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Breast Cancer

Archives for August 2012

Changes in skin after chemo and radiation
Since I've completed chemo and radiation, my face, forehead, and neck have a rash that I cannot get rid of. The dermatologist says its exzema. Usually something helps with exzema, but nothing is helping with this. I don't use soap b/c I have sensitive skin. Has anyone else experienced this? Thanks for your help.
Has Anyone Heard From Kari, pinkkari ? KARI POSTED AN UPDATE ON THIS POST
I haven't seen her post in a very long time and pray that she is doing well. If anyone hears from her, would you please let us know? Debby
New Flower... How are you doing?
Let us know how you are doing. You have been on my mind. I know you have been busy with life, but please drop a line and let us know how you are doing. I hear you received a little something in the mail as well. Those Pink Angels are truly ambassadors of good will. Big hugs to you Dear One. Love, Ines
tamixofin = thirst and frequent urination?
I starated Tamixofin as well as Vitamin D supplements a week ago. Since then, I've been up nightly having to urinate at least hourly and extremely thirsty. Has anyone had experience with this? Is this a common effect of the Tamoxifin and/or Vitamin D? I've taken Advil PM to help me sleep in the past, but the teaching sheet…
Get news over the PHONE
I know this is now over 4 yrs...I LOVE LOVE LOVE my OB/GYN. I have been with him for over 20 yrs (reason I had my 2nd daughter-now 20) Just curious If anyone else was told over the phone about their BC? For simple BLOOD tests I must make an appt with all my drs to hear all ok...! With BC "I remember like yesterday word for…
MRI biopsy positive--please help me with what to ask surgeon tomorrow
Well, I was crying for myself before I read dear Carol's post, then crying with her, now crying for both of us. Just got a call from my surgeon's nurse--MRI-guided biopsy done last week is again positive for invasive ductal carcinoma. I'm numb. I've been on Faslodex injections and Zometa infusions since January when they…
Two new articles re treatment of ER+ metastatic breast cancer
1) First, from The New England Journal of Medicine, a study combining faslodex and arimidex in the treatment of ER+ mets: "The combination of anastrozole and fulvestrant was superior to anastrozole alone or sequential anastrozole and fulvestrant for the treatment of HR-positive metastatic breast cancer, despite the use of…
Didn't have to make the decision....
My doctor made it for me. Today I had my appointment with him. I was scheduled for chemo, Herceptin, Decadron and Xgeva. I had my vitals done, was accessed, my nurse started the Herceptin. Then I went in the examining room to wait for the doctor. He came in and asked me how the week went. I told him I had the low-grade…
Facebook Page
Is there a good face book page for Breast Cancer group? Sometimes I find it very difficult to get on this site. I don't know why some days it just won't load for me. Thanks Sandy
smalldoggroomer Update (Another update 8/12/12 & 8/13/12)
Hi everyone, Kay asked me to pass this information on to everyone: "As you may know I just found that it is probable that I have Mets to my lungs. I most likely will be getting my port back in tomorrow. I hope I can start treatment then to, If not Tues. I will have all the answers tomorrow. Just trying to stay strong and…
The sweetest gift I ever received.
I haven't been volunteering at our local animal shelter since diagnosed in May 2012. My friends just brought me a present. Apparently over the course of weeks they saved any fur that was groomed off of the rescue dogs, laundered and dried it in the sun, packed it in zippered bags and stuffed a pillow with it. On the…
warning...I'm gonna whine
I HAAATE decadron! I've only gained 4 pounds on the scale, but my stomach feels so bloated and fat ALL the time. I'm eating even when I'm not hungry, eat to the point of feeling simply gross. I'm having muscle cramps in my hands, feet, and legs. On one level, the decadron makes me feel totally anxious and jittery. I'm…
Need emotional help dx w/tnbc
I only turned 40 last November and was dx with tnbc back on 6/28/12, and I am going through a really hard time. I have done all my research and know what is ahead of me, but I find it hard to plan for the future when I don't know if I will have one or not. According to my surgeon I am a clinical 2/3 cat 3. MRI and CT scan…
Today is JoAnn's Birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR JOANN HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! Hope your special day is all that you hope for! ♥ Cat
pathology report
BIOPSY FS: Left breast-Wedge Biopsy FS diagnosis: Infiltrating duct carcinoma Received single bit aggregating 0.5 x o.4 cm. IMPRESSION:- infiltrating duct carcinoma,grade 3. Modified R B score 3+3+3=9 Desmoplasia necrosis and calcification are seen. ON IMMUNOHISTOCHEMISTRY ER= POSITIVE(80% tumor cells show nuclear staining…
Can't afford Le sleeves
Since Medicare doesn't pay for LE sleeves, I can't afford the two that my LE therapist ordered. Other than asking for patient assistance from my medical clinic, is there any other organization that will help pay for it? If I can't get help, I can't buy the sleeves. If anyone is interested, there is a webpage lobbying your…
OT - anyone coming to The Rally? (Sturgis, SD)
I asked before but it's here now - so is anyone coming to Rally? Sturgis is the 'GrandDaddy' of biker rallys.
periods
I stopped having my period after my first chemo in April, I had four infusions of taxotere and carboplatin which ended late June. I'm still waiting to see if my period comes back or not. Anyone have this happen to them? And if your period came back, how long did it take after chemo ends?
Have some concerns and just don't know how to address them
I had lump. with targeted intraoperative radiotherapy on 7-17-12. I am slowly recovering. Due to heart condition, I was unable to stop blood thinners. I have a hematoma in the tumor bed. It is very sore. I am so bruised and the area where the tumor was removed is still very swollen, bruised and very warm. I hate the…
Mets
Having pain at top of spine. Had similar before but didn't last for months. Exercise could be the cause but unsure as very careful at gym. Plus experiencing shortness of breath, age, weight gain (Tamoxifen has caused), or something else. Getting x-rays and scan next week. Hope not wasting everybody's time but would feel…
Hello Pink Sisters
It's been a while since I've been on CSN. I do communicate with a lot of the gals on FB, but have a hard time getting on to CSN. This evening has been a breeze-cant believe I havent been knocked off yet. I always think about you gals. Heard from Sunrae the other day and must get back to her. I see that Cypress Cynthia…
First app. w/new onco..Good and not so good
Stressful afternoon, I always get soooo anxious and nervous...luckily my husband was there.I was having some doubts about my oncologist so I went back to the cancer center where I was originally treated, but saw a different onco... He was very direct and almost short and curt, basically admonishing me for leaving the…
Doctors nonchalant after treatment care ...
I apologize in advance for this being so long-winded, but I need to vent. I'm so glad I found this place, didn't even know it existed til today! I was diagnosed in 11/08, stage 2B, ER+, in ductu left breast – because of my Mom’s breast + colon cancer and my large, dense breasts, I underwent a bilateral mastectomy with…
MsGebby- where are you?
Kinda getting worried....
life DOES go on
I was noticing cancer survivors in the Olympics so I did a small search. At least 2 of the USAians are testicular cancer survivors and one of them also had melanoma. I forget which is which but one is a cyclist and one is a swimmer-both male obviously. I just thought it was interesting and a bit uplifting that cancer…
estrogen + and sweet potatoes????
I just heard a Dr. on tv say that sweet potatoes raised your estrogen levels!!!!!!! have any one heard of this,I live on those things omg!! cypresscynthia please let me know anything you know about this ok. others welcome too!!~~MollyZ~~
Sleeved UPF SWIM WEAR
I have recently had a Lumpectomy with some Lymph Nodes removed, followed by Radiotherapy. The advice is not to expose the chest and arm area to sun rays for at least a year. We already had a planned holiday in the sun! I looked around for suitable swim wear that was both attractive and suited my purpose. Did not find…
Sleeved UPF SWIM WEAR
I have recently had a Lumpectomy with some Lymph Nodes removed, followed by Radiotherapy. The advice is not to expose the chest and arm area to sun rays for at least a year. We already had a planned holiday in the sun! I looked around for suitable swim wear that was both attractive and suited my purpose. Did not find…
PINK BUS FOR CHEN TOMORROW PLEASE
Just heard from Chen and she asked that I share this update with all of you as her computer is still down: This is claudia, I had chemo on tuesday and my lungs drained yesterday morning but I ended up in the e r last night with severe abdominal pain and vomiting. I was there until about 2 am. I got the cd of my results and…
Thank you kindreds!! I feel so loved and special.
When I got home yesterday, there was a box waiting on my doorstep. Our dear Ayse STUFFED that box...two lovely angels one for me and one for Abby, a book and CD's (which I'll save for chemo), a journal, blinged out keychains, two soft cute hats in colors I needed, a water bottle to stay hydrated, and a beautiful tote bag…

Breast Cancer

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