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Pewter, Bob, Monika, SB, Emily, Pattie Et-Al
I finally got some Avatin, which seems to have cntrolled the vomiting, but the diarrhea rolls on.. It is wonderful to get all this feedback and support, 'cause without it, it would be easy to let my imagination run amuk being alone in this cabin in the woods.. All the Onc said when I called her w/vomiting and diarrhea was…
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Not a hothouse flower
Does this group ever have a scheduled chat? Or do you just take your chances. I tried the chat room for the first time last week. I am not a very fast typist so the conversation tends to get away from me. I did not recognize any names and was about to leave when they started making fun of my name. Is it real? What does it…
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blood in stool
when I had my anual exam last month the doc did a rectal exam & said she felt something unusual..then she found blood in my stool. she scheduled me for a colonoscopy...I've have the initial consolt appt. in 2 weeks. anyway...here is my family history: my father had colorectal cancer, my mother, grandmother & 3 aunts had…
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HAPPY VALENTINE'S DAY!
Let me just be the first to tell each and every one of you - Happy Valentine's Day. - Sponge
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thanks everyone--good news!
We got the results of the PET scan today; no signs of cancer in the liver. So, we start the chemo Thursday, 6 weeks on/2 off. 5-Fu and leuco. I mentioned the side effects everyone brought up and he said to definitely bring any of them up if they occurr. Everything positive. Now we're concentrating on keeping good thoughts…
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The Truck
they filled me full of Chemo Monday, and I came home feeling pretty good..so good, I didn't sleep for 50 hrs..the pump came off wednesday, and I thought, gee, this is a breeze.. Then the truck came around the corner, and has been backing up, over and over.. nausea, diarrehea,hand-foot syndrom,fatigue-(I may get through…
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chat room connections
Hi guys--I keep getting "sorry, you have been disconnected from chat server" up on the chat window.I get the window ok and let it load--also get "kangatoo";"enter" come up--but it keeps disconnecting.Any thoughts guys? cheers kanga
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Another warning of sorts
Hi everyone. I've been reading everyone's posts and replies and sitting here laughing and crying and nodding my head in agreement and/or understanding, and I just want to tell my own story and give my own words of warning. In 1996, my grandmother was diagnosed with colon cancer and ended up having an ileostomy. She…
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How Come Everyone Has A Butt?
Sorry guys... Just kind of confused. I read the ostomy message and I'm just wondering how you all have an opening. My butt is completely sewn up! Is this cause it's permanent? All I know is that the doctor told me that "nothing could be preserved", had this really huge operation and now my butt's sewn up... Is this not the…
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Awkward Question for Ostomates
This is an awkward question but I will go ahead and ask. I was diagnosed with and got surgery for stage 3 colon cancer on the left side. I ended up with a colostomy which leaves me about 9" or so of colon aqnd my rectum. Thing is I still get the urge to go to the bathroom and when I do I pass a small amount of mucous. This…
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Chat Room
How do I get there?
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Colorectal Cancer
I am a 3 1/2 year survivor of CRC. I had an operation referred to as a TATA. 1. Any "In commons?" 2. How do I get back to this site?
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important warning!
Hi guys--this is kind of off the cuff but I really think it is important for many of us to pass on. I have been extremely lucky to have had surgery and chemo to rid myself of bowel cancer--Now to the point! I was diagnosed in 1997 with heamharoids(never could spell the word-but you get the drift). The symptoms were…
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The Chemo Club
I know you all have been lurking around waiting for the next installment of "Nanuk's Northern Chemo Adventure".. It's a little room, with comfy chairs and nice people, all smiling and meeting thier hard battles. We talk about the latest silver bullet,then bite our own not-so silver bullet. They filled me up with the metal…
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Refused treatment at MD Anderson
Has anyone ever tried to go to MD Anderson but been refused to be seen? I have been told the doctor will not even see me because of a doctor's policy that refuses to even see patients who have had two chemo treatments (in my case, original cancer + one recurrence) and my type of cancer, a neuroendocrine rectal cancer. I am…
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Oxaliplatin dosage
Hi everyone, I was wondering how much oxaliplatin you guys are getting. I started off with one infusion every three weeks 85mg/m2 and they have bumped me up (at my request however) to 130mg/m2... I'm now starting to doubt my insistence, I really fing that 130mg is quite a blow... Comparing dosages would be useful. Want to…
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chemo & radiation effects
I have just been diagonized with rectal cancer. I am starting chemo and radiation on Tuesday and was wondering what I can expect as side effects. I am hoping to work through the next six weeks.
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Chemo
I start chemo (FOLFOX) tommorrow, and I'm wondering if there is anything I should be doing to prepare myself,etc. The clinic has been silent on this issue, simply telling me to show up..should I eat, not eat, will side effects be immediate? Anything to reduce/minimize side effects? Although I had chemo 3 years ago, it was…
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Neuroendocrine tumor
Has anyone had a neuroendocrine tumor of the rectum, anus, or colon? I was diagnosed with rectal cancer, a neuroendocrine type, in 2002 at age 32, and I am told it is a rare type of tumor to occur in the rectal/anal area. I had chemo, a colostomy, radiation in 2002-early 2003, then a recurrence this past Sept. 2003 in my…
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Heart Warming Story
Sometimes everybody needs to hear a heart warming story. Hear's mine......... I was diagnose in 6/03 with Stage 4. I'm a Teacher Assistant in a public school. The idea of the staff donating their sick time did not pass through the board, although the teachers really wanted to. I basically have been working part time ,…
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port
I feel like a wimp after reading all the trials of others in this club, but still, like Emily, nobody else really understands.. After Emily's good news, I'm really conflicted; the port was installed today without anesthesia-(see, I'm not a total wimp) and now I await the devil chemo monday. I want to cut and run, but…
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I'm Still Smiling :-)
First, my deepest gratitude and thanks to each and every one of you for cheering us on, never giving up hope, and of course all your prayers and good wishes. There's definitely something to be said for positive thinking and prayers. I haven't been able to quite wipe the smile off my face all day, which of course has rubbed…
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newly diagnosed--help!!!
My 68 year old mother was just diagnosed with Stage III, one lymph node of 15 involved. The PET scan for the liver is next week. The oncologist is recommending 5-flurouralil and leucovorin. We don't know what we're looking at...doctor said that the only side effect would be diaherrea. For some reason I think there will be…
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down under
Welcome kangatoo!! SO glad you came out of hiding and joined us. Now you get to join in the group hugs, the venting sessions, the juicing lectures, the banter, and the support we all need to make it through each day as cancer survivors. The other night I was extremely crabby (the night before I went to Mayo Clinic to have…
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"down under"
Hullo to you all.I guess I qualify for a "lurker" too.I have been looking for ages for a great site to chat with others-as you call us-"semicolons" and hope you will accept me into your group. As you will see from my nickname I come from AUSSIE. I am male/ 47 years "young" -have a loving wife of 30 years and 3 adult…
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tests results
Hi semi-colons all, Today as many of you know was my follow-up at Mayo Clinic that I do every 6 months. Today was blood work, chest x-ray, and CT scan. IT WAS ALL CLEAR!!!! NO CANCER!!!!! My oncologist was so happy but told me I cause him so much stress that he was ready to pass me off on another doctor! haha! I mean how…
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question about reoccurance
In December 2002 my mom had surgery to remove colon cancer. It is the beginning of stage three. They were able to remove it all and it had only invaded 2 of the 9 lympnodes. The surgeon said that without any chemo that she had a 70% on non reoccurance but that if she would take chemo it would increase the chances of non…
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Emily
Hi Emily: Hope all went well for you today...I was thinking about you all morning long. Hugs, Monika
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Good News!!!!!
Hi all! As my nimble fingers fly rapidly across the keyboard typing this post, I want to let you know that Bert is sitting right next to me, practically dictating everything that I am about to type (see Sponge...we are making progress). Anyway, we just got back from USC and Bert is CLEAN!!!!!! No evidence of…
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Chemo treatment
I am a 51 year female. I had surgery for colon cancer on 12/31/03. My cancer is in Stage III; there were 2 lymp nodes that were cancerous, and possible blood vessels involvement; because of the size of the tumor. I will be starting my chemo treatments within the next two weeks. The two treatment plans offered by two…