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Food during chemo
First of all I have to say that although the new set up here can be confusing, I have been joining in again because I get e-mails about new comments. Secondly. I know there is a thread somewhere about food during chemo, but I can’t find it. So I’m starting a new one for the new people. 😊 On treatment day I felt great(…
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I’m thinking of quitting pelvic radiation
Has anyone here had no negative life altering after effects of pelvic radiation where there is no tumor to direct the radiation to? I’ve only had 5 treatments of external pelvic radiation - IMRT - (7 days after starting treatment) and I’m thinking of quitting treatment. I started constant diarrhea on day 5. After reading…
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Badges
I see badges on some ladies bio, what does that mean, please?
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USPC - how to approach my specialist with questions regarding treatment?
Uterine Serous Papillary Carcinoma - 1A but with high risk mismatch repair gene protein expression proficient (p53 mutant), and specialist advising a watch and wait after surgery. It is scary that so many have the same diagnosis as myself and we seem to be around the same age (just turned 62) and had a few episodes of…
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Seroma? Just curious.
I haven’t seen anything on here about a seroma happening after surgery. I think I had two right after my total hysterectomy but mine were very unusual! I will try to explain. A few days after my surgery, (robotic, so I had tiny incisions) the lowest incision on one side started leaking clear fluid, then over the next 2…
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(2nd) 3 month checkup today - all good!
I had my (2nd) 3-month exam and labs today and got a great report. Pelvic and rectal exam good! I was admonished for not having a colonoscopy which was advised 3 months ago (I was due last September anyway) so I know I need to scheduled one. My GI doctor retired last year and my husband went to his replacement for his…
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Hernia after hysterectomy
Hello, I just had my second 6 month Chest/Pelvis CT and celebrating No Enlarged or Inflamed Lymph Nodes and No Mass! However, I now have a 2 cm umbilical hernia I did not have last CT. I also have a thickened urinary bladder wall sine the last CT. Has anyone else developed these after surgery or radiation?
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Hair Loss
Hello, I started Taxol/Carboplatin a month ago (2 treatments so far). My hair was definitely coming out when I ran my fingers through it. I shaved. After 2nd it became really patchy. I shaved it even tighter. It seems like in areas it's growing back. Does this happen? My underarm hair is gone and my legs are stubbly, but…
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Willing to share my surgery experience
I had a couple of interesting things happen with my surgery 3 years ago. I don’t want to scare anyone but if you are curious then ask away.
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6 month check up today, all good!
I am right at the 3 year mark, and I am all good still. Yay! I had a nice chat with my onc/gyn/surgeon. She said generally speaking, recurrences happen sooner than later and 3 years is a good milestone for not recurring. That was so good to hear since my cancer was the rare clear cell/serous mixed. I will have one more ct…
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chemo overdose?
For months, I have noticed that one of my oncologists did not seem to really be paying attention to the details of my case. Tests were delayed, answers to questions did not seem to fit the situation, statements she made did not match what the radiation oncologist was saying. The last meeting with her was a week earlier…
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New Site Format Question
I am having a hard time with the way the site was redesigned. Is it just me or is is there no longer a way to jump to new comments on a post? Also do posts and replies no longer show the date and time? It seems like when you go to read new comments to a post that when you click on the post it takes you to the original post…
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Newly diagnosed with a recurrent Endometrioid Adenocarcinoma
First, thank you all for contributing, listening, and encouraging. I had a total laporoscopic hysterectomy in 2019 as a postmenopausal woman, after lots of bleeding, pain, and misery -eventually several biopsies found the cancer. It was stage 1a and my doctor did no other treatments after the surgery. I had been going for…
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Any tips for external pelvic radiation ?
Im looking for advice from those who have experience with Pelvic radiation. I found out I had Endometrial cancer Oct. 2021 and had full hysterectomy the day after Thanksgiving 2021. They took my ovaries and Fallopian tubes also. When reviewing my pathology, They found a tumor in my Fallopian tube which changed me from…
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Blessed, but Threatened
Hello Everyone, I am Nettie, I am 62 years young and I was just diagnosed in December 2021 with a grade 2-3 Serous Uterine Cancer. I just had a total hysterectomy on 1/12/2022. I was totally blessed with a final result of coming in at a Stage 1A after surgery. This rare serous cell is usually much further along than 1A at…
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Fibromyalgia and Chemo?
Just wondering if anyone on here has fibromyalgia and if it was worse after chemo? I have had it for a long time but it was never very bad. I am almost 3 years from my last chemo treatment and it just seems like I have been more achy ever since. Maybe it’s just a long lasting side effect of chemo. Any thoughts?
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3 years NED
So I see others on here getting congratulations and happy comments. Kind of makes me sad that all I get is crickets. 🤷♀️Only one person has responded, Thank you, cmb.
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3+ years NED and a comment on LVSI
I am 3+ years NED. I had mixed clear cell and serous but was 1A. I don’t come on here too much because for me, I don’t think about the cancer I had very much. But that’s just me. I have visited lately and wanted to share a few things. I would be happy to share about my post op recovery, I had one unusual thing but mostly…
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Starting Immunotherapy and Chemo Tomorrow
Adding Immunotherapy first line since my tumor is microsatellite instability high. Chemo is carboplatin plus paclitaxel. May the force be with me!
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New blood test for cancer
This sounds like really good news. It has a very high accuracy. https://www.medscape.com/viewarticle/966130?src=soc_fb_220106_mscpedt_news_mdscp_bloodtest&faf=1
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CT Scan Next Week / Check up was today
Today my radiation oncologist examined me and said the tissue looks really good, with no evidence of disease. She still wants me to do the CT scan next week to make sure all is ok, as I've had ongoing pain for so long. Probably adhesions. Anyway, I should be really happy, but I'm so exhausted. I'm guessing most of you feel…
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Looking for mentor
Uterine stage IV leiomyosarcoma. Uterus, lungs, brain lesions. Six rounds five days in patient chemo. Soon 4-5 radiation therapy sessions on brain lesions January 2022. Female, 37 at diagnosis. Looking for similar YA cancer survivor with my stage and metastasis and how they survived. Also what did they do in the mean time…
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Advice for biopsy and ablation
Hello, My name is Kate. I do not have a cancer diagnosis and it is with much love and prayers of healing for all that do or have had that I visit here tonight. I’m hoping that someone may be able to offer some advice or perhaps share an experience that is similar to mine, as I want to make sure I am asking the right…