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Day3
So today is day3. I feel like I just got run over. Had a bit of rectal bleeding last night that completely freaked me out. Then today slight nausea - seems to be getting worse - headache & fatigue. I guess I didn't expect it this quickly. xokb
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is it really gone?
Hi all, My mom just went today to her colorectal surgeon who orginially diagnosed her (since the first idiot 3 months before misdiagnosed her). We walked into the office he said what are you doing here already? She told him, his office called her to book the appointment 3 weeks ago. He said he didn't think it was long…
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Newly diagnosed but I have no real information
I was relieved to have found this forum. Thank you! I don't have any real information about what is going on in reference to my diagnosis which was 'officially received' April 9 of this year. Here is how the story goes. I had a colonoscopy on March 26, 2015. I had no plans of having one but in order to diagnose some upper…
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HPV from husband's affair
I have been married 12 years. I accidentally caught my husband 56 year old having an affair. The affair lasted 15 months. The woman, an ex girlfriend, lived just 3 blocks away and he was begging her for sex. They both swear they did not have sex, that it was only text, pictures and phone conversations. The woman died a…
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Has anyone gone deaf from cisplatin
For those who took Cisplatin, what were the worst side effects you had. My cancer has now spread to my lungs, even after I had an APR which had only a 50% chance of working. Now the oncologist wants to put me on Cisplatin but was told early on in my treatment how bad the side effects will be, losing my hearing, shutting…
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Finished treatment 9 days post anal cancer treatment
Hi there, Just like many others, I've been going through decussion board after discussion board making sure I'm doing the things that so many of you have recommended. Thank you for this site. It's my go to when I have questions. I'm 44 years old and I was diagnosed at the end of February this year. I started my treatment…
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Nervous
I had stage 3b and was treated with the standard protocol almost 2 years ago. My last CT scan was 5 weeks ago and everything looked good. I just found an enlarged lymph node just above my collar bone on the left side. I have no other signs or symptoms of any illness or infection. The node is only about the size of a pea…
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New kid
Hi all, Just started reading here and wanted to share. I have stage 4 diagnosis January 2014. First dx was July 2010. The last couple of weeks I've spent looking up info about clinical trials and financial assistance. I've been through four different chemo drugs and now showing slight increases in lung and lymph node…
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General pains and paranoia
Hi guys, Just wondering if you guys also experienced random pains post-treatment? My mum is now 6 months out and she still complains of: throbbing pain where she had her tumour, mucous, a bone pain in that area which we believe is pressure pain from initially the tumour and now the inflammation or scar tissue. She also has…
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results of 3 month ct scan
Hi everyone, I see there are quite a few new people on the board. I was stage 3b when diagnosed in 2011. I was too ill to take as much chemo as was called for and so they cut back my dose. I had a spot on my lung and have been on this board about that ad nauseum for the last year, particularly when it suddenly "waxed." I…
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Aren't I Special?!
A couple of weeks ago when I developed a lump in the middle of my calf, which the ultrasound showed was deeply embedded in the muscle, of course I panicked. Don't worry said my oncologist, anal cancer never metastasizes to the extremities, it must just be a cyst or something. My radiation oncologist, two nurses and even…
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Pializ
Pializ - If I remember correctly, you have some tests/appointments in this week. I'll be thinking of you and sending positivie energy across the ocean to you. Thoughts, prayers & well wishes, Tracey
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Can I work through it?
Well I guess my "team" has gone into action mode. I just got the diagnosis & plan on Tuesday. Today offices are calling to confirm my appts - ct scan, radiologist consult. Surprise, surprise! They must know about my tendency to procrastinate. What do you all think about working during the chemo/radiation? I'll be having…
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normal?
Hi all, Just talked to my mom from Florida she said while she is feeling a little better, her anal area and inner cheeks are still raw? Her thighs and "other" area has healed. Is it normal for her a month out to still be raw?
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So f'ing close
I am so f'ing close to 5 years. Seriously, weeks. 2 weeks ago went to colorectal spec, yep definitely an anal tumor. I had one (mailignant) removed with clear margins in 2 surgeries 5 years ago. So a week ago I underwent a colonoscopy...2 (tubular)polyps-benign-and the tumor(cancerous). The polyps were removed in the…
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Recurrance treatment update......
Hi all, I have not posted as often as usual lately but wanted to let you all know I am doing fairly well. After being diagnosed in January with a recurrance (4 yrs post protocall treatment for Stage 3b anal ca) in my lung (3.5cm yikes!), I had my left lower lobe removed, margins were clean, and I am now half way through my…
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Scanxiety
CT scan tomorrow. It's been 6 months since the last one and 15 months since treatment ended. Of course, I am going back and forth between thinking everything will be fine and all the other options. There are many of you going through difficult times, I am sending positive thoughts to all of you. I'll keep you posted. Judy
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Immunotherapy clinical trial for metastatic or recurrent HPV anal cancer.
"T Cell Receptor Immunotherapy Targeting HPV-16 E6 for HPV-Associated Cancers", NIH Warren Grant Magnuson Clinical Center, Bethesda, Maryland. http://www.cancer.gov/clinicaltrials/search/view?cdrid=766103&version=Patient&protocolsearchid=8032352
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Looking For Input
Hi everyone, I'm sure these posts get annoying but I'm worried and am waiting to see the doctor again. I'm a 27 year old male, overweight but loosing weight due to a change in lifestyle and diet. I've lost over 50lbs in the past year or so. Anyway, about a month and a half ago I started having some pain that I thought were…
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pads
have any of you found a brand of pads that are long enough to cover the whole radiated area, but especially the butt if so, please note the brand and the model I keep buying pads that are really not sufficient
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Anal / rectal stenosis?
I have not yet recovered from the pain of the last scoping. As a matter of fact, the pain is getting worse. It's not just that fissure site that hurts, but my whole anal vault is painful and throbbing after passing stools. They are more formed these days, though far from firm, and each go-time is dreaded. I pass blood and…
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after treatment
Hi all! I just wanted to start off by thanking all of you for the support through this whole ordeal! i truly feel this site kept my sanity and enabled me to.be the the rock my mom needed. When i talk with family and friends about this site i try to explain to them how i am more of a true story, real life person for advice…
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Been gone for a while; just checking in.
Hello all. I haven't been on here for 18+ months or so, and I actually don't know what I did to my phone to bring up the site, but I figure things happen for a reason so I re-registered as there was no way I remembered my password. LOL! First off for the newbies, I am almost a six year survivor. I started tx 4/13/09; two…
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Targeted Therapy
Has anyone had targeted therapy and how did it go? My oncologist has sent off tumor tissue to Foundation One for genetic testing and they are supposed to nail down all the mutations at the molecular level and then they search their database for the chemo drugs that are most likely to be effective (or won't be at all…
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Anal cancer now Melanoma
In 2012 I was diagnosed with anal cancer and was overwhelmd with the support and help I received from people on this site. I wasn't able to complete the chemo treatment due to a bad reaction but did finish the radiation. All my check ups since then have been clear.Last week I had a biopsy done on a mole on my leg and have…
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Stupid Question
Has anyone heard of anal cancer metastasizing to the muscles? I have stage iv with mets to liver and I now have an egg sized lump at the back of my calf, right on the muscle. I'm going for an ultrasound tomorrow and my onc says he doesn't think its cancer, but then I've heard that one before...
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PBS Special - Cancer the Emperor of all Maladies
There is a PBS documentary on this week called: Cancer - the Emperor of all Maladies. I think it is 3 parts, maybe four. I am watching the 2nd one now. It traces the history of cancer. So far I am amazed of how far we have come and appreciative of the many trail blazers, doctors, scientists, and philanthropists. On the…
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Anyone had an APR after reoccurrence
anyone?