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Colorectal Cancer

Archives for March 2012

So thankful and happy
I worried for days before my husband's Cat Scan. My husband is the exact opposite...does not worry unless a problem comes up....glad he is that way. Said I worry enough for the whole family. Clean Cat Scan The blood clot in his liver is no longer a problem. No more Coumadin. I do think about and pray for so many of you…
Happy Sunday....!
So here I am starting my third week of a walk/run plan that my friend scouty motivated me to do. It's not as easy as I thought but I make the time to do it 3 times a week. In the last 3 weeks I have found the toll that treatment took on my body, although I'm not saying I regret doing it, just the changes it left. You all…
husband in pain - wife needs advice
My husband had colon cancer-operated on 3 1/2 years ago. 14 inches of colon removed-lower section very near rectum. In the past thirty days he has had severe burning and pain just inside the rectum. I can not get him to the doctor or hospital. Any advice on what it can be.
Hand Cramps
Hi all, I've just completed my 2nd round of Folfox and in addition to the neuropathies have also been experiencing hand/finger cramps. Is this normal? Any ideas of how to treat/prevent? Thank you!
Self-Educated Patients
As an advocate for my wife (stage IV crc) i encourage all to view this Self-Educated Patients and The Future of Cancer Care Dr West of GRACE
Hubby Update
We got home on Thursday after 10 days in the hospital following hernia surgery. Husband again is carrying wound vac and it looks like it is going to be around for another couple months. Recovery has been slow but yesterday he ate three meals and watched some TV. I am questioning whether or not we should've had the first…
colostomy reversal
Hi everyone, need some help. My sister had a liver resection, it went well, no bag. then the sutures burst, peritonitis, and now a bag. (this was last july) Healing well, the dr. told her she would reverse it when she was stronger. THEN, she has seizures, diagnosed with brain cancer, cyber knife, and 10 rounds of full…
NYU Cancer Institute Presentation
For those with Advanced Colorectal Cancer here is a very good presentation which gives an overview of the available drug therapies and the rationale for their use NYU Presentation
Anyone experiencing random head sweating? ( Back of head)
My dad is stage 4. He was on chemo for about a year. Every 2 weeks. He has decided to stop chemo for alittle while. For several months, he has been spuratically getting sweating in the back of his head. Usually just one side. Sometimes, he doesnt even know it is happening, he just goes to scratch his head and finds that…
Your Starting CEA?
What was your starting CEA, and stage, prior to treatment? My wife was diagnosed as Stage IV (50% liver and some lymph nodes involved) with a CEA of 1800 ng/ml. CEA dropped to 1200 after 1st chemo. these are very high values from what I gather. So would like to know what others have seen, especially those of you who are…
Liver Resection criteria for Stage IV patients
My wife is in the middle of her chemo regime. No surgery yet and do not know if she will be a candidate. In my search for criteria to understdand how she will be assessed for surgery I came across the following which might be useful to some... 2009 presentation by Dr Paty of MSKCC discussing why most mCRC patients should…
Tommycat
(I see you are online). Have a wonderful birthday!!!
"Therapeutic Advances in Metastatic Colorectal Cancer:" with info on current trials(UPDATE 10/20/14
Unfortunately, i missed this when it first came out and to access it now you have to join site (i used one of my email addresses, my initials and simple ID to join for free just to get this-it IS worth reading) clinicaloncology.com/CancerArticles.aspx?c_id=47&c=Colorectal Only 4 pages including footnotes, brief discussion…
Maybe TMI, But I've become a tight ..........
Okay, I'll just say it. I presently have a temporary ileostomy. I am almost four months past my surgery. I still often feel pressure against my anus and sometimes do squeeze out a little thin mucous. I decided to check back there just to see what the area feels like and found that my anus has shrunk and the skin around it…
Fell down for the first time... anyone got stuff to share on Falls?
I'm 9 weeks in on my treatments. (stage IV, dx'd 12-2011, colon + multiple mets to liver, temp colostomy). Am taking Erbitux, Lucivorian, Folfox 6 and 5FU (along with some other drugs to combat the rash from erbitux, emotions, low iron + gout) I've been getting dizzy now and again, but today i got up to head to the…
Phil.....thank you
Please don't be uspet with me but I just can't take it....and you soo deserve it!.....Congratulations on 8 years! It is such an accomplishment and we all are here to either look for or give hope and reassurance. That is what it is all about. So there it is my friend...I did it. I said it. And it is well deserved! love and…
Carl update nearly 3 weeks in
Here we are nearly 3 weeks out and still no closer than square one. They are currently testing him for Hep B, yesterday found no traces of internal bleeding, They did discover an ulcer caused by the stints they placed so may have to go back and do something about those. Bili continues to rise, Albumin has slowly started…
karguy - sorry your back in the fight.
Sorry to read on the colon club that your cancer has come back as well. Your in my thoughts and prayers
Anyway Diane can come back on here?
She has posted on facebook they have found a spot on her liver, and her cea is 6.4. She will have a biopsy. I can't take that she has cancer, I can't.
Thank you
Thank you for your positive replies, I will try to take a break. Wishing you all lots to look forward too.
New member from germany
Hi everybody, I've been reading on the board for a while now and finally decided to register and introduce myself. So, hello from Cologne, Germany :-) My name is Petra (43) and my husband, Thorsten, (44) was diagnosed in Nov 2011 only one week before our scheduled trip to India. So, instead of 4 weeks vacation, lots…
the bag
Hi, I havent been on here in awhile. But my situation is I was diagnosed with colonrectal cancer stage 3 in 09. Been thru so many surgeries on my colon, had an iliestompy bag (temp for a yr). went thru radiation and chemo. Had a feeding tube for a few months. Had a PICC twice and recieved TPN even when I was home. I wear a…
CEA results
My CEA went from 13.1 to 13.3. Didnt double like the last time. Changes? I went back on my supplements and drinking green tea. I also added all the berries back on my diet. We shall see. Talk to you all in a month. Next check m
Hi mates it is FRIDAY ,any interesting plan for the weekend?
Dinner on Friday with friends . Saturday ...we will see. Sunday lunch at mum,s House. what about you?.
Five Surgeries, Two Failed Chemos, Now Finally NED for the 1st Time
In the 2 1/2 years that I've been in this fight, I never had a clean scan. Until this morning, that is. Had the PET/CT at 9:00, and had the email from the radiologist by 1:00...and it was NED. From brain to knees, absolutely no sign of cancer. I have an extremely rare tumor type that had spread all over in the abdomen…
so sorry !!
Well I have had such a bad week so im going to write it all down please take time out for me. It started with mom in law being dx with vascula dementa so trying to sort out all sorts of things, then my mom went in hospital to have a plate in arm, ( she fell 8 mths ago and hasnt knited together so a pin and plate was…
What items make you feel better?
Hi, I'm a cancer survivor who is working to help other patients/survivors. Thinking about your treatments and side effects, physically, mentally, etc. What type of items could someone give you to help make you more comfortable. Example: I had dry mouth and nausea - fruit flavored hard candy helped. Reading helped me pass…
to know when to chemo
My husband had liver resection 8 days ago. His surgeon says she doesn't think there will be any chemo. I recall from past post that many do have chemo after this surgery (of course when recovered) and it is referred to as "mopping". Can you guys share your thoughts on whether chemo should be given in an attempt to make…
Home
One week after my husband had his liver resection (removing 65% of his liver) I got to bring him home yesterday. There were some ups and downs in the last week from uncontrolled pain to heart rhythm troubles. I am so thankful to be home and having him doing so well. I know that the going home doesn't always go as fast as…
Crazy, Sexy Cancer---really????
This post is written with the newbies in mind, but maybe others can relate: When I was dx in 2009, I read just about every inspirational cancer book I could find. There was something good (in some cases if I looked hard enough) from each of these books, but the rah-rah-rah really got to me, especially when the cold, hard,…

Colorectal Cancer

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