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Good results
I received the results of my PET/CT today. I am happy to say that no hypermetabolic activity was noted and all of my nodes are returning to normal size. The doctor said that we will do 11 more rounds of the chemo with scans after round 4 and round 11. At the end of round 11, if everything looks as it does today we will…
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Rare cancer with a rare pathology report
Hi everyone: I posted the following on facebook in Don's Updates and rather than try to rewrite here, I will just copy what I posted there. It's hard to explain what is going on in writing but I did my best. FEC and Hugs, Judy Geez, I don’t even know where to start. We have met with the surgeon (Dr. Reddy, UofM) and the…
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April is Esophageal Cancer Awareness Month
All, I wanted to update everyone on the efforts to have April declared Esophageal Cancer Awareness month. Any one else here who has had their state declared please add on. So far these are the States that have declared April Esophageal Cancer Awareness Month: Arkansas....by Lori Walls Connecticut.... by Maggie Solsbury…
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need help finding the discussion
I can not seem to find the discussion where everyone "piched" in their ideas of food for when eating has become difficult. I remember some were different shakes etc. Could someone post a link for me? I thought I had saved it, but I guess not. thanks, chrissie
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Good Results
Hi friends, Just an update on Jeff and his 7 month scan results. As you may or may not remember he had his last scan on Valentines Day, that CT scan showed a small single nodule in his lung. The decision was made to scan again in two months, but with a PET/CT this time. He has also in the past two months been diagnosed…
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Bad taste
Dad has started spittin alot of what he calls slime. It looks actually like a really thick clear mucus. He says it taste really bad. He spits it into a tissue cause he cant swallow at all. Any ideas how to help. He wears false teeth. Got me washin them all the time. But the taste is still there.
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Frightened of recurrence
Hi, I'm new to this site. I am a 54 year old Female, I was diagnosed with EC in January of 2011. I went through radiation and chemo and finally surgery in April of last year. The Surgeon was very optomistic that he removed the cancer which had spread to local Lymph nodes. In June of last year, 3 months after the surgery, I…
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Beyond Blessed!
We have been fighting this beast for 6 months, treatment all in all has gone much better than we expected. Rocky stays positive and hope filled! We just had our repeat PET scan and endoscopy and they were both CLEAN! He was diagnosed 6 months ago with stage IVb with Mets to Liver and Lymph nodes. Today we were told he is…
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Niki & Jeff - Positive thoughts go with you
Just wanted to let you know that we are thinking positive thoughts and sending prayers to keep Jeff safe and the news good in his coming scan. {hugs} to you both! TErry
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Scan on Tuesday, Scanxiety today. :)
I've got my first PET/CT since starting FOLFOX this Tuesday. I've just completed the 4th round of FOLFOX and I feel better on this chemo and the pain has dropped to almost nothing so I am hopeful. As always, prayers and good thoughts appreciated. It's been a tough couple of weeks. My port became infected and had to be…
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2 years and no sign of recurrence :)
Hello everyone, First of all i would like to say how deeply saddened i am to read some of the stories of peoples experiences with esophageal cancer,it really frustrates me that there isnt just some miracle cure for everyone...I guess everyone who experiences any type of cancer has there own story to tell,some positive,some…
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update on Dad
Dad started Hospice Tuesday. Last time I posted Dad had developed deminshia. Doctor gave him a patch and his memory came back enough to sign all his on papers and make his own decisions on his care. He is still foggy though and I'm not quite sure he understands everything. I dont know what to expect next. Its real hard to…
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Hi friends, both new and old
Hi to all..... I have been away from these boards for a few months, although I occasionally take a moment to catch up on how everyone is. I have shed endless tears and celebrated tremendous victories with so many of you. I am so sad to see so many new names and stories. I am finding it increasingly hard to visit this…
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How Quickly Things Change
This disease changes so quickly that its hard to keep up. This past Monday I threw up some dried blood and since I had an oncologist appt the next day, Tuesday, just waited. I talked to her about the epsiode and she didn't say much about it. I had my treatment that afternoon and all went well. Wed, afternoon, I threw up…
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Please keep kimdymecki in you thoughts and prayers.
Kim's husband Joe passed away early yesterday morning. The world has lost another warrior. Mary Widow of Chad who Battled IVa EC from October 2009 to March 1, 2012
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4 Years NED
Just had my yearly scan and Endoscopy at MD Anderson and everything looks great. I had the IL in 08 and so far, I have not had one complication. I can eat whatever I want and almost to the point of preop eating. All of you are in my prayers and I wish everyone the very best. While I won't turn my back on the beast, I have…
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Chemo Discoloring Dentures
Has anyone had this happen? My mom's dentures are stained as a result of the chemo. Is there a good way to remedy this other than replace her dentures? Thanks, Stephanie
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2 year EGD results
Yay! Completed the above scan this week. Surgeon says everything looks great. No biopsies needed. See you for another one next year. We are humble that we have been so blessed. BMGky DX Dec 2009 Chemo/radiation Ivor Lewis April 2010 Stage 11 N0M0 Two years post-op continues NED
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17 year old caregiver...
Hi there. I'm Rebecca, and i'm 17 years old from Canada. In feburary, my Dad who is 53 years old was diagnosed with stage 3 esophogeal cancer. It has spread to lymph nodes, is in the aorta(spelling?) and is rather close to the kidneys. He has a PEG tube for feeding, and a PICC line for chemotherapy. He has had…
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Signatures??
How do you put those signatures under your name? I can't imagine you type all that info with each post. I'd like to include some of mom's stats in my signature.
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Daily Menu ? and Dumping
Wondering if people might be willing to post a detail example of a typical days meal plan including portion sizes. My husband is still having his share of dumping episodes even though we are being very careful. If we might see what some people eat over a day or two days time, that might give us some ideas. If you have time…
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PECTIN
Wondering if anyone has ever used pectin to help with dumping syndrome symptoms? If so, how much did you take and how often? Thanks, Cora
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6 months CT scan
Hi Everyone: I got great news today, but I’m also very sensitive to those on this board who have had not-so-great news. In my first post last fall I said I almost felt guilty for being “only” Stage 1, and Eric “yelled” at me and said I should feel blessed, not guilty, which I have tried to do ever since. It was one of many…
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NEED TO KNOW IF ANYONE HAS THIS PROBLEM
It has been 5 months since my Esophageal surgery. I was a stage 2. I went thru 30 days of radiation and chemo and then surgery. They didn't see anything else there after treatments but I elected surgery anyway to make positive. I go for my first 6 month check up next month. These last 2 weeks I keep getting what feels like…
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Good Treatment Today
Just a quick note, my taxotere treatmen went well today. Have one more round of taxotere then we will change to something else. Tumor marker is trending upward slightly so in my view, taxotere has run its course. Not sure where to go next. Anyway, other than the post treatment fatigue and a slight headache which happens…
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Mom home less than a week after Trans-Hiatal Esophagectomy
Hi All, I was shocked when I got the call that Mom was being discharged. Her surgery lasted less than 5 hours. Today she is very happy to be home, but she is extremely short of breath. I'm wondering if shortness of breath is a common side effect. She had daily chest scans and there is no sign of pneumonia, but she is…
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Minor Set-Back still in hospital
So we did not go home today:( Oxygen levels were at 84 so we went back on Oxygen. CT scan done, no clots, thank God. Next EKG,but no history of heart issues so. Any advice?? Also always thanks to our CSN family...
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Minor Set-Back still in hospital
So we did not go home today:( Oxygen levels were at 84 so we went back on Oxygen. CT scan done, no clots, thank God. Next EKG,but no history of heart issues so. Any advice?? Also always thanks to our CSN family...
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Coughing a lot
Did anyone experience a lot of coughing after surgery? Don has been coughing so much - he says it feels like phlegm in his throat that he cannot cough up (sometimes it is a productive cough) - it seems to be very bothersome and he has difficulty sleeping or napping because the coughing wakes him up. We appreciate any input…
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Popi is going home!
Just wanted to post a quick update about our Popi. He had MIE on April 03, 2012 with Dr. Alvelo-Rivera at Karmanos. The surgery went very well and he is progressing wonderfully. We will be headed home today. We also learned that the pathology report came back and all lymph nodes were negative. We are feeling really…