperthermia and FOLFIRI in Germany, it appears my tumour markers are heading south. Here's hoping that they keep going DOWN! Some info http://www.coloncancerandyouth.com.au/easyblog/feedback-and-thankyou cheers MSM
Buckeye2
Hi! I saw you posted on another post. Been wondering about you and your husband. What's been going on? I miss you here. Tommycat
Homeward Bound
Well, the insurance company, secure in it's knowledge that it knows my medical condition better than my doctor or myself, decided it was time to go home yesterday. So I was discharged with a fever of 100.7, oxygen level of 85 on room air, a persistent case of diarrhea, and with metabolic readings still out of whack. I'm…
Doing better...WBC comming up...Cea good number
I had my appointment yesterday ...we had to postpone chemo this week because of a low WBC. WBC is comming back up but I have a terrible cough and cold. The dr prescribed a z pack...antibiotics. I am just resting this weekend. They did run my CEA level...it was .9 ... That's really good...right? It was at .9 at the…
Need to boost immune system
New Chemo treatment crashed platelets, but they came back a week later on their own. Now his immune system crashed and they can't treat this weekend. What can be done to boost his immune system - they say it is nearly non-exsistant AND he is battling an infection - had a low grade fever for days. They are checking blood…
KathiM
Where are you? Miss you here!
Anxiety - what do you do to stop it?
Hi All, just curious how many of you have gone with medication to help with anxiety? If not, how do you deal with it? I was always somewhat anxious but since the cancer dx last year and menopause, it is so much worse now. Just comes up suddenly, many times I don't even know why I'm anxious, and it can stay for several…
Unplanned Scan + Set My New 'Clear' Record
There has been quite a lot of sad news recently. Tragedy seems to come in waves in this part of the world – during my time here, I’ve seen over 250+ fellow fighters fall by the wayside as the war on cancer continues to mount. Many of these folks were dear friends of mine… The impact of losing the friends I’ve shared with…
found 3 spots in this mornings pet scan
its been 6 months since the last pet. 3 very small spots one liver, one lung and one spleen. no feedback from onc's yet, i had the results faxed to my alt gp. feeling great, i am alive and have a few challenges. possibly more than i bargained for, but it could have been worse. for the record i have no regrets about my…
Goodbye & Thank You
My wife Patricia died this week after a very rough year, having been diagnosed with Stage IV last November. Sad to say, but the best part of this journey, from a humane medical perspective, was the round-the-clock care & pain managment provided by Hospice those last 5 days. Before signing off from this forum I want to…

Colorectal Cancer

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