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Uterine/Endometrial Cancer

Archives for March 2018

Patient/Financial Assistance Programs for Chemo/Radiation
Hello all. I am new here. My mother was diagnosed with Uterine cancer, specifically Serous Carcinoma. I will be my mom’s main/only caregiver/support throughout this process. In addition to the feelings of fear, sadness, etc. associated with the disease and the treatments. I am also worried about the ability to pay for and…
Anybody heard from Amatullah?
Has anybody heard from Amatullah? I sent her a PM back at the beginning of the month but haven't heard back. It looks like she hasn't been online since February 28th, I hope she's okay...
Sad news about our Lou Ann & Funeral Info
According to Lou Ann's Facebook page, it looks like she is gone. Susan (the Queen of Cheese) and I are friends with her on Facebook and people are offering their sympathy. I have messaged her son to find out what happened and he confirmed she died yesterday morning. He and I had been communicating and this is the last…
Let’s talk about Cannibas
So, I got my medical marijuana card and visited the dispensar. I’ve tried a few products (tictured, joints, gummies) and they have had absolutely no effect on me. It’s amazing how these things operate without giving a you any direction. I’ve resorted to taking advice from a few pot heads I know. I didn’t do this when I was…
Brand of probiotic?
It turns out I have to have external radiation. I have seen many posts about taking probiotics during treatment, but not much on which brands were used. Could you all share what brand of probiotics you are using? Thanks!
UTI’s
Thank you de Maus for the tip about using a spray bottle for these infections. I have just finished my 4th round and since I started using one I have had no signs. I used to get them regularly and it has been at least three weeks. I think you are on to something.
Bad news for Janee cancer in moles
I just typed this and it didnt send so i will try again. Ive got some bad news. I dont like to send bad news. I myself like hearing the good news. But today im glad this site is for bad news too. I know this is for uterine cancer but i wanted to tell you because my friends whether old or new are on here. Two of the moles…
If you were me
Hi. I really need to rely on all of you and the immense knowledge you possess. My body just can’t handle cancer treatments. Hysterectomy last May, diagnosed stage 3c, grade 1. Began chemo early July. Total of 6 weeks delays due to significant neutropenia and low platelet counts which resulted in 3 hospitalizations. Dosage…
Un-diagnosed but worried about symptoms & US results
Hope it is ok I am posting here as I am undiagnosed. I am having a bit of anxiety as I am concerned I have cancer. I have been having symptoms for over a month+ (well since Sept. if you call tachycardia a symptom, but pelvic symptoms since Feb consistently.) I just had a pelivic ultrasound and have been referred to a…
There is hope beyond cancer
Just got back from my yearly exam with the oncologist. I am not officially 8 years cancer free from USPC. They said I am one of the longest survivors there office has ever had with this kind of aggressive cancer. I have done nothing special besides doing the chemo & interanal radiation that they advised me to have. Just…
Stage 2 endometrioid, "suspicious" for LVSI
Hello, everyone - My total hysterectomy was 5 weeks ago via DaVinci and I'm feeling great. Path report came back as Stage 2 with 99% (!) myometrial invasion, 2cm tumor in cervix, lymph nodes negative, but "foci suspicious for LVSI." My doctor puts me in the high-intermediate risk range for recurrance. I know from reading…
POLE ultra-mutated endometrial cancer and immunotherapy
This is the third time I am trying to post this message. It seems if I add a hyperlink the post is deleted. In addition to tumours that have Micro Satellite Instability, it seems tumours that have the POLE exonuclease domain mutations are also good candidates for immunotherapy. If the genomic profiling of your tumour…
POLE ultra-mutated endometrial cancer and immunotherapy
Hello, In addition to tumours that have Micro Satellite Instability, it seems tumours that have the POLE exonuclease domain mutations are also good candidates for immunotherapy. If the genomic profiling of your tumour indicated the POLE mutation and you are experiencing a recurrence please check with your doctor to see if…
POLE ultra-mutated endometrial cancer and immunotherapy
It is my understanding that if a cancer has high mutation burden (like lung, melanoma) they are better candidates for immunotherapies. As far as I know ovarian cancer is a low mutation burden type of cancer and hence typically may have limitations in targeted therapies. Here is an article discussing that. Up until now I…
POLE ultra-mutated endometrial cancer and immunotherapy
In addition to ultra-mutated endometrial cancer due to microsatellite instability (MSI), it seems if the tumor has the POLE exonuclease domain mutations then they would make good candidates for immunotherapy. It seems 10% of the endometrial cancer (both types) gets this mutation. If you have this mutation in your genomic…
The "new normal"
Do you ever get accustomed to this "new normal?" It's like I'm on the Wheel of Fortune every day. Each morning I get up and spin the wheel. Will it be a good day, a not-so-good day or a horrible day? Tuesday was a not-so-good day but I was at least functional. Yesterday was a horrible day - so dizzy I could hardly walk,…
Final chemo 3 weeks ago - still feel like a wet noodle...
Hi all, it has been a while since I posted - something to celebrate is that I finished my 6th and final taxol/carbo treatment! However, it has been a rough road since: I landed in the hospital with a fever and borderline neutropenia last week, and the weakness is incredible and does not go away. It has been 3 weeks, and I…
Stage IV Endometrial Cancer Treatment
I was diagnosed in 2017 (age 58) with Stage IV endometrial ovarian cancer metastasized to liver and lungs. I was told I was not a candidate for surgery or radiation so was put on 6 rounds of Paclitaxel and Carboplatin. Currently I am nearing the end of 6 rounds of Avastin and Doxil. Long story short, nothing is really…
Update Janae
Hey guys. There is so many new people and im glad this forum is still full of love and support. What a bleesing to not be alone. Im not on here as much as befor but was thinking about cancer and wanted to write. About two weeks ago i had another cancer update. My CA 125 was in normal range. Cant remember the number for…
MediCare Coverage for Geonomic Testing
This should make it easier for those of us who need it. Finally. https://www.reuters.com/article/us-usa-health-testing/u-s-to-cover-advanced-genomic-testing-for-medicare-cancer-patients-idUSKCN1GS2VG
Commercials
Is it just me...I just hate those commercials that portray those women with metastatic breast or lung cancer living a normal life. Running, working full time jobs, looking normal. My bet that’s not the reality for most. I worked for a pharma company and are very familiar with those dopey, naive marketing people and their…
Cheese update
So it’s St. Patrrick’s Day. Thirty-three years ago, I met my husband while he was trying to convince me he was Irish at the Green Dolphin in Tucson. Two years ago I was undergoing surgery for Stage 3 uterine cancer. Each time my life changed in ways that they would never be the same. The first year of my illness there was…
Biopsy date
I have a date for my D&C/biopsy/hysteroscopy. It is April 10. I was given a choice of 5 dates ranging from April 10 to June 28. While my first instinct was to take the latest one, I decided to take the earliest and get it over with. I am still scared as all get-out but hoping I will go through with it.
I got a Rx for Metformin!!
After seeking a prescription from any of the doctors whom I see, my PCP agreed yesterday to analyze the data and consider it. I just got a call saying after reviewing my records and articles relative to Metformin and endometrial cancer, she said it was reasonable to conclude I showed sufficient evidence of "metabolic…
recurrence after 1 year - new thread
I was asked to start a new thread as my Any UPSC Who had Observation is getting quite long. In a nutshell - 12/13/16 biopsy UPSC; hysterectomy 1/25/17; was a stage 1A ;did 3 rounds carpo/toxol; 5 brachy; blood clots but finally felt done 12/13/17! Alas. 2/13/18 ( I am just now seeing all these 13's) , during pelvic exam at…
Estrogen receptors study of endometrial cancer
I came across this new research today and thought some of you might want to know about it. The study found that endometrial tumors with high estrogen receptor expression have a poor prognosis if they also have high amounts of glucocorticoid receptor, which is a stress hormone receptor.…
A study I had so hoped for is taking place for UC
Some time back, I mentioned a researcher doing a study on long-term survivors of breast cancer. Are there any common factors behind long-term survivors? Diet? Immunotherapy? Current conventional treatment? Holistic support? A combo? Well, a doctor is doing a variation for uterine cancer as well. The study is in the very…
Lymphedema and other side effects
Ladies, if you've gotten lymphedema, how long after surgery/treatment did it develop? For other side effects of surgery/treatment, how long did it take for your symptoms to appear?
Extreme pain with expander use
Hello ladies, I just started using the expander and the pain is excruciating. I got a prescription for lidocaine gel but can’t figure out how to get it deep enough to work. It didn’t come with any type of applicator. Any info on pain management and lidocaine usage would be really appreciated. I don’t know how I’ll continue…
This neuropathy is driving me crazy!
Since I had chemo two and a half years ago I have suffered from neuropathy. The feeling in eight of my ten fingers is back and although my thumb and pointer finger on my right hand are numb, they don't hurt. BUT....my feet are just awful! Most nights I wake up in pain and have to walk to ease the pain. And, to make it…

Uterine/Endometrial Cancer

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