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had a day in hospital
Is it just me or does everybody else get sick and tired of tests. I have just been laying flat on my back for seven hours after a kidney biopsy. I really hate kidney biopsies ,at least with the liver they have a reasonable target. He managed to hit it two out of three so there should be enough for pathology. They are just…
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hey guys
Hey guys just wanted to say hello hope everyone is doing well hugs to you all Tina
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Newbie - Colon Cancer Stage 2B - T4 - Folfox regime with port
Hi everyone! I first created a blog thinking that was what I should do ... then I realized I needed to just post to discussion board. I would love to hear from you. I already had my colon resection (4 weeks ago) and have my 2nd round of chemo coming on Monday. They put me on folfox regime. I felt great the first and second…
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Had new MRI July 6.
Found out on July 7th that there are 30 lesions in my liver as opposed to the 15 that I was told were there originally. My Onc and his assistant were on vacation July 4th week so I didn't get to speak to the assistant until the 11th. What I thought was bad news turned out to be very good news. She told me the first…
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"Metastatic Coloretal Cancer: Management Challenges and Opportunities" at cancernetwork.com
somewhat lengthy discussion which includes statistics (heavy on stats )as well as options...... cancernetwork.com/display-cme/article/1065/1902212?pageNumber=1
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3 months after AP resection
Hello all... I finally became a member of the site after reading stories and situations for a long time... I had an AP resection April 21 2011 at the age of 41 due to rectal cancer. before that they tried to shrink the tumor with radiation and chemotherapy. It shrunk but the surgeon thought the best thing to do was to take…
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3 months after AP resection
Hello all... I finally became a member of the site after reading stories and situations for a long time... I had an AP resection April 21 2011 at the age of 41 due to rectal cancer. before that they tried to shrink the tumor with radiation and chemotherapy. It shrunk but the surgeon thought the best thing to do was to take…
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Small lump by collar bone, can this be problem with port?
My dad (stage 4 colon with mets to liver) just noticed a lump by his collar bone, near the middle. Naturally he is worried. He does have a port and I was wondering if it could have anything to do with that? I cant think of anything (lymph nodes, ect) else it could be and I want to comfort him til he can see the doc on…
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Sundance Turns the Big 5-0 !!!
How do I feel today? I really don't know. Glad that I made it, but the bells and whistles aren't going off. I think there are days in your life when you expect or want something more than just the ordinary day. Turning 50 appears to be one of those markers in life that signals more things thing in your life besides the…
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BUZZ are you fine any news to share?
Hugs and praying for you!
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Mom has two more treatments with Erbitux
Mom has two more treatments with Erbitux then they will do a PET scan to see if it's working. If it is she will continue it every week for the rest of her life. Asking for prayers. Love all you guys....you have been so helpful. FM
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CT scans
I just came back from my CT scan. When got into the room I was curious because no one asked me to take off my bra as was done in the past. I asked the tech. how come. He said onc. didn't order CT of chest, abdomen only. He said chest has been clear so no reason to scan it and they want to minimize radiation exposure to the…
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OT: Thank goodness I called the train company!!!!
called to check on our trip from Zwolle to Hamburg, just to confirm seats, etc.... And found out that I had checked a box when reserving that was only for dutch people with year passes on the train. Bottom line, we did not have tickets for the train for the dutch part of the trip. Silly American! I should know better!!!!…
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Hepl me explain
I work at Mental health facility serving Deaf and Hard of hearing people. Had a consumer recently be diagnosed with colon cancer. Meeting with surgeon and parents on Friday. Person is hard of hearing and mentally ill. Where can I find some info that will help him understand. Thanks
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admittedly difficult to comprehend yet sounds promising:curcumin and Dasatinib.......
7thspace.com/headlines/389794/combination_of_dasatinib_and_curcumin_eliminates_chemo_resistant_colon_cancer_cells_.html 7thspace has interesting but difficult to understand articles on CRC at times......
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Those who had lung mets
Hi Everybody, As always I've been reading your post and been noticing that some with lungs mets have had procedures to remove them such was RFA or wedge resections. My oncologist stated that I cannot have my mets removed. So my questions to those who have had mets removed are were both lungs involved, who decided you could…
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decision has been made
Dear all, Thank you so much for all of your support in the past few days when I was extremely devastated, losing hope, losing focus and didn't know what to do. After several discussions with the oncologists, surgeon, my mum has made her decision yesterday. Even though she knows the success rate is less than 10 percent, she…
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Cancer, Dental Issues, Possible Solutions *updated*
So, I'm pretty sure from discussions I've read, I'm not the only one with dental issues, unaffordable dental issues. I won't be able to have dental work for about 3 months as I've just gotten off of Avastin. But.... apparently my poor husband will be my experiment. He went to the dentist and they informed him to put his…
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Results of PET/CT scan
I had my PET/CT scan yesterday (Monday, 7/18) & had my onc appt to go over results today (Tuesday). Yesterday after the scan, I came home and popped the CD into my computer and what I saw depressed me- so many red blobs in every spot of my lungs & some brighter on my liver than I remembered seeing last scan in March. When…
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Does your body start to reject chemo after awhile?
My dad has stage 4 colon cancer with mets to liver. He has been doing chemo every 2 weeks since October 2010. He was on Oxyplatin until Feb when he had a bad reaction. Then doc switched him to fu5, lecuvorin, and avastin. He has been doing really well on that. He actually has his life back. He does almost all his regular…
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I'm half way home
I just got my CT scan results and I am still NED! I have gone 2 1/2 years now so I figure I am half way to being cured assuming that 5 years NED means you are cured. I don't know if its the program I am following or I am just lucky. I asked my Onc if he had any statistics on when recurance happens for stage 4 colon cancer.…
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Phoenix - Haboob - Bob Dylan
Flew to Phoenix for a business trip yesterday (did a group presentation with the Winemaker this morning). First time traveling on a full chemo week (Irinotecan and Erbitux) so I was not quite sure how it would go, and it turned out pretty well. Phoenix is not an ideal place to visit in the summer. While it stayed under…
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Do you know of any support groups in Massachusetts?
Just wondering if there are any support groups in Masschusetts. It would be winderful if it was North of Boston. It would be nice to talk about what we're all going through and find comfort in knowing we are not alone. Maybe there is something on-line? God Bless, Tracy
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have you pooped anywhere unusual ? its time for some poop stories.
some may know i poop in my 4wd, i have a portaloo in the back. thankgod. while over in fiji, i pooped at midnight under the stars on the dirt road. but, the most embarrasing was a week earlier in fiji, on another dirt road. my son had a 40.4 degree temperature, so we went to the village hospital. he got some antibiotics.…
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New with a question
Hi all, What is the difference (or is there a difference) between a liver lesion and a liver tumor? I was recently diagnosed with a recurrence of my colon caner, and told there was a lesion on my liver. Thanks, Jen
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goodbye fiji, hello sydney, back to juicing and vegetable soup.
is this the eye of the cyclone or a long term calm? regardless, i am so grateful for the best family overseas holiday ever. the kids loved fijian culture and the waterslid at sofitel. my wife loved the massages. i loved the scuba diving and the healthy local produce was so tasty. i did gain 2 kg over the last 3 weeks away…
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HAI pump - which oncologists in Southeast, Midwest, work with MSKCC??
Hi. I am going to have an HAI pump implanted at Sloan-Kettering. I am trying to work out the travel and logistics. I live in GA (atl), but am willing to relocate to anywhere in the SE or Midwest, or possibly NE where an oncologist has worked with Sloan-Kettering. I will need systemic chemo as well. Anyone out there who…
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Ammonia Levels in Liver
My Mom had her liver surgery last Tuesday. She is recoverying and her vitals are good, she is in ICU waiting for another bed to become available on another floor. She has very hi levels of Ammnoia in her liver, which have caused her to have personality and behavior changes, confusion and tremors in her hands. The Drs are…
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Twin Cities CRC gathering July 21
We are having a gathering this Thursday, July 21, for colorectal cancer patients/survivors, caregivers, and community (medical or nonprofit involved with CRC). This is an informal meet & greet at the Mall of America, 4th floor, east side, in the restaurant at Cantina #1. We start at 4PM, and will go a bit late because of…
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Motorcycle Mama
Watch out world, about to go get my new little toy next week!! Had my first motorcycle when I was 14 a cute little Yamaha 250 (my dad was a dealer for Yamaha back in the 70's and I waittressed my butt off to get it, at wholesale of course)now you have to remember I was raised in Alaska, you could waitress (I worked at the…