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recipes
My husband has been released to a soft food diet after his esophagas has been completly removed due to cancer . I am having a hard time finding receipes with lots of calories to get him to gain weight. I would appreciate any help you could offer. Thank you
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treatment side-effects?
So my dad is 58, had a bad stroke 5 1/2 years ago and has stage 3 esophageal cancer. I'm not sure how they stage it, but it hasn't gone out of the stomach or esophagus, but it is in one lymph node. It actually started at the top of his stomach and spread up a bit, so it's more like stomach cancer but the are calling it…
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post surgery
Hello Everyone, I had a esophagectomy on 4-19 and the the biopsy revealed that the EC was contained to the first and second layers of the esophagus. My surgeon took a aggressive sample of the surrounding lymph nodes and tissue and found I didn't need chemo or radiation.I'm a very lucky man.I just want everyone to know how…
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My father has cancer
My father had his first chemo treatment on Thursday morning and I understand that he will be tired and nautious. He has no desire to eat and he is not taking his medication for anti nausia because he said he does not want to eat. I called his doctor on Saturday morning and he has not called me back. My father has only…
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Neuropathy
Jim has had some neuropathy ever since the last few days of the chemo/proton radiation. It began in his toes and spread to the balls of both feet. He also has some in his fingertips. Since he can't feel anything with his toes, he is a little off-balance when he does much walking out of the house. Good news, though. We read…
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Lyle
Hi everyone, Thank you for your comments from my last post. Well here it is 9 days after Lyle started throwing up blood...taking us to the hospital. It has been a very tough week. From vomitting blood, to low white blood cell count, to possible bowel upstruction, to barely being conscious due to meds and weekness, to…
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Energy level
Hello everyone, Jim is getting frustrated because, although he is feeling well and eating well, his energy level is remaining low. He is normally a very active, energetic person and he wants to start increasing his activity level. I don't want to discourage him, so is there anything that we can do to increase his energy or…
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update
Well since ed got his great news last week about this pet scan showing cancer is diminishing in all spots, he is starting his 7th chemo session tomorrow. This will be thee 4th session of oxcyplatin and xeloda. Is this common to continue if improvement is seen? He never lost his hair with all seven sessions so I am…
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want to see our ash/cherry tree?
I put a picture of it that Layne took this morning on our blog! Oh I tell you, this is so strange, and I am learning not to question God and what HE wants to do. My husband is my husband TODAY and is here for TODAY which is all I am promised anyway! And that was a hard lesson to learn. He took his chemo yesterday. And he…
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Need a Little Boost
My husband, Kevin, had his esophagectomy five months and 3 days ago. He was pronounced cancer free on Dec. 16. On Apr. 4 a PET/CT revealed an active lymph node. May 7 and he received another cancer diagnosis. For the most part I stay pretty positive about the situation, but as Kevin approaches the beginning of a new…
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new scared mom
Hello to all of you, and thanks for sharing all this information. I'm seeking all the survivors I can find for hope . My son was diagnosed on March 31st with stage 1V EC. He has comppleted one round of chemo and is in his 3rd week of radiation. His prognosis is "up to God" at this point. He is a young man, only 29, and the…
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Prayers for Layne's new round
We start today and he gets the biopsy results today. Prayers requested for the round to be easy...I hate that he feels so FANTASTIC and has to go in to be made sick :(
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staging question
because ed's pet scan showed improvement in all spots yesterday including all mets, is he going to be restage to a 3 instead of a 4, I don't understand this and was wondering if anyone else did. he does have cancer in the esphogeus, stomach, liver and pelvis, but all shunk somewhat due to the chemo, does this make it a…
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Not so good news
I have not been here in a while and i do apologize for that. I wanted to give an update on my dad, and share the not so good news with you all and pray that someone here can give us some "hope" My dad finished all of his chemo and radiation treatments and did exceptionally well with them. He did not lose his hair and it…
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good news for ed!!!!!!!!!!
ed's recent pet scan showed great improvement in all his cancer not just his esphogeal, but all his mets have shrunk also. we are going to do three more rounds ( if he can tolerate it) of oxcyplatin and xeloda starting next monday. I am trilled to finally see an improvement after six rounds, thanks everyone for the well…
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severe hiccups
Hi guys...Lyle is still in the hospital and I have a couple of questions for those of you who have already gone where we are. Lyle has severe hiccups that come and go...but they are so strong that they cause severe pain followed by vomitting. They have him so doped up on pain meds at the hospital to relieve his pain that…
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RFA treatment
Well, we went for our appointment with the Interventional Radiologist this morning and essentially, were told, "NO, this is not for you, at least not now. Come back in 6 weeks, have another CT/PET scan and we'll see where you are then". Guess that's what we'll do. He did give us a detailed explanation of what the various…
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PORT OUT-------OUR JOURNEY IS COMPLETE
Hello all, Well its officially been 1 year, since diagnosed and having the port put in. What a year this has been. I went from wearing diapers and not even knowing what the heck was happening or what was going to happen or what the heck i was going to do. To wearing the BIG GIRL PANTIES, AND SENDING THEM THROUGH FAITH…
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BETTY IN VEGAS
Okay all you CSN people, she has just informed me that she has her own site now and is up and running, tells alot about EC. here is her website, www.ClubNEDwear.com i think most of you will like this site has things to buy and talks about EC Moe/lor
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Bad reaction to 5FU
My wife has been diagnosed with esophageal cancer. She has been advised to undergo combined chemo-/radiation treatment (induction therapy) followed by surgery. We have started down that path and she has completed the first week of treatment. She has developed a significant reaction to 5-FU called mucosidis. I wonder if…
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Staging question
I just started blogging the other day but I just thought of a question on Mom's staging. They staged her at IIIB T3 N2 M0 squoamos but yet her records talk about metastases involving the left paratracheal nodal chains w/ additional metasteses in the precarnal node. That came from her PET scan but then her EU talks about 2…
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a new pet scan coming-we need lots of prayers
ed is having his third pet scan today, results tomorrow with doctor, this is after six rounds of chemo, first three rounds showed nothing, changed treatment plan, now three more rounds under our belt. please pray for us that there is some improvement in his condition. this is the big one, either we continue with chemo or…
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Dumping syndrome
Hi all, I just got off the phone with Jim's brother, Tom, who had Stage III EC 10 years ago. He had horrible problems with dumping after every meal. He started taking an injectible med called Sandostatin before he ate (3x a day). Once a month he gets a stronger dose called Sandostatin LAR. He also discovered that he was…
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Vitamins and herbs
Hi all, Has anyone heard about Essiac tea? I've read some very interesting things about it, but not quite sure to try it. I know some of you have tried vitamins and herbs, but our doctor said not to take too many vitamins during chemo. Jim is working every day but gets very tired around lunch time and it is down hill after…
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Nausea Questions - Need assistance
Hello all, my mom has SCLC w/mets to brain and spine. She completed brain radiation, then they found the spine and she has completed that. Since having the radiation to the thoratic spine she has had terrible nausea and is unable to eat. The doc said that it is most likely due to damage to the esophagus during radiation.…
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Back to the hospital
Well...Lyle started throwing up bright red blood on Saturday. We went directly to the hospital and they didn't mess around. He got admitted right away...got him comfortable with meds for nausea, pain, and that help heal any damage to the tissues. No one really knows what caused the bleeding but it has stopped and his blood…
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Easiest formula to tolerate for j peg tubes?
Hello All, I wrote a long email to William that I have to retype,but for now I am sending out a quick email to touch base in just formulas for j pegs. What formulas have you used with success for j pegs? My father will be having surgery tomorrow to change his g peg that was put in place 4/16/10 to a j peg attached to this…
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BIG GIRL PANTIES FOR MOTHERS DAY SOME OF YOU WILL UNDERSTAND SOME WON'T
Well I just have to share this today is Mothers day and my oldest daughter sent me a card for mothers day which read: on the front it said :: MOM YOU ALWAYS SAID INSIDE IT READ: PULL UP YOUR BIG GIRL PANTIES AND DEAL WITH IT Now how true this was for me, and this is my motto, with what all I went through this past year.…
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My mom has stage IIIb
I have been following stories on here for a couple months now and thought this may be a great place for advice. My Mom is almost 59 and was diagnosed with EC Stage IIIb T3 N2 MO squoamos cell in March. Since then we went to the Mayo Clinic in Rochester MN where she had several tests. Her final PET scan showed her tumor was…
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My first week of treatment is finished..
Just had my 5th radiation treatment of my first week and had my pump disconnected from 96 hours of F5U and also had a infusion of cisplatin the first day..So far no side effects that I can see,no nausea or diarrhea as of yet,I think that emend must really do it's job..No more Chemo for 4 weeks so I'm waiting for the side…