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bowel control problems
I am 2 1/2 ned. had lower abdmoninal resction, radition with 5FU then Fulfox with 5FU. Last December I had a hernia repair. Still having problems with bowel control. Take benefiber twice a day and try to eat enough fiber. Anyone else still having problems? It was good for awhile now it's more frequent. I know stress…
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Ablation on the liver twice, Anyone? microwave thermal or laser?
My husband has a four spots on his liver all around a centimeter. Except for one near his hepatic artery which is stable from 2009 (fingers crossed DEAD)We just emailed someone from the mayo clinic. The doctor said they could procede with the procedure if it wasn't too painful or disruptive to his daily life style. Well I…
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Johnnybegood, .Soccermom. How are you?
Not posting in a while !
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good news
I've been doing Xeloda, Irinotecan and Avastin for 12 courses every other week and even though they had to reduce the Xeloda to 3/4 strength and the Irinotecan to 1/2 stength to minimize side effects, my tumor has gone from significant activity and 2 x 1.6 cm size to moderate activity and only 1 cm in size. The lymph nodes…
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I have a question
My friends boyfriend is 42 and has been diagnosed with colon cancer. They told him that it looked like stage one. They operated on him and closed him up without removing anything. The doctor told him it was too big. They now think he is stage 4, and want to wait 6 weeks before they do chemo to let his wounds heal. They say…
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Update on George
Well I'm home now but George is still in the hospital. Oncologist visited with us this afternoon at the hospital and it was decided to keep him until most likely Monday. Since he is already there it is best to keep him there and get things under control. It does not appear cancer spread causing trouble but the diarrhea.…
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PPI Use
Hi, I am new to the site. My husband, 58, was recently diagnosed with Stage IV signet ring cell adenocarcinoma of the colon. He had surgery a month ago to remove a tumor from his colon and they say metastases(?) on the diaphragm and peritoneal cavity, as well as substantial lymph node involvement. He starts chemo on…
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fever broken feeling better pain decreased suddenly might be going home in a few days
Hi everyone, just an update, been ill for a few days. I went in for stoma reversal and hernia repair 9 days ago. i have had a yoyoing temp from 39 to 36 over the last week and some pain that was sometimes extreme. this reminded me of the worst pain from the rectal radiation damage about 10 months ago. I have been on iv…
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OT - tough week
Aloha, I am thinking about all of you. This week has brought so many emotions for me. **** had his 41st chemo this week. I am so grateful that he will go through this to keep the cancer from growing. A colleague of mine committed suicide this week. It has been very, very hard on everyone at our school. I taught both of his…
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maglets!
Where the hell are you lately?. Love you!
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My most frequently asked question.....
"So, do you think attitude is the reason you survived?".... Just got it yesterday again at the bank (celebrating my birthday and 5 years post any treatment on both cancers this July).... My response: "Well, I can tell you that it doesn't hurt. I am very blessed that for a whole bunch of reasons (including luck...heredity…
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Trip to the ER
George hasn't been feeling well lately, his color is awful and the diarrhea as bad as it can get so it was off to the ER for us on Friday morning. Stayed there all day, received a couple bags of IV fluids. It was then decided by his onc that he should be admitted. Since is blood counts are off he also received a blood…
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i hope all of you guys are doing will
I've been away up north with jorge getting ready for this week jorge has done 15rounds of chemo 25 radiation and 5fu pump for 5weeks 24hours a day 7days a week and now he's going to have a ct scan on Monday and then on thursday we meet with the surgeon and I think she will be giving us a date for surgery . But I have 1…
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Nephrostomy tube and Kidney functions
The last few months I have been having a hard time urinating 100 percent due to the urters (sp) blocked etc. So I have a stint in the right urter (sp) and a few months ago they put the Nephrostomy tube in. It has been very uncomfortable at times. But I am remaining positvie. I go for another renal scan on Tuesday. I seen…
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Phone contact with Buzzard
Anyone have the phone number that they can call and see how Clift is????? Winter Marie
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Anne's Adventures in ER land
Well I had to make a trip to ER last night. My heart was racing, I had thrown u and generally felt curmmy - spent the day in bed. My husband called my primary nurse (my onc's nurse) + she wanted us to go to the ER at my cancer centre. So off we went, arriving ~ 9:30 pm and left after 6:am the next day. I was seen almost…
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neurapathy??- jaw, neck
On folfox 3rd treatment. Can u have neuropathy along the jaw and under chin, or is that just on hands and feet? I have terrible numbness and tightness under the chin and upper neck. I wrote about this before, but maybe someone else knows about this. My onc (or the nurse) suggested OTC glucosamine and chondroitin... maybe…
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Delaware just passed medical marijauna bill
Delaware is now the 16th state to allow medical marijuana. Progress is being made. Still a long way to go.
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I forgot
I was busy catching up on the forums and had forgotten to mention - I am home form MSKCC! What a good feeling that is! Things are moving along. I even mowed the lawn yesterday. It took all day and it is normally a one hour event, including the trimming, but I count it as a major accomplishment considering I had been home…
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6 vs 12 treatments Folfox 5FU Oxal
Hello everyone, I was diagnosed in Jan with 3b, had surical resection and am only scheduled 6 treatments, part of clinical trial, anyone else involved? I am still not sure if I want to participate or if I should drop out of clinical trial and go for the 12. Appreciate anyone experience or thoughts! Thanks so much CJ
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6 vs 12 treatments Folfox 5FU Oxal
Hello everyone, I was diagnosed in Jan with 3b, had surical resection and am only scheduled 6 treatments, part of clinical trial, anyone else involved? I am still not sure if I want to participate or if I should drop out of clinical trial and go for the 12. Appreciate anyone experience or thoughts! Thanks so much CJ
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Bucket list?
I'm not sure this is an appropriate question or not. I do not wish to upset or offend anyone here in any way at all, so forgive me if this seems inappropriate to you. I would like to know if, when diagnosed, any one here decided to do a "bucket list" of sorts and wrote down all they would like to do, try, achieve before…
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Bruising/bleeding
Husband has been treated for stage 4 colon/liver for last 20 months. He is now on erbitux every 2 weeks. Has been bleeding a good bit from stoma, had a clear colonscopy last week. But they don't say why he is bruising so much, and bleeds so much from any little tear in the skin as well. Constantly has spots on his arms,…
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Well....it's FRIDAY ! any interesting plan for the weekend? newbies welcome to the post!!
Just renew my driving licence ,have an unformal chat with my doctor and some meals with family and friends!. Have a great Weekend !
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Essiac Tea
My husband has stage 4 inoperable colon cancer with mets to the liver. Our oncologist hasn't heard of Essiac Tea. We're trying to find out if it will negatively impact chemo treatments. Anyone have any information they can share?
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my heart is breaking NG tubes everywhere
its 3am level 8 saint vincents hospital. i think my pain killers have kicked in at last. i just walked up the hall to loosen my bowels. what did i see ? well level 8 is the colorectal floor. today and tomorrow are big op days here. so many sweet old people with ng tubes and a few younger ones. all the beds are full here.…
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more questions
if a Dr. says "6 months left to live and you've already used 2 of those" what can I expect? I mean, I know that they don't really know "when" but they have to be semi-close, right? (this is for my Aunt who has stage 4 colon cancer and it's already spread to various other organs including throughout her liver). the Dr. also…
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update on bloated abdomen
Well finally got a call back from Onc. He wants me to do a ultra sound and complete blood work when I return to Michigan from Florida in two weeks. I have had this bloated abdomen since my 12th folfox treatment back in March 2011. I was declared again NED after ct scan in March as well. CEA less than one and liver normal.…
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Mets to liver
Just an update on my mets to liver which were noticed in January by Hospital 1 on cat scan taken because of er admittance for diviticulitis. No contrast by mouth on this one. So my onc is at Hospital 2 and he ordered a c scan in February (prior to that I had one in October 2010, supposedly ok. at Hospital 2) Febr scan…
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New regimen - Folfiri w/ Avastin - help please??
Hi all, I'm asking for a little help tonight... Unfortunately, Rick's scans today revealed tumor spread in the peritoneal cavity, so he'll be starting back on chemo in a couple of weeks. We met with both his oncologist and HIPEC surgeon today, and they indicated that it's just a wait and see approach now in terms of future…