Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for May 2010

Stay focused and positive.
Good Morning and HAPPY MOTHER'S DAY TO ALL OF THE LADIES. My name is Karen. I was diagnosed with colorectal cancer in February, 2010, following a colonscopy. I had a Sigmoid colon resection on March 24th, 2010. They had also removed eight surrounding lymph nodes. After returning to work on April 12th, 2010 as a Disability…
my husband
We just found out that my husband has colon cancer. Do not know the stage yet but they told us that it has not gone anywhere else. He goes for pre-op on the 19th of this month. But I am very worried because of some of the things that are happening. He is having problems controling his bowels and has had several accidents.…
Probiotics
Any one take Probiotics and know if they are safe for us to take? Are we considered to have a compromised immune system, even we we are not currently on chemo and NED? I have read the web but they of course refer you to your doctor if you do have a compromised immune system.....just wondering if anyone has done any…
Happy Mothers Day to all the Moms!!
We all love our Moms.. Brooks
Pet Scan on Wed
I am getting a Pet Scan on Wed. I had one in March of 2009 right after my initial DX. I have had CT scans in between. I am getting this Pet Scan at a different facility . They told me to eat a no carb diet the day before starting at noon, not to exercise the day before and fast for 6 hours before. The other facility did…
I can declare to all of you today that I am back 100%
I can declare to all of you today that I am back 100%. After 2 years into my stage 4 journey every thing inside my body is back to normal. After being rotisserized with radiation while being internally basted with chemo, no longer do I have to run to the john. I now actually sit on it like a normal person and push to…
Off to see the CR surgeon "Wizard"…
Well this is (hopefully) the last weekend with my colostomy….I am off to “Oz” on Wednesday – (colonoscopy) – then Thursday – (reversal)…..so hopefully all the munchkins (internal organs) will be willing to work with me – and the reversal will go with out any wicked witches around! Alittle nervous...and really don't want to…
scan results not great - bone mets
Got my PET scan results this morning. Not so good. I have bone mets. Five (neck, rib, hip, pelvis, lower back). The good news is they are tiny. My onc wants to do a biopsy. He suspects my cancer has mutated (hence the rising CEA, when CEA has never been a good indicator for me before - not at initial diagnosis or with any…
surgery Thursday
Hi Everyone, ****'s surgery to remove the 1 lymph node is on Thursday, May 13 @ 10:00 California time. He met with Dr. Lenz and the surgeon and everyone said it is a good idea to take the lymph node out. Right now, that is the only place cancer is showing up on the PET. I pray that once it is out, **** can do some mop up…
My morning
Hi, everyone. I had a nice morning. I was invited to a local elementary school to speak about being a cancer survivor. It was just a short talk to some 2nd graders. The school does a mini Relay for Life each year. When the kids came out to hear me speak, they had all brought money to put in a bucket. The PE teacher, who…
Xeloda Starting Dosage
My husband has just completed eight FOLFOX/Avastin treatments (he had to stop Oxi after 4 sessions) for his stage four recurring colorectal cancer with mets to liver and lungs. His most recent CT scans showed stable disease in abdomen, slight decrease in liver, and slight increase in lungs .... his oncologist has switched…
got scan report today
I went to the records room and got my PET/CT scan report today. As I had mentioned as an update on my other post, I left the scan yesterday with a CD in hand, and I did look at it last night. The same old lit up spots were still visible on my lungs, liver. I couldn't tell about the rectal tumor (which showed as a…
got home from New York to big disaster
sorry guys....before I read through the forums and catch up I thought I'd tell you some funny/crappy news. some of you will remember Jim gave me tickets to the Met in New York for Christmas....off we went and it couldn't have been more wonderful> The people of New York were fun, kind and generous.... skip to crap.....when…
Old-Timers
Has anyone heard or have an update on JADot?
Thought of Today
“Remember that very little is needed to make a happy life.” ~ Marcus Aurelius
Friday Riddle
Remember NO googling or searching the Internet allowed and good luck!!!!!!!!!!!!!! RIDDLE: A man is sitting in a pub feeling rather poor. He sees the man next to him pull a wad of £50 notes out of his wallet. He turns to the rich man and says to him, "I have an amazing talent: I know almost every song that has ever…
Scans in
Hi, you are the ones I turn to when the disappointment hits. Got my scan results today. They aren't bad, the spots I had have grown some and there were some new ones (on my lungs) but no other spots anywhere else. I have been 12 weeks with no treatment, so now we know what happens! I have to wait for the onc at UCSF to…
Sensitive teeth to cold
My teeth have been sensitive since chemo (FOLFOX, stopped 2 years ago) and neither the Sensodyne toothpastes nor the prescription Prevident 5000 toothpaste is helping. It's mostly an issue when I rinse my mouth, if the water is cool, or if I bite into cold foods. Anyone else have this problem? Any solutions that I might…
Help with Disability
Some of you may already know that I had rectal cancer (T3) in 2008 and have lived with a stoma ever since . After recovery the doctor as well as nurses told me that I shouldn't lift anything or I could have my intestines come out of me. I tried to get on disability and was denied. That's a scary thought that could be very…
ANC 28%, No chemo,
Hi, yall How worried should I be? I have crazy met growth and spreading, mostly i look and feel great, only complaints are more tired, and neck and back pain, On a side note, had a great art show wt hubby and been hard at work trying to fill orders. question 2. Anyone else have advice on how to tell spouse things with out…
Missed You All
Hi All: I hope you have all been well. It’s been awhile, but wanted to let you know all what has been going on. First, I would like to express my condolences to those we lost on the board since I posted last. My heart goes out to the families and friends. I’ve been looking at some posts but not very many. I was getting…
Anyone heard from Roger (Crow 71) lately...
Hope Roger is recovering ok...just thinking of him and his family. Sending recovery sparks.
Neulasta after Folfiri and Avastin
I just had my third round of chemo last Friday. After the first round, I was horribly sick for a few days, but bounced back quickly. After the second round, I was not nearly as sick, but it took almost 2 weeks to feel better. I had only 3 good days that time. My onc said it was because my wbc was low-- 3.2 at the chemo…
New CSN Chat
Hi everyone, The new CSN chat was launched this afternoon. Hope you like it. :-) Greta Your CSN staff
The Cancer Cure?
I was watching Extra this afternoon, and they had an interesting discussion with a dr. about this machine that cures cancer. Could this be the hope? Check it out, I don't know much about it, but thought it was pretty interesting. Check out this link: http://extratv.warnerbros.com/2010/05/cancer_cure.php Hugsss! ~Donna
HAPPY B-DAY TO ALL MAY BABIES
menright (mike) 02 May Sonia32 (sonia) 22 May If you would like to join the B-Day List, please provide me the following: a) Date of DX (including month, day and year) b) If NED, date (including month, day and year) c) Birthday date (including month, day & year)
Good reading...
http://www.omx2u.com/articles/proincancer.asp
scared and hurt
Tomorrow I go for a pet scan to see if after four years my rectal cancer has returned. My CEA went from 2.2 to 5.8. I have had to wait just over a week for the exam and in that time I have lost five pounds. I know my wife says its just stress and maybe she is right. Tomorrow will tell us nothing, we won't know until the…
having PET/CT scan Thurs pm & bloodwork results
Hi, Just an update on me- I just found out today that my PET/CT scan will be tomorrow (Thursday) at 3:00 pm. This is the first time I'll be having the scan done in the afternoon. I was told I can have a very light breakfast, as long as I have nothing except water after 8 a.m. I just made arrangements for the kids to be…
5 years ago today....
5 years ago, on this very day, I was in surgery to try to save my life from invasive colorectal cancer....now, my oncologist released me back to my GP!!! YEA!!!! Hugs, Kathi

Colorectal Cancer

Discussion List