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Colorectal Cancer

Archives for November 2007

just finished chemo...should I have colonoscopy?
I had metastatic colon cancer (mets to the liver and lung)and just finished my last round of chemo and I'm currently NED based on my last CT. My last colonoscopy was 2 years ago, should I go in for another one now?
PET Scan
Does anyone know why you have to follow a low carb diet on the day before your PET scan? I have one tomorrow and they said low carb, no gum, no hard candy, no excercise of any kind the day before on my paper...just curious.. Thanks in advance!
doing good
My CT scan from Friday came back all clear in the pelvic and stomach. My CEA is back down to 5.6 down from September's 18. Still taking Xeloda 2 times a day and off on the weekends. Still have lots of pain in my back and we don't know why. I just have to thank God for making people smart enough to make pain pills. I feel…
to "my other family"
Thank you so much from the bottom of my heart. I am feeling better....Went to my Chiro today...Like I told u before...he IS giving me hope. He is a very christian person. So the first thing I asked him today was..."what are you going to do to make me trust you ? How do I know you are right ? I wanted to asked him how do I…
update
So, I've been told that I can't have my stereotactic radiosurgery unless I can walk around on my own and unfortunately I can no longer get around on my own anymore. So, palliative care has been called in to help my hubby and daughter deal with all the things that need doing. I've filled out advanced directives, had 2…
abdominal swelling
MOre freaking out, my husband, stage IV with liver mets has hada funky color and cat scan showed fluid in his abdomen, doctor did not appear to freak out about this, but after researching ascites, which is the medical term, I see horrible outcomes. My friends father had this, and looked like my hubby and did not live much…
rash help & advise
I am preparing for battle, hubby had results of cat scan and we have 3 new mets to the liver and pounds of fluid in abdomen from disease progression to the liver? We are going on a different chemo that does the bad rash to the face and the bad diarrea. He will start this week. I want to find out the best creams to the face…
not doing good
I am MAD, depressed, sad, lost...do not know what to believe...who to believe.. I need to vent..cry...scream....I look around and I have a nice home...but I dont want it...I have a wonderful husband...who;s suffering with me ( with out letting me know )2 good girls ( one told me the other day that I better get better cause…
update again
well- my love Peter is still fighting the fight...he continues to get paracentesis for the ascites and blood for his low hemoglobin..(no more chemo) he has lost sooooo much weight- today after looking in the mirror he said by "looking at himself he should be dead".. I told him he was beautiful- and his looks are a mark of…
chemo protocols
Hi Everyone, Well, this may seem a little late asking this question because I only have one treatment left. In the beginning when the doctors were trying to figure out which chemo to give me they first decided on oxaliplatin, leuvocin, xeloda for six treatments. Then my oncologist changed his mind and decided because of my…
Checking the neighbors
Hi All, You gave me much food for thought. It really didn't occur to me that some people would rather not participate in a neighborhood support group! How dumb is that? I guess I just thought everyone would like support from someone close by who knew what they were dealing with. Caregivers like my husband also need to have…
Friday Riddle / Teaser - LATE
Sorry for being late, I was sooo busy at work on Friday, that I forgot. PEARS: There are a few trees in a garden. On one of them, a pear tree, there are pears. But after a strong wind blew, there were neither pears on the tree nor on the groud. How come?
CEA Question/Doctor Issues
From June 07 to October 07, my dad's cea went from 128 to 14. He had a ct that showed slight increase in size of liver mets but decrease in lung mets. So, doctor swithced drugs. All of a sudden cea spiked. Tested on October 15 (132) then on October 19 (30). Went from 132 to 30 in four days. Our other doctor at hopkins said…
Congrats
Looks like there's been a lot of good news while I was away. Congrats to everyone who's doing the happy dance and encouraging blessings and energy to those still fighting!! I just got out of the hospital. I had fluid build up around my intestinal and surgery site which required 5 days of 3 square meals, being legally…
To all my female friends....
Hi all, Just wanted to share some info with all my female friends. This especially applies to any of you that have had pelvic radiation and were sent into premature menopause (also those already gone through menopause). My oncologist suggested that I get a bone density test since I am not taking hormones and am in full…
NED>>>>Yeah..
Just got home,long day but worth it. NED once again. I still have tears of just whew...Brief update for those that do not know us, hubby diagnosed 1/5/06 Stage IV Colorectal, Met to Liver and Lymph Nodes. Chemo then 8/13/06 had a complete lower resection with perm colostomy and also a liver resection. Then more chemo, rads…
My Doc said the word CURED
I went for my check-up today and the Doc said I was CURED. He is the same one who so kindly reminded me that I was not out of the woods as I approached my 5 year of NED. I am doing the happy dance (naked and with clothes). I wanted to tell strangers on the way home. I nearly called my kids at school. I am here telling you.…
We know what it's NOT...The beast!!!!
Well, finally, after a very scary conversation with the gal from my primary care doc who said "I really can't tell you the results, I don't know how to read them...I'll send them to your oncologist...she will tell you"...(I KNOW these are an easy read...sigh...)... The results from both the mammo and the ultrasound came…
All Clear!!!
Hi all, Had my colonoscopy this morning and I am all clear!!! (no polyps, no cancer, only healthy intestinal mucosa) My GI doctor was smiling from ear to ear with the results. He said I won't have to see his ugly mug until next year. Good day :) Kiersten
WORRIED ABOUT FRANTIC
HELLO EVERYONE, HAVE NOT POSTED IN A WHILE BUT HAVE CONTINUED TO CHECK ON EVERYONE. JUST A REMINDER OF WHO I AM. CAREGIVER FOR MY MOTHER WHO WAS DX WITH STAGE II COLON CANCER IN 05/06---SHE IS DOING WELL WITH A FEW EXCEPTIONS. WE HAVE ANOTHER CT SCAN IN DEC. BUT ANYWAY, WHAT I WAS WONDERING IS IF ANYONE HAS HEARD FROM…
update
A lot has happened since my last update. My lovely coworkers have decided that Mike, my everloving hubby needs help. I do agree that he needs help. He's been stuck here with me and I know work is suffering. So they've brought in palliative care. I've worked with the palliative care doc before I got sick so that makes it a…
prayers for a friend
Good morning to all, My daughter has a 26 yo friend since high school. Her name is Lindsey. Last year Lindsy was diagnosed with lymphoma. She had a port put in and chemo. She had a pet scan in Sept. and was NED per her doc. She was told this info on her 26th birthday. I was her nurse when her port was removed. Two weeks…
Advice 2
Thanks for all the responses and support. I couldnt figure out how to respond on that post so decided to start a new one. Again thanks for all the support, this site truly is a god sent..... I am not NED's as of yet, at least no one has said that. my pet scan was clean so says the onc, still undergoing treatment though. I…
What a shock??
Hey everybody, I have good news. I posted about a week ago whining about chemo effects and thinking I might hang it up because I had 3 more treatments and just was very bummed. Well 8 wonderful ladies descended on my post and pumped me up so much that I thought I was Rocky Balboa. Today I went to my onc and he said to me,…
A Hug from the Oncologist!
Hi All. Please forgive my lengthy post. Today was my husband's first appointment at the oncologist after his liver resection. She is not normally an extremely "upbeat" person if you know what I mean (very smart, knows her stuff, but not the most positive person in the world, very matter of fact and I usually have to "draw"…
Check your neighbors!
Hi All, Just wanted to share something. As we all know, even in small subdivisions it can be hard to know your neighbors. Busy schedules and 21st century suspicion keep us from getting to know those we live near. Anyway, my former next door neighbor is the exeption to the rule. She and her family got out and got to know…
Below normal temp
Hi again, Stepson was running a high fever with chills, now it is below normal 95 - 97. It has been fluctuating for a week. First thought it was a bug. Finally Sunday they did lab work. Dr. has him on penicillin waiting for lab results. He is on maintenance chemo and avastin every 2 weeks. We;re into 3rd week now because…
Advice
Hi everyone, (history, stage 3 with spread to 6 out of 15 nodes, age 38, had surgery jun 07, IV chemo since July 07, now on radiation Oct 07 for 28 treatments plus taking Xeloda, then will have 5 more treatments of IV CHemo) I know most would say that overkill is just what it is and if it saves your life then so be it. I…
First post treatment colonoscopy!
Hi All, Hope everyone is doing well. I keep you all in my thoughts daily. Tomorrow night is the lovely bowel prep (will be catching up my reading). My colonoscopy is scheduled for Wednesday morning. This will be my first colonoscopy since diagnosis and treatment. After getting my NED results in September this is the next…
Caregivers
Every so often I go through some of the other discussion groups and try to respond to some of the posts. Sadly, the "surviving caregivers" section is being neglected. There was a lady on there who lost her life parter of 9 years. The post was from 2 weeks ago and nobody had responded. There was also another person who had…

Colorectal Cancer

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