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New Colorectal Cancer Support Group on MN
Finally we have our location and details set! Since my dx I have tried to do what I can to add positives to an often negative situation. I spread the word about cancer screening, and participate in Get Your Rear in Gear and Relay for Life. I've been participating in a great support group, but the timing doesn't always work…
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Soaring CEA
Not sure whats going to happen next. Had CEA checked today and results were not what I'd hoped for. Once again it has shot up. Was 286.2 on 8/17, 431.4 on 9/28 and today 10/25 it's up to 712.3. Have talk with onc scheduled for tomorrow. Since this is the second time I've been on Folfox and Avastin not sure where we go from…
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UCLA
Does anyone know anthing about UCLA regarding oncology and liver surgeons/specialists? (Our insurance will work with ucla.) Being in Vegas, we want to get out and find a specialist.. if liver surgery is even a possiblilty for Tony. He is having a scan nov. 11 and his onc refered him to a general surgeon here. I'm not happy…
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di anyone ever need an unrelated surgery during chemotherapy???
my dad just found he had recurrent rectal cancer to liver and lung...night before his first chemo treatment he was very tired and didnt look to good....next day chemo..that night elvated sugar and went to hospital to be checked...found out he had a urinary tract infection...we knew he had a bladder stone (day of his…
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NOTE: Vitamin C may inadvertently protect cancer cells more than normal cells.
As excerpted from an article "Is this the end of popping Vitamins?" in yesterday's Wall St. Journal: http://online.wsj.com/article/SB10001424052970204644504576650980601014152.html "The first red flags started emerging nearly 20 years ago. Researchers thought from early work that extra beta-carotene could help prevent lung…
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Promising results for new drug
I just read an article about promising results from a phase three study for Bayer's drug Regorafenib. Trial has been stopped because positive results are showing. Complete clinical data should be released soon. Check out this link: http://www.medpagetoday.com/Gastroenterology/ColonCancer/29286 There is always hope... Hugs,…
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Guess who just called me..... BUZZARD!!!!!!!
Yep.... he FINALLY called me back! He said he has been and still is...sicker than a dog. He said that Folfiri is kicking his butt...BIG TIME! He said he is sick for 14 days..non stop....then has to go back and do it again. He is so sick to his stomach and tired that he just has to rest. He has had no strength to even get…
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Wondering
My 80 yr old dad has stage 4 colon cancer,with metasticies to liver and mesentary and lung; he has been on chemo pretty much nonstop for a year. PET scans show an increasing ineffectiveness of the treatment. Most recent PET scan now show cancer around heart and in bones in addition to all others increasing. Wondering if…
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Chemo before surgery
I mentioned that my surgeon said I am operable for the third time evan though the tumor ic 8.5cm. He said that he can operate with out any chemo ahead of time to reduce the tumor. Apparently it is all the way in the top corner of my right lobe with no magor vein or artery involvment. A person that is high up at the colon…
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Update Dr stoped treatment
I haven't kept up on here very well since my husbands diagnoisis on Mother's Day, here is a quick review, May 9 Diagnoised with Stage 4 Colon Cancer with Mets to the liver and 12 out of 12 lymph positive. May 18 CEA 87.7 May 21 Colon Resection May 24 Pulmonary Embolism moved to ICU June 10 Folfox #1 CEA 248.8 June 24…
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TO ALL.....
The thread : Alkaline water and its benefits is a thread that dates back to 2009. If you click on the names, you'll see that many have not posted since 2009-2010. The reason for that, is that they are no longer with us. "Donna" for instance, has departed long ago. I too, forget at times to look at the date of the original…
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having biopsy on liver and getting 2nd opinion
Fisrt I want to thank all of you who responded last week when I was down and feeling like I wanted to just give up...well I am up and fighting again. I do have a fighting spirit and have won the fight before and can do it again. Thanks again for the heartfelt advice and comments. I am getting a second opinion and having a…
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The word Cancer
I can't say the word cancer out loud without squirming. I know my husband has it but to say it makes it all too real. Did any of you have this problem or do have this problem? I still can't believe it (it's only been a week and a half since diagnosis though), it seems like a dream, someone else. I don't know the word just…
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Found mets in lungs
I've been on this board since Aug; not posting much but definitely been reading posts daily…. Dx’d Stage 4 back in February (post-surgery PET clear), just completed my 12 rounds of Folfox on Sept. 7th, and had my post-chemo PET last Thursday. Being diagnosed as Stage 4, I knew that there was the probability of it coming…
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I am going crazy
I posted before that a routine scan revealed a new spot on my liver after 4 years NED. My oncoclogist told me to have the receptionist make an appointment with my surgeon. Well she didn't even have the number so I called to make the appointment myself. The earliest he is available is 11/10. A 4 week wait so in the meatime…
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Vectibix only as 3rd line...
Hi everyone, I haven't posted on this board for a while but keep an eye on files, rejoicing at the good news when it comes! Unfortunately I am the bearer of sad news myself - Folfox (after Folfiri) has stopped working for my mum, the liver tumours are growing and the onc is now only giving her Vectibix (even though we…
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PET results today...
PET results today... I met with my Oncologist today. He said the PET scan showed 5 active spots - one on each lobe of the liver, one in the pancreas, one near the back.... He said that the next step is to have a Guided Needle Biopsy and get a CEA reading. He said it is probably either Pancreatic Cancer or Colon Cancer…
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Husband had 4th treatment today-stage 4
My husband had his fourth infusion today. He has to wear his pump home and get it taken off on Wednesday. His treatment is every other week. He seems to be doing well but I hear he may get leg pain in the later treatments. He has stated that the feeling comes and goes in his hands and feet. The taste of food is real…
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CHRISTMAS CARD LIST
Hello ALL, Just wanted to send a friendly reminder that the deadline for submitting your info if you want to be apart of the CHRISTMAS CARD EXCHANGE this year is rapidly coming up. For all the newbies, this is something we started a few years ago, you supply your name address and email address and when its all compiled I…
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Growing again
I've been on Vectibix for 15 months, along with Irinotecan on and off and have been doing well. The last scan shows more growth in my lungs. 1.4 cm new nodule plus many other new growth while on vectibix and irinotecan. This hit my husband and I pretty hard as we thought I would be stable again. The new drug protocol is…
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The Tale of the Octopus
Once upon a time…. Okay, let’s make that in September, 2007, the night before my first Intra Peritoneal chemo (IP) treatment*, I was staying at my brother’s apartment in NYC for ready access to Sloan Kettering the next morning. My brother’s very good friend and upstairs neighbor, Rita, is a psychotherapist who kindly…
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Radiation burns and BMs
It's been almost two years since I had radiation, but even now my bum will be in so much pain after going to the bthrm, esp. when I've had multiple bowel movements. Seriously, the pain can make me cry. Does anyone have any advice? I had 30 rounds of direct radiation to my bum.
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I'm doing the caregiving Happy Dance.....I got fired!
This is just a morsel of good news, but I feel like maybe we reached the top of the mountain today and are beginning to roll down. I know, you are all saying, what is she blabbering about? Surgeons visit today was great. He fired me from packing DH's rear end. I'v packed it twice a day for 119 days, for a total of 238…
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Please keep praying for Lisa42! Update 10/27
I received a text from Lisa this morning and she said that she still has the fevers and major coughing. They are bringing in an infectious disease doctor to see what he recommends since they don't know what else to do. Her lungs are clearer, thank goodness. Please keep praying for her. She really wants to go home as she…
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To Cancer,
Cancer, It's unfortunate for you that I have had enough of you. I allowed you ruin my weekend and make me feel hopeless and scared but I have too many better things to do. You see, I have three children that are a lot more fun to hang out with and they depend on me to be the strong one, the funny one and the one that knows…
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Friday Riddle Answer
RIDDLE: If you use a certain formula on 13, you end up with 7. Under the same formula, 2352 becomes 16, 246 becomes 14, 700 turns into 16, and 1030 becomes 14. What would 9304 become ANSWER: 19. Convert the number to binary, add one for every zero, and add two for every 1. 9304 becomes 10010001011000, which has 9 zeros and…
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Colonoscopy isn't perfect
[Dr. Herman Kattlove is a retired medical oncologist. For the last seven years, before he retired, he was a medical editor for the American Cancer Society where he helped develop much of the information about specific cancers that is posted on the website at [url]www.cancer.org[/url]. He trained in hematology and oncology…
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treatment 2 leads to very unusual side effects
Tony is on avastin, xeloda and oxipilatin and today is day 3 after the 2nd iv treatment. well starting yesterday he has very bad pain in both calves. one worse than the other. it can't be attributed to exercise. he is prone to blood clots but it would be weird that his both calves hurt. has anyone experienced this? thx.…
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my mom has stage 4
I'm new here. I really need some positive energy and hope. My mom is my everything my best friend. Were inseprable. My life has been a trainwreck since I was 5. My dad is a former heroin addict who used all my familys money and almost lost his life with a infection. My mom stood by him. He constanly demeans my mom and me.…
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colonoscopy gone wrong update
My sister had a colonoscopy on Friday the 14th. The general surgeon in Viroqua, WI, decided to remove a 5cm mass from her rectum. Because? He is stoopid. She nearly bled to death, transfered to ICU via ambulance in LaCrosse, WI, had a total of 4 surgeries, 6 bags of blood and a week in the hospital. Lesson learned: not…