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Colorectal Cancer

Archives for May 2011

What's your take on this anyone tried this juice??
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GOLFIG, new tx cocktail
I came across this cocktail treatment that systematically adds gemcitabine, granulocyte macrophage colony stimulating factor, and low-dose aldesleukine (interleukin-2). It's supposed to be much better than FOLFOX on progression free survival, the drugs are already generally available: GOLFIG Apparently this treatment…
checking in !!!!!!
good evening my fellow survivors, it has been a while since i posted but i check in everyday. today my family and i came back from our family cruise to the caribbean. we had a wonderful time and i enjoy the heck out of it because my wife and kids and i are all together. i hope and pray all is well with all of you. i am…
MY time to vent!!!!
Okay.....so, we have a bunch of friends up at the lake.....14 people....I went and did the shopping for the food, prepared everything.....my son did the actual b.b.q. of the meat on the grill, I did all the veggies, salads etc. Hubby sat in a lawn chair with a dumb grin on his face!!!! Like he would always do in the past,…
A few questions about chemo options, IORT and HIPEC
Hi, I have a few questions to ask on behalf of my friend who has a large tumor pressing on his intestines and embedded in his abdominal tissue as well as some cancer in his peritoneal lining. He is being treated in Boston and had surgery back in Dec, but they were unable to remove the tumor. He has been on a combo of…
I need your guys in take on this .
Jorge and I saw the colon surgeon on Thursday to talk and the last ct scan and surgery .she told us the date for surgery is June 6 but I asked if the tumor in the rectum has let go of his back . And she said no but in jan of this year we had a ct scan and all 3 doctors told us yes it did let go of his back. Now here is my…
Meaning of life?
What is the meaning of life...? I just can't seem to find a purpose. Cancer hurt me as a child and is trying to take away everything else as it attacks my child. I feel so helpless.
Off Topic--Social Security Disability
Calling on my friends here with a question. I couldn't find an answer in the Social Security website. My husband has been on SS Disability for about 12 years. Does anyone know when you reach the actual SS age(66 in our case), whether or not you remain on disability benefits or just transfer to regular SS, and also would…
First colonoscopy
At 42 years of age, one finds that there are fewer and fewer "Cherry" experiences, but last week was a good reminder that I still have a LOT to learn... My surgeon schedules me for my followup colonoscopy last wednesday,and gives me a script for "MoviPrep" to take the evening before the procedure the following morning.…
I teased my hair today
I got tired of seeing my flat arsed hair. So I took a brush and teased it like 1969!!!! I felt so good!!! Winter Marie
STupid CEA keeps rising
Darn it, was down to 2.1 CEA in Feb, and every three weeks it goes up 2 to 3 points. Now up to 3.2, so Onc is increasing Xeloda to 5 pills in morning 4 pills in evening. This is normal amount for Europeans because they don't eat a lot of bread. Since I don't eat bread either, he thinks this will work fine. If not, then…
Amazing
I just have to say that you people on here are just amazing. The depth of your knowledge has me flabergasted. I was so sick after my surgery and then starting chemo I didnt research a thing, and I am a nurse. I just went with the flow If I could bring you all together in a bunch you could probably find a cure Well done,…
Diasability joke
As some of you know I was diagnosed with stage 4 colon cancer in Sept 2007, had surgerym chemo, etc....NED for about 6 months with recurranc in ovary, surgergy, chemo, etc. I have been on and off of disability...dame insurance company same employer since 2007. I always went back to work full time. ok, so now in Dec 2010 i…
Capsaisin and Cayenne
Does anyone know anything about capsaisin (an ingredient in cayenne) and neuropathy? I have read some articles on it and even it's use in cancer treatment. It seems the articles talk about the apoptosis of cancer cells in the treatment and something about confusing the sheaths in neuropathy. I am wondering if anyone has…
Now for the scan...ugh....the wait..... (to the bomb digities of power :)
I just want to say a million thank you's! I don't know what I would have done with out my csn family through this treatment journey. I know it's not over yet as I am waiting to do my scan still. But just the thought of going through this without all of you who know what it's like and having that connection....I can't…
Joan asking for info
I have a hard time navigating the mail on here. cant seem to find the person Joan who asked me for some info the other day. LOL I know, its pathetic
New to board, brother just diagnosed with signet cell
My 30 year old brother has just been diagnosed with signet cell cancer which they believe originated in the bowel. During surgery to repair what they thought was a twisted intestine they opened him up and everything is "glued together". He is at our local hospital waiting to be trasferred to Roswell Park Cancer Institute.…
Friday Riddle
Remember NO googling or searching the Internet allowed and good luck!!!!!!!!!!!!!!!! Once upon a time, in the West Lake village, a servant lived with his master. After service of about 30 years, his master became ill and was going to die. One day, the master called his servant and asked him for a wish. It could be any wish…
Thought of the Day
“Why should we live with such hurry and waste of life? We are determined to be starved before we are hungry.” ~ Henry David Thoreau (1817-1862)
Hi my friends it's FRIDAY, any interesting plan for the weekend? Newbies welcomed to this thread!
Beach, since seems summer has arrived to Barcelona!. Hugs!
Having the blood test today
Well, knew that my blood testing was going to be for the immune system but when the nurse sat me down and said I'll be right back, it took her about 7 minutes to come back (heard her tap, tap, tap in the computer), knew either she was doing extra work while I'm still sitting in my chair or something. Never wanted to say…
Starting New Treatment...
Well, time to get back to the battle. My CEA continues to rise....high enough now that anything else has been ruled out except recurrance. Even though the scans show nothing.... that nasty crap is out there lurking...somewhere. Onc said no sense in letting it grow till we can see it so we might as well nip it in the bud…
Dr Oz & Mary Ann Lila. Cancer foods. FYI
http://www.drozfans.com/dr-ozs-advice/dr-oz-wild-blueberries-muscadine-grape-juice-black-currant-juice/
I broke the pattern
I broke the pattern- my recent CEA pattern, that is, of up-down-up-down. Last time it was drawn (4 wks ago) it was up to 295. Following the pattern, it should have gone down this time but it didn't. It wasn't a huge jump, but a rise all the same- it went from 295 to 319 this time. I was bummed. I did my sauna detox last…
Chemo back on!
I never thought I'd be happy to get my folfox6 but after a week off, I'm glad to get back on track. My platelets were 149, double from last week. It was a relief that I cam bounce back yet. My white count is still little low. Any suggestions for raising it, vitamin C or zinc? My onc reduced my oxaliplatin by 25% to reduce…
Expeirences with Erbitux
Onc wants to start chemo again, in two weeks for Robert, and he wants to start him on Erbitux........IF he doesn't have th KRAS mutation. From what I read about this drug, it can cause some issues with the skin, hair, nails, eyes, and a whole other host of problems, including cardiovascular. Robert is ready to keep…
Email from "Scary Old Woman" Kerry's Wife
Hey All, I have copied a recent email I got from Kerry's wife Susie. I will copy and paste your posts to my next email to her so if you have a message please know I will get it to her. She does not get on the boards so this way she will get your comments. Take care! Jennie Hi Jennie. I just thought I’d let you know that…
My husband won't ask questions
I have read many postings on here and this is my first communication to anyone. My husband was diagnosed with colon cancer in January of this year. A severe stomach ache brought him to the ER and from there it was a colonoscopy to surgery within a week. My husband has never gone to a doctor for 18 years. he refused to have…
Low iron
My last two blood counts has shown my WBC, HGB and HCT lower than the normal levels. My doctor is only talking about my HGB, though. He said if it was this low or lower next times, he would hang a bag of iron during my chemo. Has anyone had a bag of iron? How is it? Does it make you sick or hurt? My doctor won't answer…
Kathleen808
Thinking of you and hoping things are getting better for you. You are such an inspiration to everyone on this board and on the Colon Club board. Jan

Colorectal Cancer

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