Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for June 2012

anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9
started on gcmaf yesterday, got a runny nose. just google it, its all about stimulating your immune system nothing on pubmed for colorectal but the method of action should be the same. here is the pubmed link for breast cancer test, yes i know not in vivo. http://www.ncbi.nlm.nih.gov/pubmed/22213287 it costs $170 dollars…
CEA -- when is it a "good" marker?
I read a lot about CEA either being a good marker, or not. Wondered what mine might be considered. Dx February 2nd, this year, and have had 7 full chemo treatments -- folfiri, vectibix, and my CEA has dropped every time. Started at 44, then 43, 12, 4.2, 1.8, 1.4, 1.1, 0.9, and Wednesday it was 0.7. My dx was chemo for…
Update
As promised, results: Yesterday, I met with oncologist. MRI of liver, clear. CT of abdomen and lung, clear. CT of pelvis shows area which appears to be a mass. Further evaluation required - ultrasound, the 15th. LFTs and CEA continue to rise....liver biopsy on the 18th. So...a little mixed. I am concerned but not…
re my pain...again
thank you all so much for the support and advice....i start cyberknife next week for the tumor in my ab. wall, thank goodness, after the ct and pet scans, i was a candidate for it!!! dr. says that when that is gone, so will the pain!! ohhhh i cant wait to start, then back on chemo to mop up the small spots that are still…
TMI.. Maybe.. but I am curious....
My cancer was very low in my rectum on the fringe of my anus.. so I wound up with a colostomy... permanent.. Am I alone in this here... I never hear anyone talk about this... to me the cancer stuff and meds seem easy to deal with though side effects are hard... it is the physical changes that interupted my life.. and was…
Is there any body already using REGORANFENIB?
Just want to know about side effects and if any body already has their first blood tests or Scans!. Thank you all!
Hi mates ! This is FRIDAY, any interesting plan for the weekend?
Just family and may be some sun on the beach! What about you?
Had a cancellation, I'm going to sloan tomorrow.
Good thing because the bleeding is so heavy at this point that I was going to go back to my original surgeon anyway. Slept a lot the last three days, BM every two hours, abdominal cramping and can't sit at all. In this case, timing is everything. So. Dr. Guilleme at MSK it is! I think I'll start a cheer leading squad and…
Mom and colonoscopy
Hi everyone. Just wanted to let you know Mom had her first colonoscopy since the original "cancer" diagnosed one. And she did great. The doctor found only one small polyp and removed it. He said it appears to be nothing and he would see her again in a few years. She had been so scared and nervous and now she is on top of…
Reel Recovery
I got back last night from a two day fishing retreat sponsored by reelrecovery.org and just wanted to share what a great experience it was. This is a retreat for only men with cancer (or recovering) and it gives you a chance to talk with people who are going through the same things that you are. Sure, you can talk to your…
Do I buy a car?
So, I'm relatively new here - have posted a few times. I'm recently diagnosed - stage 3, rectal, and tomorrow is my last day of radiation/chemo!!!! Yippee! Surgery will follow in August, and then Folfox for 6 months. The doctors say I am tolerating treatment exceptionally well and there's no reason not to expect a good…
Update on Dad/no real answers
For those who may not recall, I post about 2 weeks ago that my 50 year old father was diagnosed with stage IIIA colon cancer. It had spread to 3 out of 38 lymph nodes. Doctor ordered the PET scan which he had last Wednesday. Doctor said to call for the results. I've called since Monday and gotten different answers each day…
Going in for cea etc.
Ok going to get my cea checked, have been avoiding it but I think it's time. So any prayers, vibes sent my way would be appreciated. To those who have me on facebook, yep I'm off it again, will be back just getting stressed by things on it. Maybe be back later on today, tomorrow? but will be back lol. Having stomach ulcer…
Buzzard where are you???
Know you are probably taking a well deserved break, but we all miss you. Hope you can just say hello? Humm thinking may have to hunt you down ;-) Sending prayers, hugs and vibes your way.
Vectibix sideeffects after 1 and Folfiri sideeffects after 2 infussion
I cannot say I didn't know this would happen so quick 1 Vectibix infussion and the acne has already started..and it is itchy I thought I would at least have a couple of treatments before this would start up.. I asked earlier about the eyelashes that has started yet.. It is all on my face.. forehead, checks and around mouth…
Questions for Thoracic Surgeon
Hi there! I know a few of you, or more than a few, have had lung mets removed, and I'm meeting with a Thoracic Surgeon on Thursday to discuss removing my 2 small mets. Are there any questions you asked or feel you should have asked prior to the surgery? I'm not even sure I want to go through with it as it can be pretty…
Dreaded tests - Again
Hi Everyone, I haven't been on the boards for a long time so I doubt anyone will remember me. Short history. I was dx 2005 with stage 3 and on my birthday had it removed. I went through chemo and only was able to do 9 out of 12 because of my diabetis. Chemo plays havoc with that. I found out about a month ago that my CEA…
Xeloda* and bleeding
My Husband started Xeloda a week ago today... last night he gave me my birthday card and went down the hallway and asked me to come here. He said "soemone is bleeding" and pointed to the floor. I looked around frantically until he said "oh, it's me". His finger was bleeding from a crack and the blood was very thin. Has…
Eye Lashes
Hi, I want to be prepared... Is this Eyelash thing really that crazy.. Who do you go to to have eyelashes trimmed? may seem like silly question. but I would never want to do that myself.
a down day
good morning guys, i was on vacation last week with my family and had a great time. came back to work yesterday and found out 2 of my fellow store managers were let go. one has 40 years with the company. the last 5 years has been stressful, alot of uncertainery with my job. corp is headhunting and letting people go. i am…
Starting Chemo, nervous
Hi All, I am new on here. I had a diagnosis on feb 14, then a resection on march 28, which i'm still not feeling great from. i was going to start radiation 5 weeks later but they found a tiny leak at my resection and cancelled that. had a port put in last wednesday and not sure what day im supposed to start chemo, but sure…
Complete Colon Removal?
I met with my surgeon today...lots of good information. We are considering a complete colon removal; attaching the small intestine to the rectum...I will go to the bathroom 3-4 times per day (he says) for the rest of my life if we do this.. Has anyone had this done? Would you mind terribly to share your story (what day to…
Complete Colon Removal?
I met with my surgeon today...lots of good information. We are considering a complete colon removal; attaching the small intestine to the rectum...I will go to the bathroom 3-4 times per day (he says) for the rest of my life if we do this.. Has anyone had this done? Would you mind terribly to share your story (what day to…
Where were you when you found out you had ColoRectal cancer?
I thought it might be fun (or maybe not) to hear some stories about how others found out that they had Colorectal Cancer. For me it was right after I had my colonoscopy. I woke up to find my wife talking to the doctor and my wife was crying. Right then I knew it had to be cancer and it was. The doctor told me that she took…
Gauging your cancer age
Hi everyone, I just responded to a post by Pete and it got me thinking about how you define a NED status. I was dx in June 2009, started chemo/radiation and then had the big surgeries in Oct. 2009. Currently I am NED, but would I say 3 years NED or 2 and a half years, since that's when the surgery was? Just curious. Much…
Drug kills cancer stem cells
McMaster University researchers discover drug destroys human cancer stem cells but not healthy onesPublished: May 24, 2012 Mick Bhatia, scientific director of McMaster's Stem Cell and Cancer Research Institute in the Michael G. DeGroote School of Medicine A team of scientists at McMaster University has discovered a drug,…
7 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST
7 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST *** GET MEDICAL OK AND ONGOING SUPPORT BEFORE STARTING ANY EXERCISE PROGRAM, I did *** *** DO YOUR STRETCHES BEFORE AND AFTER ALL WALKING, other exercises do relevant **** *** AT THE END OF THIS POST IS A SUMMARY OF OTHER POST…
a very happy birthday! I just turned 2 UPDATED got cea 45 ouch !
2 is my colorectal age. it also reflects my english and grammar skills. i was diagnosed on 3 june 2010, the day the old big peter died and the new healthy stronger pete was born. I am into my 3rd year in this game. I am enjoying the game, enjoying my days. I went out with friends on saturday and sunday lunch and dinner and…
what a surprise
Today was "national survival cancer day" and the Indiana/Illinois area had a picnic for survivors in this region. The ocologists and nurses from the hospitals nominate and select the 2012 survivor of the year. By some miricle I was chosen that person! I couldn't believe it. I should have known something was up when…
“What’s Happened to the Man Called Sundance?” – In the Eye of the Hurricane
After six-months of sailing on the toughest seas of my entire life, I find myself suddenly in the eye of the hurricane…the winds have momentarily stilled and I have a silent moment to contemplate a few thoughts and talk with you today. My dad has passed away. There has been much ongoing drama along with the other hardships…

Colorectal Cancer

Discussion List