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Touching Base
Hello My lovely Cancer fighting friends. It's Eric's sister again! Still loving my brother who is in the loving hands of a faithful God. How is everything going? I would like to stay on the board with Eric's login. Any objections? It makes me feel closer to him when I am closer to you. Chow for now......
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Thoughts are with all of you
Just a note to say I read all posts everyday and to everyone, newbies, oldbies and people like me who only post sometimes, my thoughts are with you when it is good, bad or just ok. Your experiences have kept me going, and when you are having a bad day, good day or just want to scream or give us updates on information, it…
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Blood Test Tomorrow
Well tomorrow is the big blood test on the immune system. Because the red/white count still is not coming up to the normal range, my oncologist wants to do a complete immune system blood test, including HIV, hepatitis, lupus, CBC, etc. Please keep me in your thoughts and prayers, and vibes, and anything else you can think…
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Anyone taking Bioidentical hormones while recovering?
DX June 21, 2010 - rectal cancer Stage II T3-N0-M0 - Rad/Chemo summer of 2010, surgery Nov 3 with ileostomy, more chemo (Xeloda) Dec 10-April 10. April CT scans looked very good. Reversal surgery scheduled for next week. I have about 3cm left of my rectum and a J-Pouch out of the Sigmoid Colon. I have been taking…
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Folfiri +Avasin cough an breathe issues ,need your help!
some of you has experience on those FX ?. Thank you in advance mates!
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wow what a busy week********Update on surgery ******
We have a busy week this week on Monday Jorge had his ct scan and today its my youngest birthday she is now a teen god help us . And tomorrow we have to go and see the colon surgeon and she will be telling us about Jorges scan . And I believe she will make a date for the surgery man I'm getting scared now thanks all hugs…
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hernia
Hi have not posted for a long time, 2mths after my husbands chemo has finished for stage 3c cc. Things are going well, have colonoscopy june 9th and another ct to follow. Still early days and keeping our fingers crossed for good results. My husband has developed a hernia near the site of surgery, what happens with this?…
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small rectal carcinoid, need help with pathology
Hi all, Few days ago presumptive benign 0.5cm rectal polyp came back positive for 0.3cm carcinoid tumor. Unfortunately the pathology report does not talk about margins. I asked my doctor he is not talking about margins. All he is saying is he will go in after 3 months and check. I am currently fighting another cancer so I…
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Roby's surger
Surgery was yesterday, lasted a little longer than they had thought it would. Could not remove all of tumor, removed anus now has permanent colostomy. We will have to get with onc to get a plan together possible radiation and more chemo for sure. Doc said liver looked good cancer has not spread. He's doing well, Doc said…
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traffic jam with the loo
the joy of reconnection. got home yesterday from hospital. i surprised the kids and picked them up from school and took them to swimming. then i spent 90 minutes in the toilet at the pool. made it home and was asleep with son in bed at 7.15pm . up at 3am for more visits to the loo. nochance to get back to sleep, so had a…
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Cycle 1 of oxaliplatin/irenotecan/5FU Chemo Treatment
Hi all: As promised I am going to report on my treatment today, cycle 1. I think I am getting Folfiri (spelling?) and not Folfox, so my sheet read anyways. Long day, went in at 7:30 am and got home at 3 pm. They started the process with 5 pills and then the oxaliplatin, then an injection for the irenotecan, the other…
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plastic stent in liver..anyone?
I have had a biliary drain (several in fact ) for the past year. we have decided it is time to place a stent instead of the drain tube as the tumors that had been blocking the biliary drain are gone (hooray)!, they will use the existing tube (which exits my side ) as a guide for a wire that will capture and guide the…
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Terrible Cough -
My Mom has had a terrible cough for about 1 month. She is at her 8th chemo treamtent as I type this. They decided not to give her 5-FU (Fluorouracil) at this treatment - to see if this is causing her cough. My concern, I hope that this cough is not cancer spreading to her liver. She had a chest x-ray last week to make sure…
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cheat sheet for acronyms
Since I'm fairly new to all of this, even though I've lost many family members to different forms of cancer, I see lots of acronyms that I don't know what they mean. Is there a cheat sheet posted anywhere that might list different acronyms for words/words for acronyms? Thank you Marianne
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I wish this to all of us for at least 90 years! The last one.
I'm a little bit emotional. This is the last day before my last chemo. At least I hope my last chemo forever. Only I feel some guilt that I am not taking you all with me. I want this to be for us all. And then I also have this fear that at my scan I will hear something I don't want to hear. I have tears streaming down my…
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this is an amazing site!!!!
hi all i havent posted in awhile i have been reading all the post. ive been laughing ,crying and praying for you all. i was dx in may 2010 with stage 3 colon cancer took tumor and 70% of my colon out, did 6 months chemo(folfox) i just did all my test again and the beast is gone (praying) i have beat it for the second…
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What is the PET scan process like?
I'm getting my first PET scan tomorrow and wonder what the process entails... I've had CT scans, MRI and ultrasound...and each has been different. For the PET scan, I've been instructed to consume NO CAFFEINE all day today and am expected to not do anything strenuous today...keep my body in "rest state" for the test…
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3 hours to go, meaning in suffering and "A Mans Search For Meaning"
While I have been laying in hospital in pain i read the book below, it got my mind working. "A man's search for Meaning" by victor frankle "Experiences in a Concentration Camp" See the extract below, one of so many that touched me. this book is so rich and just what i needed. i hope you read the extract if your interested.…
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Just Diagnosed...
Hi, I'm so thankful to have found this site - I'd planned to merely lurk, but had to jump right in. You all appear to be knowledgeable and compassionate. I was diagnosed today after a colonoscopy. I have a "6cm cancer appearing mass" according to my report. My dr said they'll biopsy, but it's definitely cancer. He's to…
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what are the odds?
Do you know what the chances are that colon cancer will metastasize to the brain? Between 1 and 3%. That means there is a 97% that it won't happen. This location of met is being seen more now in colon cancer patients because of extended survival time. As a result of prolonged survival with metastatic disease, the incidence…
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Neuroved -anyone hear of
Has anyone heard of Neuroved for neuropathy? It's a pop-up ad on my computer. Homeopathic. (Needing relief for stiff-numb neck after Folfox.) Not getting relief. Chemo was 4 days ago. Seeing chemo nurse tomorrow for labs. (I had surgery on my neck 2.5 years ago....does anyone know if a surgery would increase side effects…
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Your thoughts
Hey everyone, Yes its me Beth, I dont get on here as much as I would like, but I am always checking in and keeping everyone new and old in my prayers. Just a recap, I am stage 4, been almost 2 yrs out of treatment and still NED (Keeping fingers crossed, scans coming up), I work in law enforcement as a supervisor, extremely…
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Relay For Life!!!
Hi, everyone! Hope to catch up on all the news soon. I'm still recovering from Friday night's Relay For Life. I stayed all night with a few members of my team, and it was awesome. The survivors' lap was so emotional, as always. More members of our church came than before, and it was so lovely to see them waving and…
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CT SCAN TOMORROW
Hey guys tomorrow Jorge is having his ct scan to see how well the radiation and the 5fu chemo has worked on his tumors wish us luck thanks to all of yous hugs Tina
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Integrative Medicine why not ? lecture at md anderson UPDATED added video, best 60min i have seen.
i just found this transcript of an interesting lecture, we can make a difference to our journey. this authors book has been discussed here by myself and others who are interested in improving upon traditional outcomes. i hope you like the post, the lecture and the book. i read it months ago, it gave me great hope. the…
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onc doctors bedside manner
Has anyone come across a onc doctor that has a poor bedside manner, I just met one that came in the room and the first thing he said was your stage 2 colon cancer had spread to a stage four colon cancer. They foumd a spot on your bowel during surgery, he said that you have stage 4 and have 20% chance to live for 6 months.…
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My sauna detox week
Hi Everyone, I completed the sauna detox this past week. For those of you who don't know, I agreed to undergo a sauna detox week through my naturopathic doctor's clinic in Encinitas, CA (the Center for Advanced Medicine- if anyone wants to look at their website, it's www.solvingtherootcause.com Anyhow, I survived it & am…
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Update on rubyrose, long term survival of erbitux cetuximab?
Has anyone had the drug erbitux cetuximab? If so would be interested in hearing about it and survival rates. My husband has bowel cancer with secondary liver mets, diagnosis July 2010. He had ten treatments of folfox July to December 2010 with reduction to large tumours in liver by half. Had Portal Vein Embolisation that…
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Black Cumin Oil
Hi, It is now 3 weeks after my surgery, lost 10 pounds of cancer, 1/3 of colon, left side and 7 cm of rectum and I am doing very well I think. I was cut open from breastbone to all the way below. Healing very well. All 8 lymphnodes taken came back clean and the cancer has not gone to any of te organs, so far, I was told…
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Fatigue
Hi everyone, I have a question. I am going to have surgery on the 24th to remove a small 2.5 x 1.5 cm malignant lesion from the liver. That is how big it was 2 months ago. Anyway, the past couple weeks i have had bouts of extreme fatique and when walking the dog my knees get shaky. Now here is my question. Isn't it too…