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Anal Adeno Carcinoma
I was diagnosed with Anal Adeno Carcinoma in March 2018. I'm currently receiving chemo (using Xeloda) and radiation treatment at St. Joe in Brighton (MI), which is using their brand new (one month ago) radiation contraption. I would like to compare notes with either someone who has or had the same or similar diagosis or…
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ASCO meeting abstracts 2018
ASCO (American Society of Clinical Oncology) annual meeting is next week. The abstracts are searchable. More info for colon and rectal cancers, and a few for anal cancer. Possibly more for us from The GI Symposium sometime later in the year. One interesting abstract compares 5FU and capecetabine(Xeloda)…
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The Empire Strikes Back.
Greetings, everyone. It seems that I come here only when I have problems. I regret that. However, today is no different. On the 4th anniversary of my anal cancer diagnosis, I had a follow-up CT scan with a lymph node that the radiation oncologist thought should be further explored, "just to cover things". I had a full-body…
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Anal Cancer
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Folate level & B12
Anyone have a high folate level? B12 was in normal range, I'm 6 week post treatments.
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bleeding after digital exam
Hey guys, So I had a huge biopsy done 3 months post treatment and all came back as scar tissue. BEcause of the huge bipsy I haad a painful fissue for two months. After that healed I went in for another digital exam and he felt a lot of scarring and smthing on the other side that he was nt too concerned with...that is where…
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Having Patience
I'm 6 weeks post chemo & radiation, what a whirl wind this has been I don't think I'm dealing with everything yet! How to have patience for the next year whilke this tumor shrinkjs and disappears completely! Positive thinking is my task but it's so hard! I still have some skin issues and itching, my energy level is getting…
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Biopsy again?
So I have finished treatment in December and when the Radiation Oncologist did the digital exam he still felt something where the cancer was. I was pretty agressive with treatment and excersied a lot following treatment and even during treatment some. Walking 3 miles a couple times a week etc. So in March he had me go in…
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Post Treatment side effects
As I have mentioned in the past, I was diagnosed with squamous cell anal cancer in December. I started treatment Dec. 27, flourfouracil and mitomycin with 7 weeks radiation. Post-treatment Pet and MRI show NED and two months after treatment I was feeling pretty good. But now I'm getting a whole new set of issues that may…
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Treatment started today!
Hello everyone. I had my first radiation and chemo infusion treatments today. Radiation 5 days/week, chemo pills twice/day. Wow! Help!!! Is coconut oil good to apply daily after radaition treatmemt/does it help? I also have Aquaphor. First treatment so no skin irritation yet. Want to be as prepared as I can. Any…
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Mom one year out from apr for recurrence
Hi all just wanted to check in, my mom was initially diagnosed in Jan 2015 stage 2. Treated with standard treatment, jan 2017 started with bleeding and pain again ct and biopsie showed recurrence. She was tested in May 2017 with an apr colostomy, she has been doing much better but we went to a different dr for oncology for…
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Were You Told Your Odds of Cure Before Starting Treatment?
I have not yet commenced treatment (apart from some naturopathic treatments I am doing). When I met with the radiation oncologist last month and asked him what my likelihood of cure was from chemo-radiation, he gave me several scenarios. But basically, the most realistic scenario places my likelihood of chemo-radiation…
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No more radiation treatment for life after doing RT for anal cancer?
Just wondered if anyone here has been told this by their doctors - that after completing radiation treatment for your anal cancer, you will not be able to do more radiation therapy anytime in your life for any future cancers because that would be too much radiation exposure. A friend of mine who was recently successfully…
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Has Anyone Explored the Immunotherapy Drugs?
I have been researching the new immunotherapy drugs as a possible alternative to chemo-radiation treatment for anal cancer. I am talking about drugs such as Keytruda (pembrolizumab) and Opdivo (nivolumab). There are others. Has anybody here gone this route for anal cancer? Perhaps via a clinical trial? Or via some…
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Beginning Week 9 - Update
Thanks to all who have offered support along the way. It's much appreciated! My last day of radiation was April 18, so it will be three weeks post radiation on Wed. May 9th. My bottom is still sore and very itchy, but slowly getting better. I am so impatient! Not too many other issues. I tire quickly and lost a bit more…
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NED 6 months - New Member
Hi! While I am a new member now, I have been reading the posts in this forum for 8 months. And all of your tips really helped me get through it. On June 9th 2017 I awoke from a colonoscopy (thought I had a hemroid) and was advised that I had a large anal tumor. I was handed contrast to drink and was immediately escorted…