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Caregivers

Archives for October 2011

depressed-help
I am having a rough day, sort of. I know I should not be. I feel like I am just in a war zone. I would think that I would be happy, but I find myself in a bad mood. I am thinking about my mother... last year around this time, I was on a rollercoaster with her. I am sort of anticipating her anniversary death date. I find…
some good news
We got back the rest of his test results today and the cancer hasnt spread! Yay! We went on our vacation and it was nice, there were times when we forgot he had cancer for hours! :) Now we are back and only 3 days until his surgery. Has anybody else had experience with what he is having done ; using leg bone to rebuild jaw…
Website to organize caregivers
I'm interested in setting up a website for those interested in pitching in to help a friend who is sick. The website would ideally identify the needs of our friend that people could volunteer for/sign up on the site. Do you have any suggestions?
Time to introduce myself
My wife found this site and suggested that I start getting help with our journey. Tracie is a stage 3 endometrial cancer patient. She has had her hysterectomy and we are waiting to start treatment. We are in the beginning our journey now and are trying to get information. It has been a frustrating journey starting with how…
+ When Your Loved One Isn't Very Loveable
I've recently read quite a few posts regarding patients who are difficult with their caregivers. I thought the article and site pasted below might be helpful to some of you. I've read so many of your stories and frankly don't know if I could handle it if I were in your shoes. Thank you from the bottom of my heart for being…
Too much Chemo for the rest of life
Hey, I posted this somewhere else, but maybe you all can help. My husband, stage iv breast cancer, mets to all bones was told that he had to be on chemo for the rest of his life. He has treatment every 21 days. We have been going through this since September 2009. He was 41 during reocurrence, but he looks like an 80 year…
I want to do the NED dance with Jim!
Hey Jim, Don't you think that I forgot, cause I didn't! Wednesday is coming soon and I am pouring all my positive energies towards your CT scan! I will pray and pull for a NED! Will you do the NED dance with me? LOL. Anyone else want to do the NED dance with Jim? Come join us! Hugs, -Michelle
Thought I would share another view...
Hey all, I found another good read on Denial. This one is also very informative for caregivers that are struggling with their patients whom refuse to take their heads out of the sand. I have pasted it below. Hugs! -Michelle Denial as a Coping Mechanism ------------------------------------------------------------- Posted by…
Scene from HE11
One chemo sick,'roid raging cancer patient(DH) and a menopausal caregiver (me). Cancer sucks
Twilight Zone
The nurse said you need to call hospice, it's coming and it is going to be quick. Well that was four weeks ago, that is not my definition of quick. She went into psychiatric distress for three days, which was a nightmare for both of us. Thank God for a great nurse, we have changed medication and that is helping. Watching…
Assistance to Cancer patients in Berks Co. PA?
Hello, If anyone could offer knowledge or share experiences, I would be beyond grateful. My great uncle (who is in his 80s) has stage 4 lung cancer and lives alone. He has received radiation and will not continue chemo. He relies upon my mother (who works FT and lives over an hour away) to assist him with cleaning,…
Venting....................... Ok whining
Ok so I know this is probably not the best place to air this dirty laundry but I have nobody to talk to about it. Nobody to say hey your being silly, petty and immature. So Tasha (my partner) finished her treatment as of July 11. 2011. We were given the go ahead to you know as of Aug. 26, 2011. We still have not. I know…
Who really knows how long you will live?
Good evening all...I am just frusrated this evening..its been brewing for a few days...my dad is 77 yrs old with stage 3a non small cell lung cancer.I am so upset with some doctors who say he has 18mo to live, then I hear possibly 2 years to live,once I heard 12 months w/o treatment.My dad,mom,husband and myself have been…
Unusual 4th Stage Stomach Cancer Patient- Amazing actually
I am not really sure if this is the correct forum to post this inquiry. I have a rather unusual, perhaps it is not unusual. I have a dear friend whose Grandmother has 4th Stage Stomach Cancer, which has metastasized to the following regions: 2 mets on both lungs, liver, bile duct, and several clusters of tumors in her…
Pulling for lots of prayers and hugs for Rita in her loss!
To all, I post in request of prayers and hugs for Rita (ritawaite13) as her loving husband Greg, has passed. She will need our prayers and support to help her through and to lift her up. Hugs to you Rita and my heart is with you. Much love to you! -Michelle
Sad Eyes
those beautiful chocolate brown eyes are full of sadness & she tries so hard to hide it with a smile. I've never seen anyone loose muscle mass so quickly. I'm still angry , but just too tired to feel it any more. I just know it's there. my hope for a miracle or divine intervention is fading faster than she is and I feel…
Doing the Happy Dance because I got FIRED!
I posted this on the Colo/Rectal Board, but had to share with my fellow caregivers: This is just a morsel of good news, but I feel like maybe we reached the top of the mountain today and are beginning to roll down. I know, you are all saying, what is she blabbering about? Surgeons visit today was great. He fired me from…
Rollercoaster ride again
Hospice gave my Father in law 5 to 14 days last night. (CA liver) it is tearing my wife up(like its not bothering me?) She has spent the last 9 out of 14 days in the hospital and is just now starting to get her strength back. She feels like she is not helping her mom or family with her dads final trip. She has been…
A good day with Mark
After yesterday's disaster. Today is a much better day. He is staying on the blow up mattress and is not in any pain. His blood sugar level is a bit high but I am taking care of that with the sliding scale and doing a good job. Today while I was talking my nap (I do when he does) I was on the couch and he grabbed my hand…
I'm losing my battle to be strong for my husband
I am so lonely and lost these days. We don't have much hope and I am trying to be strong for him but when he tears up at the least little thing it breaks my heart. We made a purchase of a large item and I was going to put it in the car and a man came by and asked if he could put it in the car for us. When he finished he…
What a day today!!!! My poor Mark!
Hello all, So this morning started out really rough. Mark was screaming in pain at 4 am. He took his morphine but still felt like he was "on fire". I called hospice and they said to give him another dose of 1 ml which I did, that settled him down a bit. He asked me to rub hard on his back/spine between his shoulder blades…
Introductions are in order...
Hi all, I decided that I should formally introduce myself after seeing all of the posts that my "Check Posting Date" post started. It's nice to see that the people on this board have such introspective and thought provoking discussions. Not to mention that everyone seems quite respectful of each others point of view - very…
Just wanted to introduce myself
Hi I'm the primary caregiver to my partner. She was diagnosed with Cervical Cancer Stage 4a with a 6 inch tumor that invaded her bladder which has left her incontenant in March 2011. She finished chemo, radiation and braky by the middle of July. The cancer specialist think they got it all and should be ok but we wont know…
venting.......................
Spent all day yesterday getting his MRI, CT, bloodwork, xrays,met with the anesthesiologist. It was very stressful for both of us, I didnt know that I couldnt even wait with him for the hour he had to sit and wait after getting his IV and having the meds put it. I think I got my first taste of what this is going to be like…
What am I so upset over....
Hi All, Had to post this as a couple of earlier posts really got my goat. I find myself trying to understand my position as a caregiver, and why I don't seem to be having the same frustrations that I see posted here very often as a common thread. Earlier I read a post that was out-dated and it really charged my inner…
Check the posting dates....
Hi All, I usually post to the Colorectal board, but I've been stopping by here for the past week or so to read the posts from fellow caregivers. However, as I was reading the posts just now, I realized that a few of the newbies have been posting to posts that are over a year old. When this happens on the other board it can…
Every moment with Mark is a blessing
Mark said outloud (and to me) when I gave him his 11 am meds, "I am ready Lord, even though I don't want to go, I am ready." At that time I said "I don't want you to go either but you have my permission to go." We embraced and I cried. He said that he has the best wife in the world and he hates leaving her but it is…
Rollercoaster rides
Along this journey, I have become sick of the rollercoaster ride. When I was younger I loved the thrill of the ride. The ups and downs---the suprises that overtake one as they mount each hill. Since my husband has had this second bout of cancer, I am beginning to hate the rides. The waiting and anticipation of each new…
Newbie-Can you understand me?
I am so glad I came across this sight. I felt like no one understood me or the pain that I am going through. Here, I found that many of you do. I am the only caregiver of my 43 year old husband who has stage IV breast cancer with mets to all of the bones. This is our second go round. Sept. 09, the cancer revisited. I lost…
hello. Im new here. My Husband has cancer.
Hi. My name is Stephanie, my husband is Joe, he is 39 and has just been diagnosed Again with Oral cancer. He had his first one when he was 32, I wasnt with him then so it is all new to me. We are just on the roller coaster of emotions right now. I am trying to stay positive but he is either gloom and doom or pretending its…

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