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Caregivers

Archives for September 2010

Feeling kind of numb
Hey all, I have been thinking about you all and hoping you are doing ok. My husband has Liposarcoma in his leg.. I posted before, but we went to Roswell Park in Buffalo to meet with a Sarcoma specialist. He said the odds are 85 percent that he will be alive in ten years. (5 percent of that is with disease) so 80 percent…
The day the music died.
My wonderful wife of 52 years passed at 08:46 today.What a fighter but she went peacefully.See you in Heaven Babe,Love dave
The "New" Normal
It didn't take long for me to begin to despise that term. Normal in any shape , form or fashion is gone. With it went spontaneous interaction. Nothing just happens any more, everything is calculated and thought out before hand. What I say, how I say it, when (if) I say it ........ ! ! ! Everything has become a chore, no…
Frustration!!!
Ugh. We had an argument last night because he is refusing to leave maessages when he calls the doctors office, and is angry that he can't get thru to speak to a person. (Veterans Affairs)So I told him that I didn't think he was proactive enough in trying to communicate with the doctors, that he has to leave voicemails and…
Chat.are you using it?
davexx Posts: 25 Joined: Sep 2010 September 27, 2010 - 9:08am I would think more people would be on thruout the nite.When your up and alone it's a good way to get a quicl response.I,m sure there are people here from all over the world that are up at any given time.It took me severay lonely days to find it and I am…
New to all of this...
My fiance was diagnosed with testicular cancer 18 months ago and after having surgery was deemed "cancer free". He continued with his regulary scheduled follow up appointments and we recently found out he had a recurrence. He has stage 3 testicular cancer and is now beginning his chemo treatment. He goes for 5 days, for…
Daily Imodium
This is my first post on here. My mom was diagnosed two weeks ago with melanoma that spread to her lung and brain. She had two radiation treatments and decided to stop treatment and receive hospice care at home. She is 81 years old and is living with my dad who is taking care of her. What is unnerving is that she is…
Lung cancer
Hi, I am new to the site. I found this website very interesting. I thought I was the only one (well you know what I mean) going through the hard times as a caregiver. I am taking care of my Mom. She has had a 2nd lung cancer removed this Spring. The one before was in 2007. She is not very strong and has zero energy. We met…
Mom's Battle has ended
Sadly, my best friend, confidant, my rock..my mother lost her battle yesterday. She was never in pain and was released from this world in the comfort of her home surrounded by all of us. Thank you all for your support over the past 6 months....much love, Elysia Be good to yourselves...
stage4
im a caregiver for my husdband who has stage4 liver colon cancer i dont know how to do all of this and is there any caregiver out there that knows of anyone who has won with this satge of cancer .
Caregivers using baby room monitors.
I have onlyy been a caregiver a little over 2 weeks,1 of the first things I did was by a baby room monitor so I could hear my wife call. I went thru several and they all had a lot of static etc.I fianally found one that is wireless.has a unit in the room and a portable unit you carry around and can talk back to the other…
How to cheer up my depressed family and myself?
Dear all, Before we found out that my mum has cancer, my family had always been depressive. We are all loners. Have no friends. Stay home all the time. My dad has always been abusive, and my mum never stopped him from hurting me. Now that my mum has cancer, I feel the huge responsibility that I have to bear to take care of…
Someone please help us
My brother was diagnosed with Metastatic Pancreatic Cancer on August 16, 2010. The local oncologist said that he had 3 week to 6 months. He went to Moffitt and the doctor's there said that if he started this chemo treatment he could have up to 11 months. He is in so much pain, his stomach is so swollen he looks as if he…
Acceptance
I've been working real hard to find this in my life lately. The feelings that come with it pass through me in great waves and there are days that I find myself kneeling on the floor with deep emotion. This life shouldn't be filled with so much suffering. At least not in 1 year. This man, my husband who for 10 years has…
funk day
ever have one of what I call funk days, well this is mine and I hope I don't have them to much. Like everything around me I just can't get into it. Cooking , Cleaning (With O.C.D) not a good thing. Husband is the one sick ,he laid down today .I set and worry. I just can't seam to find words or feelings. It is like why why…
How do you handle it?
Was told by hospice today my wonderful wife of 52 years has days to hours left.She hasn't eaten in 2 weeks.Trying to keep her comfortable.That's all we can do.I still can't beleive this day has come.Don't know what to think or say.How do you cope.dave
My dad is a very difficult patient
My dad has Stage IV pancreatic vs Gallbladder cancer. Unresectable. The big issue now is that he REFUSES to alter his eating habits to accomodate his digestive problems. He insists on eating like he's always eaten: pastrami, polish sausage etc, etc. I took him to the ER on Monday because he was heaving and having level 8…
2 down, 8 more to go
Today was the second day of brain radiation. So far, so good. My hubby has been blessed with no side-effects, just a slight headache early this evening, which was handled with Tylenol. To kick-off the treatment, our dear son took us to Dallas to see the Bears and Cowboys game. The Bears won, which is a good thing, since…
Came Home for Hospital Today!
Much to our surprise, Bob was released from the hospital today, only six days post-op. Originally told 7-10 day hospital stay but docs say he is doing so well, they kicked him out. He came home with a trache, feeding tube, donor site skin graft (gross), rebuild wrist area with skin from donor site (thigh), and of course…
Needed Prayer For My Mom
Hello fellow caregivers, Most of you know me here from being a caregiver for my dad. Now it is my mom's turn. She has been diagnosed with a leaking heart valve, and P A D. P A D is peripheral artery disease. This means that the arteries in her lower legs are blocked. I am reaching out to all of you for prayer. We are going…
how do you know it's the end?
I brought my 88 year old grandma ("Nanny") to live with me back in the end of August...just 3 weeks ago. The reason I brought her here was because she's got Alzheimer's Disease. Well, I just kept noticing things that made it seem like something else was wrong, so I took her to the doctor. After a week long hospital stay…
Recovering On Schedule
My husband appears to be recovering on schedule, according to the doctors. I'm not sure what I expected, but I didn't expect THIS. Wow... this really knocked him for a loop. Surgery was Wednesday (this being Sunday I think, my days are all merged together!), and he is just now really coming around. The catheter has come…
TWILIGHT ZONE
HI EVERYONE! I'M ONLY THREE WEEKS INTO THIS JOURNEY AND AT TIMES I FEEL LIKE I'M HURLING THROUGH SPACE AT LIGHTENING SPEED AND AT OTHERS TIMES JUST FLOATING AIMLESSLY. MY HUSBAND HAS BOT CANCER BUT STILL UNDIAGNOSED. GOIND IN AM FOR SECOND BX TOMORROW.I'M WRITING TO YOU TODAY BECAUSE ..... EVERYDAY I WAKE UP AND SAY TODAY…
A place that tears built
Hello, We are trying to get volunteers together that would like to help with a special project for terminally ill patients and families. I had a mother and daughter that was diagnosed with cancer and sadly have lost both of them, however, my husband and I are looking to help others that are currently going through…
What Timing
Well, friends, what timing it was for your words of wisdom the past few days! Because of you I took some time to have a "me" day and refresh my soul. Thank you all. Today, we learned the results of my husband's bone scan. He has cancer in his bones. Dr. says it's too soon after his firstline chemo to start chemo again, but…
Blood Clots around the port
Has anyone had any issue with this? How do you avoid it? My mother was put on Cumodin (?) if there is any suggestion or comments anyone has to add they would greatly be appreciated. -Ketz
Traveling Domestically for care...
Hi Everyone - I was wondering if anyone here had any stories to relate to me about traveling domestically to receive treatment? What are some things to consider in deciding where to go etc? Thanks so much.
Tomorrow is the Day - UPDATE 9/16
Tomorrow my husband will have a big hunk of his throat removed where the tumor and cancer is, some lymph nodes, a flap taken from his arm and put in his throat (to cover hunk removed), and a skin graft from his hip to cover the flap taken from his arm. He'll get a trach and won't be able to swallow for several months if…
I feel tired and alone
For the last 6 months, since my husband's sclc diagnosis, I have cried, I have been by his side through it all. I have spent endless hours on the computer searching and researching,while he sits and watches sports and re-runs, and then tells all that "we" found this, and "we found that. I kiss him, I hold him, I tell him…
When this is over, will I ever be okay?
My mom was diagnosed with OC two and half years ago. She has defied all odds again and again, but I can not tell the cost on her, my sisters and me. She is scared of dying and has made it clear she will fight until the last breath - no DNR and we are NEVER to "pull the plug" no matter what. She has been completely bed…

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