Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for May 2010

Am I going to DIE?
As I prepare for the liver surgery and HAI pump install, I find myself with new thoughts of death from cancer. I have been at this battle for 18 months and up until now thought I was working toward a cure. As a stage IV cc with 3ea mets to the liver, it is just now sinking in that percentages are against me. Physically I…
Expressions page
Guys, for those that are interested, I put pictures of the farm on my expressins page. I think you will see why this old farm has a healing effect on me. Were talking big time placebo. Kerry
Crow71 update
Hi folks- Thanks for asking about ROger. It has been tough lately, but he is okay. We had an appt. with the surgeon yesterday and even though he has had tube feedings for 12 hours a day for a week he has still lost more weight. The surgeon wasn't too concerned, but did up the tube feedings to 16 hours a day. The wound is…
HAI pump
To all those who have had metastasis to the liver and had the HAI pump installed, I would love to hear your stories. I am now a candidate for a HAI pump. I will be visiting Sloan Kettering to review this option in the coming weeks. I am eager to learn much about this option so that I can make my appointment the most…
Doctor appointment visits
Just curious as to how many times you go to the doctor every year. Seems like I have to go every three months with a blood test, and then go for results. I have to go for CT scan every six months. My oncologist said I have to see her for the first three years every 3 months and the next two years every six months. I have…
Platelet Count
Thanks to all you all with your valuable posts. Craig and on and on. Thank you. I changed Onc after 4 Folfox Treatments because of summer relocation. The origonal Onc got cautious after they (Platelets ) dropped below 100,000. The New guy, who I like alot, changed me to Folfox 6. He continues treatment even tho I am now in…
Get Your Rear In Gear
How many of you are participating in the Get Your Rear In Gear 5k walk/run? We have one here in the Twin Cities this weekend. I will be walking it (wish I was in shape to run, but I am not) I feel happy that I am well enough to participate though. I look forward to meeting the other fellow survivors.
Request for Information: Cyberknife
I'm trying to understand when Cyberknife is used to treat colon cancer. Is it used for larger masses in the abdominal wall or only for small cancers? Is it usually covered by insurance? Hatshepsut
Signs of mestasis to the lungs
What are the signs of mestasis to the lungs, I have this dry cough that I get mostly at night, and thought I better ask, is this a symtom???
crow71 idlehunters?
anyone heard an update on crow71 or idlehunters?
concern about atropine
I recently started on a chemo regime of Irinotecan and Vectibix. During the last round of chemo they gave me atropine to slow down my gut as diarrhea is one of the major side effects of iriontecan. So far diarrhea hasn't been a problem for me but, my dr doesn't want it to become a problem, so the atropine. The problem is…
You Might Be A Cancer Survivor If ........
You might be a cancer survivor if - You commonly use the abbreviations - dx, hx, rx, sx, tx - and you have never been to medical school. You can rattle off the brand names and generic names of medications and their uses faster than the nurse can. You can convert MLs to Ounces. Boost and Ensure are entrees. Your expelled…
CT/PET SCAN RESULTS
My Onc nurse called today with results of my CT/Pet Scan. They found no reoccurrence of cancer both were negative. They had no explaination why my CEA went from 2.2 for four years suddenly to 5.8 and then 5.6. So they will be keeping a closer eye on me. My wife and I are going to join our daughter, son-in-law and my…
What They Say -vs- What They Really Mean
They say - You are so strong ! (or) You will need to stay strong ! They mean - You will have to do this by yourself. --------------------------------------------------------- They say - Call if you need anything. They mean - I will come if it is a dire emergency and only if you can reach me in person and not my voice mail.…
Metastatic Colon Cancer treated by maintenence chemo
My Mom was diagnosed with colon cancer in 2006. After a colon resection, they discovered that it had spread into her lymphnodes. She was treated with chemo (5FU and Oxcillipattin) for the normal treatment time. In June of 2007 she was complaining of pain in her vaginal srea. There was no sign of cancer. By January 2008 her…
Things are looking good…I think.
It’s been one year since my colon resection, in which they removed a tumor the size of an orange and staged me at IIA. They found a small tubular adenoma polyp during my colonoscopy last week, and told me today that it tested negative, but since it’s the type that can grow back I will have to have another colonoscopy in…
BACK SURGERY
Saw the surgeon today, and he is going to be doing surgery Wednesday afternoon, minor surgery, great news is that the DOC says this is a fixer, and its his specialty surgery. Please keep me in your prayers, I know I hate to even bring it up, in comparison to what everyone else is going through this is the least of your…
The Role of Loneliness in Our Cancer Battle and With Our Spouses
Cancer can be such a lonely, isolating disease. Many of us in our lives have seen friendships and relationships dissolve as a result. Nothing really changed in your relationships, other than the fact that you became ill. It is how others dealt with it, or more importantly, did not deal with it, that is the crux of the…
Rough Time on the Board Lately
I realize that there have been quite a few of "us" who have lot their battles with cancer lately. I know it hits me hard and I imagine it hits the rest of you the same if not harder. Just doing a quick search on this site, I came up with 701 members who have either colon or rectal cancer. That's a lot of members in our…
Ashley has lost her fight
Please read her story, may she rest in peace. http://www.caringbridge.org/visit/ashleytunstall
6 Month reprieve- scan results
Scan results were great today!!! I am still NED. 2.5 years from original diagnosis and 1.5 years from second surgery for ovarian metastasis. I know I am not out of the woods yet or may never be... we will rescan again in 6 months. But.... for now I am very happy and could not wait to share the news with my daughters. They…
Bowel Movement Program by Annette Bisanz
I was diagnosed with rectum cancer back in June of 2009 and went through chemo,radiation and then surgery. After six months I had reversal surgery (three weeks ago). I am feeling pretty good except that I feel like I need to have a bowel movement 24/7. My doctor put me on a high fiber diet but it was not really helping. I…
Cindyz's final update on Stephen :-(
Click Here
How good's your memory?
I was talkihg with some people earlier and one guy claimed he could remember being baptized! Another guy said he recalled being circumsized on his eighth day of life!! The third man claimed he remembers going to the dance with his father and coming home with his mother!!!! Can you beat that? Have fun.....steve
Friday Riddle Answer
This weeks winners are: TxKayaker and PGLGreg. CONGRATS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: A man is sitting in a pub feeling rather poor. He sees the man next to him pull a wad of £50 notes out of his wallet. He turns to the rich man and says to him, "I have an amazing talent: I know almost every song that has ever…
Reading Room: US cancer costs double in nearly twenty years
While some of the findings reported in this article (out-of-pocket costs, for instance) don't mirror the anecdotal experiences of many on this board, this study is an interesting read: Link:Associated Press-US cancer costs double in nearly twenty years Hatshepsut
Mom is finally home!
Well, after 18 days in the hospital, mom finally got to go home today. She had her rectal tumor removed on 4/14, home on 4/19, back in the hospital on 4/22 due to an obstruction. The obstruction is still there, so she is on iv nutrition 24 hours a day at home now. Hopefully this obstruction clears within the next 3 weeks,…
swelling after liver resection?
We are so thankful Jim's surgery went very well last Monday and he came home Saturday, but we're back at the hospital the next day already. He has a fever and urinary tract infection, an abcess he had to have drained and cleaned on his wrist and he has such a swollen belly. He is belching and vomiting a small amount of…
How long until tumors shrink?
My husband is on a chemotherapy regimen that includes oxy, vectibix and xeloda. My Question: How long does it take for these chemotherapy drugs to begin to shrink colon cancer tumors? Do tumors respond immediately or does it typically (or sometimes) take many months to see results? I've been trying to research this…
On the advice of my surgeon...
I went and got a mammogram on Friday since he was telling me that breast cancer and colon cancer are about a gene away from each other. Well, I have to tell you that getting your boob smashed between a 'tire on a hummer and the ground' isn't any fun, but at the hospital I work at, they have a radiologist read them…

Colorectal Cancer

Discussion List