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depressed
Hi all. Been doing the chemo thing for 2 years now. Doctors appointments, scans, etc. seems never ending. I've reached a point where every new pain or odd feeling sets me off. Is it common to feel despair or panic? I guess the years have taken a toll, wish I could get my positive outlook back, just seems bleak now. Anyone…
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Mary from WI
Dear Family, As I sit here and tear up from emotion... Words cannot describe how greatful and thankful I am for each and every one of you! Thank you all again SO MUCH for answering some of my questions/concerns. I look forward to knowing that I have this 2nd family to turn to in time of need. What an absolutely amazing…
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Painful Jaw and uplifting post
My friend Mark has had one treatment with IV drugs Oxy. and Avastin and is on his fourth day of Xeloda. On the second day he was already having jaw problems - severe pain opening mouth. I've read about this annoying side effect but am surprised it came on so soon. He has about six more months of treatment. Has anyone…
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CYMBALTA
CYMBALTA.. In my earlier post "My Dr. Appt." I mention that my new Dr. told me of a antidepressant that works for depression and are finding that it helps with neuropathy. I am not on it yet but the plan is to switch me to it . Anyways platelets are up and I will be receiving my 9th treatment tomorrow (yuck). I am so…
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Calling all alternative eating guru's....
OK, I need to eat more fruits and veggies, cut back on proteins, drink more water, take my supplements and eat my fiber and flaxseed. So tell me, how do you get out of the house? Graphic here: Between the flatuence and frequent ( make that almost non-stop) bathroom trips, I am afraid to go out. ( might be just as well for…
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ultrasound results
hi all; well unfortunately from the looks of my ultrasound i will have to have a permanent colostomy.im a little blue today but at least the sun is shining .im sure i will soon have tons of questions. take care. cherri
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Camptosar
Hi everyone. I've been taking 5FU leucovorin for a couple of years now and my doctor wants to start adding camptosar. I'd like to hear from people who took it what the side effects and results are like. Thanks and God bless!! Don.
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bloodwork has us stumped!!!
hello to everyone, Questions, Questions, Questions, hey who knows, maybe someday we will be as smart as all of you and be the ones answering peoples questions! When Mike went for chemo in March (one week on 3 off, 5fu) they said his blood level (alkaline phosphatase) was higher than it should be. They said that 2 things…
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polyps after remission
Here's the scoop - I'm a 7 1/2 year stage IV rectal sigmoid survivor (yeah!). I've been in remission for over 7 years (double yeah!). Had my check up in Jan - CT, chest Xray and bloodwork - and everything's clean. Had my c-scope yesterday and they found a polyp. Noone seems to be overly concerned although they are…
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SLOAN KETTERING
Does anyone have feedback on their experiences with Sloan? My brothers wife has Stg IV w/ liver mets & is facing a huge surgery. They are seeing a very impressive surgeon at Sloan but the switch from Jay Moghnan Center for chemo (& a NY Presb. Oncologist) has been "rough". ANyone experienced this? Is it ok to talk about…
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Progression - Other Treatments
Hi everyone, my dads tumor in his lung progressed thats why his lungs filled with fluid and also the one in his abdomon progressed. He has tried, Oxplictan, Avistan and 5FU and that helped shrink and then keep it stable. Them he switched to Xeloda which did nothing because they grew on that. Anyone out there that had there…
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Colloidal Minerals?
Hi, hope everyone is doing well. I was thinking of buying some colloidal mineral supplements to take with my antioxidants. The research seems pretty conflicted in terms of whether they are good or downright dangerous! Anyone have any experience / info about these? Thanks :)
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Erbirash-B-Gone
No Erbitux = no Erbirash, right? Tomorrow is my last chemotherapy infusion for a while. I'll have an eight week break and then have to start chemotherapy again in June (although I have heard about a new drug called Panitumumab that acts the same way as Erbitux but does not cause a rash that is as intense). So, does anyone…
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Cancer Iliterate?
Hello Family, It's Mary from WI; and I've taken a little break from the site here for a bit. I truely hope you all are safe and well. I say a prayer for you all everynight and always! ;) In a nutshell, my first visit with my mom to the Chemo Clinic I balled all the way there, during, and back. Her husband and one of the…
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chemo day one
hi all, just started my chemo treatment today. fanny pack i get to wear for the next 4 to 6 weeks.havent had any nausea yet only 8 hours into it. i am getting bad stomach cramps with gas. is this a side effect or just maybe food choices of the day? wish me luck and thanks for all the support, cherri
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Fluid in Lungs Anyone?
Hi, my dad has stage 4 with mets to lungs is now on Xeloda and he was experiencing discomfort for a few weeks in his back and just found out he has fluid in one of his lungs. Did anyone out there ever have fluid in their lungs? Im curious why something like this would happen. Thank you and best wishes to you all. Mindy
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LDN
Hi, anyone have any experiences using low dose naltrexone (LDN)? Heard great things about it and started it a few weeks back. Too soon to tell if it helps and I was wondering if anyone has used it long term and how it went........Don
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Xeloda
Hi everyone! i'm new to this site, diagnosed with colon cancer 28 months ago. Surgery and chemo since then. I've been taking the infused 5FU-Leuk and was wondering if anyone can compare the infused treatment with the oral Xeloda. Convenience and the ability to stay on a treatment schedule are my primary motivations with…
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kanga to the rescue..revisited
If y'all missed that post go back a page...I been away working and just replied...going for a record number of posts there! (in yah dreams kanga!)
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quick question
Hello everyone, Just a quick question about tumor characteristics. Does anyone know the difference between the differentiations of cancer cells? My dad's onc told us that his cells are poorly differentiated which means that the cancer is aggressive. However, when I read through my dad's pathology report, it said that the…
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new treatment
Hi all Have just learnt that i will be starting a new treatment next week. Weekly dose of Erbitux and irinotecan. So i'll be bald with a rash. yuk! Had a hard time this w/end coming to terms with the fact that lung mets have increased activity. I know that the aim is to stay positive and up tp now, i have been able to do…
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Was away - now back
I haven't posted for a while. I was travelling for 3 weeks, and only just back. I've just been reading through 3 weeks worth of messages -- makes me feel very close to you all, and to value so much this group. It has been a funny time period for me. Almost exactly one year ago, my recurrance was diagnosed. (These…
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Message for Jana
I just got on reading the posts and didn't want my reply to you getting lost. You will remain in my thoughts and prayers and I truly admire you and the fight that you have in you.. Bless us..Hugs to you, Audrey
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Quillan's Immunopower
I just spend several hours reading Quillan's book then scouring his page. I've read some encourging things about his supplements and how they help curb the side effects of chemo. I'm a bit disappointed however after visiting his site that he is pushing the Immunopower products. They are pretty pricey and there is no list…
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My Dr. Appt.
Hello all. Just wanted to fill you in on my first Dr. Appt at Brooks . I am so excited and feel like I am in better hands . My new Dr. (Dr. handsome) oops I mean Dr Jones is great . He looked right at me with a were going to take care of you here look the whole time .In fact my Appt lasted 2 hours . He talked about all of…
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NED??? Confused....
Apr 05 emergency surgery for blockage, dx Stage III cancer, 2/27 lymph nodes positive. Large colon removed and immediately reconnected. 6 mos. chemo completed in Nov 05, April 06 all tests clear and CEA 3.3, bowel movements pretty normal (depending on what I eat). Since finishing chemo, have been mildly troubled with the…
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chemo rad questions
hi all, i will be starting chemo and radiation tommorow. i know everyone is different but can anyone give me a little info on what to expect. how bad is the nausea? can you still work? i have heard that the last week of radation is painful. in what way? any info will be appreciated. thanks again all, cherri
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oxaliplatin reaction
Hi all, Two weeks ago I received my 7th treatment of Folfox. All was going well for about a hour until I started to have an adverse reaction to the oxaliplatin. I broke out in hives, turned completely red, and I thought my head would explode. The nurses stopped treatment and gave me Benadryl and I was eventually able to…
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Cottage dreams
I wanted to let people know of a program we are currently involved in. Unfortunatly it is only in Ontario (not sure how many people are from Ontario), however it is run by the Canadian Cancer Society. People donate their cottages to families who have been affected by cancer, for one week (any time of year). You have to…
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illiostomy reversal
Hello all, Mike is scheduled to have his illiostomy reversed at the beginning of July, as he will have had his last round of chemo (Ya hoo) in May. He has had the illiostomy since Oct. 05. We have heard good and bad on what to expect from the drs. Can anyone help us out a bit? Should we expect it to take awhile for his…