Anal Cancer
Discussion List
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Vaginal dilators - sources and information on use.
[I could have sworn that I already posted information about the Soul Source site, but I can't find it utilizing keyword searching. So, forgive any reduncy.] The radiation oncologist's office gave me two 6" long dilators from Syracuse Medical Devices, a small (~7/8" diameter) and medium (~1-1/8" diameter). They are solid,…
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HAPPY THANKSGIVING!
I am thanful for all of you. And remember, no matter what you are going through, you are much better off than than the turkey sweating grease in your 350 degree oven lol. Laz
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Positivity and its benefits?
Hi guys, Ages ago when we were chatting to the consultant, he mentioned that though it isn't yet scientifically proven, there is a benefit to being positive on cancer patients. Something to do with chemicals in the brain, he said that those who are positive do a lot better. Does anyone know about this? If so, can you…
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Strep B UTI
Hi everyone! What I thought was a bowel obstruction was in fact Strep B UTI!! I was told it's because of the cancer I had and my immune system is low. This is the 2nd time this year I had this UTI. However, the PCP I had before didn't tell me what kind of UTI I had.My new PCP is awesome and she wants to do further testing.…
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Scanxiety.......again
Had my MRI on Tuesday. That is unusual as I normally have it on a Friday. I was told that it was because I was on a 'general' list which was probably due to the bowel type radiologist appointments either being full or that there wasn't a bowel radiologist available. I am not due an appointment with my oncologist unil…
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NED visits again
I had my six month check up with my oncologist yesterday and was told the results of my CT scan and lab work - everything is fine. My next appointment with oncologist is in a year instead of six months. He was very optimistic. I'll have another CT scan and lab work next year. Insurance didn't approve another PET scan which…
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Post about after cancer/ostomies and people who don't think.
I posted this on the colon board because that's the board I'm usually on but aftewards I thought, this might be a board that relates a little better. I'm singing a serious case of the blues this week. Trying to get over my pity party and get myself to a happy place. . . . . For all those doing chemo today or on their…
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Fissue issue >_<
I apologize for being a pest, but this is currently, by far, my most troublesome problem; after today, I'm not sure I can stand it much longer. No proctitis, but I have, on biopsy, "mild chronic inflammation", "focal mild squamous dysplasia (AIN-1)", and "parakeratosis". The latter causes very dry skin to the point of…
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Vanity query regarding hyperpigmentation of skin.
My skin tone is sort of fair. When I had radiation therapy, my "diaper area" and upper inner thighs turned a sickening charcoal grey-black color. I'm really glad that I was forewarned! Now, 4-1/2 months later, my skin color is that of a very deep tan, far more than I ever get in the summer. It's been this way for months…
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Here's hope for everyone!
Was diagnosed with advanced stage 3b AC in March, went through chemo and radiation ending mid-May. My doc was not optimistic as tumor was so large and had extended into vagina and a couple of lymph nodes. Doc did an exam a couple of weeks ago and couldn't believe I was the same patient--he could feel nothing, rectally or…
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Inflamation
Hi guys, Do you know how long it takes for inflamation to go down after treatment? Last year, my mum's only real symptom of her tumour was a pain in her butt bone, I don't know the scientific word. She still has that pain 1 month after treatment and it still hurts her to use the toilet, so she is worried that the treatment…
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CT scan
How soon after completing treatment did you have your first CT scan? I finished treatment Oct 27 and have a scan scheduled on the 25th. Does that sound right? Jackie
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Terrified
I'm 2 yrs post treatment and 2 years post my "all clear" " I have been going through rectal and anuscopes every 3 months, I think they think its a stage 3 and they want to keep a close eye on is as there is a lot of scar tissue. The exams are getting rougher as they are extremely painful, I have one coming up in Dec and…
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Update from Laz
Dear Friends, I was away for a couple of weeks looking for work after more than a year of hiatus. I was going to interviews, working interviews like crazy and far away, because there is no dentist jobs where I live. Finally I have work 4 days a week even though it's 1 hour 45 minuts away. I was excited and anxious to start…
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Platelets down
During my final hospitalization, my platelets went down to 14,000 at the lowest point while my WBC was 0.2 in spite of daily Neupogen. I received 2 units of whole blood and 2 of platelets. Although my platelets never returned to the normal range (150,000-450,000), they did rise significantly into the 133,000 range, like in…
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Recurrence question and info on AHCC
Hi everyone, Just to let you know, if it helps, my mum is buying something called AHCC which is suppoed to prevent or cure HPV. I think it's to do with Japanese shitake mushrooms, has anyone heard of it before and used it? It might be worth trying as it says it can 'irradicate' the virus. We saw something on the tv early…
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Received word last night from primary care doc that "Scans were all fine"
So after two days of incredible stress, especially yesterday not hearing back from the doctor who ordered the CT Scans, I got an email last night from my primary care doctor in Provincetown that the "Scans were all fine and Happy Halloween" All I can say is that waiting to hear back about scans is pretty horrible. Again, I…