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Spoke with PA today about Pink spotting 7 months post surgery/ 4 months post Brachy
I had my surgery for stage 1b, grade 2 endo cancer in August 2018. I had 3 rounds of Brachy which finished in Nov. Since December I’ve been having a light yellow discharge. Doctor said nothing to worry about. It’s inflammatoon from the Brachy. Ok, I wore a panty liner today ( which I do most days bc of the light yellow…
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In favor of chemo vacations
Eradicate cancer or live with a little bit cancer? The underlying theory here is very elegant. Not sure if uterine cancer is the type that can benefit from the adaptive treatment described in this article but I enjoyed reading it and thought I would share. https://www.wired.com/story/cancer-treatment-darwin-evolution/
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Port - take it out or not?
My last chemo was 6 weeks ago, I want this port out. My Dr said she recommends leaving it for a while but I could have it out if I want. It bothers me, I’m always bumping it and sometimes it itches. Should I be cautious and live with it? I choose to think I am done with all this and the port is not needed anymore, so I…
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New to board
Carcinosarcoma I was diagnosed with Carcinosarcoma 7/2018, had surgery 2 days later, was Stage 3A, proceeded with 3 treatments of Carboplatin and Taxol, 25 external radiation treatments, followed by 3 more treatments of the Carbo/ Taxol . I tolerated the treatments well, just really zapped my energy and strength toward the…
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International travel
I am looking for information about flying internationally while i still have my chemo port in my chest. Can anyone give me information or advice on how TSA deals with this? Thanks.
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Could I be tired this soon from external pelvic radiation?
I finished carbo/taxol almost 4 weeks ago, had Herceptin alone a week ago, which was a breeze. I just had my second dose of external pelvic today. Since about two weeks after finishing cheo, I've felt fantastic - energy was great, just no appetite. But all of a sudden now, this afternoon, I am suddenly absolutely…
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Can I share this?
I see some new people on here and I would like to share my cancer treatment center website. They have a lot of good information and you don't have to be a patient to access some of it. For example, if you type "foods to eat" in the search bar, it gives you a lot of helpful things to read. It is Compass Oncology, out of…
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Diagnosed today. Questions.
Hi everyone, I found this forum yesterday, before having my discussion of D&C results with my gynecologist today. The diagnosis was: endometrial adenocarcinoma, endometrioid type (FIGO grade 3). I'm confused about "grade 3" and stage. I'm trying to figure out if stage hasn't been determined yet? I have an appointment for…
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MMMT Uterine Cancer
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Skipped chemo today
I'm behind on filling you all in on how things have been going with me. I finished my 10 high dose radiation treatments two weeks ago tomorrow, then had my first chemo for this recurrence last Monday. I found that the plans the PA for my oncologist had explained to my husband and me were not at all what we had understood…
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Waiting for diagnosis...
Hi Everyone. My life has been recently turned upside down and I am honestly not really too sure which way is up these days. I found out last week that I have a 10 cm mass in my uterus that was discovered by an ultrasound I had done for constant urination and heavy periods/discharge. I am 41 years old and now that I look…
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Special evaluations can help seniors cope with cancer care
Interesting article about cancer care at older ages: https://abcnews.go.com/Health/wireStory/special-evaluations-seniors-cope-cancer-care-61867560
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Fribromyalgia and chemo
I am 5 weeks from my last chemo treatment and just had the second brachytherapy yesterday. I have had mild figromyalgia for years, I'm not bothered by it too much unless I get really stressed out, then it can get pretty bad, mostly in my legs and shoulders. I'm just wondering if any one else has that and did it flare up…
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Wow! Platelets were 41K today.
Good thing I had stopped my blood thinner a couple of weeks ago, in anticipation of a low platelet count. My hemoglobin was only 9.1, too, but I felt great before the Herceptin - now just a little tired and shaky. I had been warned that Carboplatin alone was more bone marrow toxic than when it's administered with Taxol.…
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Herceptin alone - how did you feel?
Has anyone been on just Herceptin alone? I have my first Herceptin-only infusion today, expecting I won't feel sick at all, but I'd like to know if there's anyone out her who's had it just by itself yet?
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Another bit of promising drugs news for recurrent/advanced
It was a small study, but the results are pretty exciting: 30% response rate in recurrent/advanced disease, 49% in MSI-H tumors. Even better, the rates of adverse side effects were lower than other good-news research reported on recently. The drug is Dostarlimab, a checkpoint inhibitor. Here are the details: Potential Game…
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Neulasta
I’m curious if anyone is taking the Neulasta shot. Thoughts, experience, complaint, etc. Thanks.
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Anyone willing to talk about sex?
Well, I've gotten answers about so many other things, I figured I might get some advice and hopefully reassurance. I am 2.5 weeks out from what's hopefully my last chemo. Surgeon's NP said I was completely healed, placed markers (wow did that hurt) about two weeks ago, I think? I'm starting pelvic IMRT in a week. So I…
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First chemo treatment
Tuesday the 19th will be my first treatment. Does anyone have any tips or tricks to make my treatments and days after as smooth as possible? Thanks in advance.
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Carcino Sarcoma or MMM Tumor
I was diagnosed on Oct 10, 2018 with Carcino Sarcoma, also known as MMM Tumor ... very rare and vary deadly. Had a hysterectomy (keep vagina only) on Oct 15, 2018. Started 4 rounds of 3 days a week of Taxol and Ifossimide chemotherapy every three weeks. Had a scan and learned on Feb 13, 2019 that the chemo did exactly…
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Brachytherapy ???
I just had the first of 3 brachytherapies, (after 6 rounds of chemo.) I am feeling no side affects at all from the brachy, so of course my mind is wondering if it really does anything? Seems like if I don't feel anything then it must not be working LOL. It gets very confusing with too much reading, should I have IMRT, is…
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Clinical Trial
Hi all, Ok spent the morning talking to doc about the recommendations from the tumor board regarding the next treatment plan and it is a clinical trial. It is a Phase 2 trial with an oral immunotherapy drug and taxol. The oral drug I take twice a day and the taxol is every week for 3 weeks then a week off. So good news I…
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Olaparib and Cediranib Maleate
These two drugs are typically used to treat ovarian cancers, but with my endometrial serous cancer recurrence, these two drugs are possibilities for next treatment. Has anyone had first hand experience with side effects with either drug? The published side effects sound like torture. Any actual information would be…
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CT after chemo shows no mets, no changes in lung nodules or sclerotic lesions bone - no evidence of
I discussed the scan with the reading radiologist. I was Ia at diagnosis in September, with isolated tumor cells in one sentinel node, only 2 nodes sampled. Interestingly, my spleen was only slightly over the upper limit of normal (14 cm vs 13 cm), with slight enlargement of the venous drainage from spleen. He says he…
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Daily Light yellow discharge
I’m still having light yellow discharge everyday. My cuff reopened in December and the discharge was tanish and enough to fill a panty liner. Well, it’s a lot better now since the cuff closed. However, after intercourse I get a lot of fluid come out of me for several hours. once it was mixed with a bit of blood. I took a…
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That didn't last long
I thought I would have longer than a couple of months to celebrate my last CT scan being clear and my CA 125 at 9. Not long after getting the good news back in December, I started having abdominal swelling and discomfort. I had a CT scan which showed fluid indicating my cancer is back, my CA 125 also went up to 356. My gyn…
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How long after your Hysterectomy did you have your 1st Brachytherapy
For the women who only had Brachytherapy, how long was it from your surgery to your first Brachy? I had my Brachy exactly 11 weeks post surgery I’m wondering if I had waited to long for it be effective
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Thank you
I read today of the passing of LadyMoxx. She was diagnosed around the same time I was and similar in age (a few years older). It certainly made me pause and take stock in how lucky I am. Thank you to all of you. There‘s no way to express how much your support has meant to me. It truly got me through some very dark moments.
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MRIs and UTIs
So I really haven't posted for awhile. Anyway, after my major surgeries in April and June of 2018, I am still in the scan every 3 months phase. However, my MRI at the end of July I had a reaction to the "breeza" (Not the IV contrast) but the stuff you drink. Right after I was done with my MRI, I had immediately diarrhea.…
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just sad
Im having a down day and I am sad that no one on here has responded to my last post. I am done with chemo and I know I should be happy about that, and I am. But I am just so weak. I can't walk very well. We are dealing with a lot of deep icy snow and I have an ankle injury so those things don't help, but i wish I had some…