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Just diagnosed with Stage IV colon cancer
Diagnosed and had transverse colostomy to bypass the tumor which was blocking my lower colon. Apparently have metastisis to my liver, LN, and omentum (fatty layer over the organs). That's about all I know right now, other than it is an adenocarcinoma. I have to recover a couple more weeks before I can start chemo. My plan…
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“Eight is Great” – A Reflective Commentary + Scan Results Are In
As Month Python used to tell us…”And now for something completely different…” Well, I’ve made the “Eight Mile Marker Club” now…I’m now one of a handful of folks here who can claim to have done so. As always, the road was fraught with many a steep hill to climb and far too many nights walking in the shadows of the dark…
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Rash News in the Cure
http://www.curetoday.com/index.cfm/fuseaction/article.showArticleByTumorType/id/809/tumorCategory/Colorectal/article_id/180#top
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" the Regoranfenib Post & other new drugs"
Just started a clinical trial for regorafenib, the first dose , of the first day. Hope this drug is effective for everyone who will take it. It is nice not to have to go to the infussion center for the day and come home with that pump. This drug is taken for 3 weeks on 1 week off. Weekly blood tests and monthly dr appt.
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Normalcy
I see so many people posting that normalcy is what they seek.. that I thought I would share with you all the speech I gave back in January at the Relay Kick-Off dinner.. it is being published for a local med school to share with their students.. It is soley my feeling and thought and was aimed to make those not going thru…
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enunciation and clumsy
DD says I am slurring words as if medicated, especially upon waking . Sometimes my mouth just doesn't work right!!! Last chemo of folfox6 was Feb. 15. Chemo, op, chemo. It's hard to explain the latent effects with motor skills. Probably the Oxaliplatin. I still wake up in a panic, but down to three a week since I'm in…
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Sleep
Does anyone actually always consistently sleep for 6-8 hours? I wasn't sleeping before cancer and now every time something new pops up, I go through a few days where I don't sleep. Thankfully eventually I get so tired, I make it through the night. Do you get to a point where you just say it's going to be what it's going to…
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straight two+ years of (immuno)chemo
My wife has taken daily, oral UFT chemo with multiple modulators for two+ years now. The longest "break" between two treatments was 36 hrs, for her second surgery, to remove the cluster of multiple para aortic lymph nodes, higher up at the renal arteries. That totals about 175,000 mg of 5FU content. She is never "chemo…
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Catheter Flipped Up
Has anybody had trouble with the catheter flipping up on their port? Was having an ache in the Jugular and the Oncologist referred back to interventional radiology for a check. They found that the catheter had somehow flipped up and kinked. They were able to pull it back into position using a wire up the groin (femoral…
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just finished colonoscopy with results
this is my second colonoscopy. i am 63. the doctor found 4 polyps and all are benign. he said two of the polyps were of the pre cancerous type but he removed all 4 of them. the doctor said because of my polyp history i should have this procedure done every 5 years.
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Anyone heard of this: Suture granuloma with foreign body giant cell reaction
Hi, had sugery last June to take out my appendix and most of my cecum. Dx was appendix cancer. Fast forward to April 2012, had laprascopic surgery for a look around and to remove right ovary but the surgeon's report had "posterior cul-de-sac was noted to be studded with multiple small excrescences, all less than 0.5cm, did…
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Can you help me understand CEA numbers?
On 5/11 I had a colon resection. On 5/18 my CEA tested as 8.12. On 6/1 I had a lung resection that removed a single tumor (metastisis of the colon cancer). On 6/8 my CEA tested as 6.32 I beleive the normal CEA range is 0 to 3, so it appears my CEA is moving in the right direction; however, it seems like it is still far…
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Lauragb---How are you?
I've been thinking so much about you and saw you posted on another post. How is everything going? TC
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Starting chemo - advice on my decision - NO oxilaplatin
Hello all, I just joined and this is my first post. I am looking for some advice. I am stage 3a colon cancer. Cancer was found in 2 lymph nodes but nowhere else. I had a resection completed in April and have recovered well. Tuesday I start chemo. The recommended plan is 12 rounds of Folfox 6. The only problem is that oxi…
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My dad had colorectal cancer...
About 2 years ago my dad was diagnosed with stage 3 colon cancer. He had a resection and changed his diet & lifestyle. He ate herbs and did everything that he's supposed to do, but this April he had found out the cancer metastasized to his liver. Starting from January he was complaining that he was unable to digest food,…
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my surgery update
Well I made it throught the liver surgery . They did not do the hipic. They took 5% of my liver and have to start chemo in a few weeks.Not looking forward. To this.I have to just try to find my positive side but I am right now just looking at all the bad and feeling depressed.
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one year ago
A year ago today was a Friday, 2 hours ago, I was told I had cancer and it was serious, real serious quoting my doctor. I was told Monday which will be Wednesday this year, I would be having surgery. What a year it has been, not that I have to tell any of you guys that but I need to tell myself. I had so many days I did…
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come out on the limb with me, latest life extension news antioxidants and cancer, amazing probiotics
now if we all go out on the anti oxidant limb, well i suspect the limb will break. have a read of the lef article below, remember these guys sell antioxidants. i would be interested in comments for and against, i want really get into serious discussion got yoga and meditation and juices to make. i do feel reassured that my…
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This is the day!
This is the day the LORD has made; let us rejoice and be glad in it! Psalm 118:24 What a glorious morning! The sunrise is beautiful in Michigan! The crisp cool air is wonderful! The warm day ahead promises to be full of Love and warmth! Sending everyone here my Love and Best Wishes for a wonderful Sunday! God Bless, Phil
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Ketz, winter Marie , Jennie ! are you fine?
just say hallo please I miss you here!
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Nightmare?
About a month ago, right before treatment on my birthday, I had a nightmare that I at first dismissed and then later started to think about. In the nightmare, it was late at night and I suddenly heard loud footsteps and shouting upstairs. Rather than rush upstairs to find out what was going on, I grabbed my K-Bar survival…
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Liver Surgery Update
Hi everyone! Thank you for the encouragings words before the surgery. My apologies for any typos. Well the had to cut me open. They tool entire left lobe and a small portion of the right to get clear margins. They also out my gall bladder. My billirubin went bight and they thought they may go back but thank God it was just…
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How common are micro spots on liver?
I am having surgery on June 19th and my surgeon said when he does liver resection (I have 1 liver mets about 1") he will do an ultrasound during surgery and if there are any micro spots he will not do anything and close me up and I will start chemo. Is it common to have micro spots? I know CT and pet doesn't pick up spots…
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A funny exchange
Just a quick story about an exchange I had with a buddy at work. It has to do with the common greeting... "how ya doin'?" I don't "edit" myself with this friend, so I told him "if I say 'great' I'm doing great, and if I say 'fine,' I'm lying." So he said "how are ya doin,"? And I said "good!" It cracked him up.
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Hey Sundanceh
I was just reading about the side effects you have from avastin....skipped heart beat, etc. I wonder if you would have it checked out thoroughly ( i know you've been busy ), that there would be a cardiac med that could keep you "beating regularly". Lots of people have heart irregularities and have it managed. As the…
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anniversary
Since so few make it this far,I had to tell you that today I have been married to the love of my life for 55 years!!!
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Sloan diagnosis
Two surgical specialists, two residents looking in my butt. lol Oh joy. I got a birds eye view since the screen was right in front of me. I'll just keep my day job. Well I was hoping they'd both say the same thing but Sloan says chemo and radiation necessary in very low doses to avoid permanent damage to the muscle. Too…
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Reversal Postponed
Just got the word that my ileostomy reversal scheduled for this coming Wednesday (6/13) is postponed due to my lab work showing a low white cell count. It is 3.74 and the normal range is 4 to 10. It is seven weeks since I completed my adjunctive 12 chemotherapy treatments and I never dreamed my counts would be an issue.…
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Question about CT / PET
I just had a CT Scan Chest, Abdomen, and Pelvis on May 21. And I just had two surgeries; Colon Resection on 5/11 and Lung Resection on 6/1. So they removed the two tumors which pathology showed as adenocarcinoma and metastisized adenocarcinoma (e.g. colorectal cancer). I had a PET scan done in February when they were…
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Xeloda side effects! Those who have been or are on it please give me a hand!
Starting xeloda instead of 5fu on Monday !would like how you deal with it! what about side effects, what about affectivity ? Thanks in advance. ( will be on xeloda/ avastin combo).