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Advised to start chemo before complete diagnosis
Hi Everyone I am happy to find a place such as this to ask qurations and get answers from others going through a similar situation. I had a total hysterectomy on 3 Oct after they found adenocarcinoma from my D&C two weeks prior. I was scared but my GYN ONC was confident I would not need any further treatment after my…
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Has anyone heard from Debra Jo??
I see she hasn't logged in since last February. I emailed her but didn't get an answer. Does anyone else have contact with her. Thanks, Eldri
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Super good news.
Hi, I just saw my Dr. at the Cleveland Clinic and i have been NED for 3 years for MMMT stage 2 uterine cancer. I also am in remission for my breast cancer that came back stage 4 that went to my lungs and skin. I have to go back on the chemo pills again so I can stay in remission longer. I just turned 76 years young. Thank…
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Just diagnosed endometrial adenocarcinoma stage 3a
Late September I had a biopsy and was diagnosed with stage 1, grade a or b endometrial cancer. On September 10, I had a total hysterectomy, and feel very good. Unfortunately, when we met with the oncologist yesterday, the pathology report shows stage 3a, grade 2 endometrial adenocarcinoma with cancer that spread to the…
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ncg007 Checking in
Haven't been active on this board for awhile and just checking in. Heartbreaking to read of all the new members and those that continue to fight, and happy to read of the successes. For those that don't know me, I was diagnosed in June 2015 with Stage IIIC1, Grade 3, Mixed 50% Endometrioid Adenocarcinoma(EAC) and 50%…
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asking doctor's questions, Cancer Treatment Center of America?
Is it unrealistic to want to ask a question of the radiololgist oncologist before the appt 1-2 weeks away? My gyn said the side effects of radiation may be worse for smaller people (could include permanent diarrhea or urinary issues), which made me wonder if the radiation does more damage because it's too strong for that…
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NFL is not all pink
This makes me happy and is applicable to the thread on "ALL Cancers month". Progress. I will be paying attention this year to not seeing only Pink on the field. "Crucial Catch" is a good theme, as many cancers can be caught by early detectiion, it's just that early detection of breast cancer can and should be done and…
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Abbycat2 checking in
Thank you all from the bottom of my heart for your e-mails to me regarding your concern for my welfare. I want you to know how much that means to me! Though I may not come here often, all of you precious women are never far from my thoughts and my heart. I just got back from a cruise with family and had a wonderful time. I…
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J&J's Award Overturned re: Baby Powder
https://www.google.com/amp/s/www.nbcnews.com/health/health-news/amp/judge-tosses-417m-award-against-johnson-johnson-cancer-case-n812886#ampshare=https://www.nbcnews.com/health/health-news/judge-tosses-417m-award-against-johnson-johnson-cancer-case-n812886
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My whine for the day
I am the kiss of death for doctors!! Every time I find a doctor I like, they leave. About two months ago my oncologist/gynecologist sent me a letter that he and his PA are no longer seeing patients who are not in active treatment after his other PA died. Today I received a letter from my beloved Dr. Roth that as of the end…
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What makes you feel good
So ladies what do you do that makes you feel good? Especially when undergoing treatments... I thought it might be nice to share the "little things we do" that improve our wellness or feel like a treat when things are hard during chemo/radiation/post treatment For me my almost daily practice of yoga is what keeps me…
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Hair Loss Day 16 +
I started chemo 10/2 and my scalp started hurting on Day 16. Today (10/20) I’m noticing ALOT of hair coming out and on my pillow in the AM. My hair has been thinning for a long time anyway - so I’m ready. I do need to get some chemo caps ASAP though. What have your experiences been? Ethel - endometrial cancer stage 1A…
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Hey Jairoldi, how are you doing?
Hey Jairoldi, have you started your radiation yet? How are you feeling? Love, Eldri
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First surveillance appointment
I had my first survelliance appointment yesterday. My CA125 was 3.3 (my Dr. high fived me when she told me too!) and my exam was normal. I also had my first bone density test (since chemo can affect the bones too), and it was normal. She said, I am normal lol . My friends may disagree, but she's the Dr. and should know :)…
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Surprising CA125.
Hi Ladies! I am bummed. I had a new CA125 test done and it came back at 325, so my new oncologist is sending me to San Jose for a Pet Scan next Friday. NOT what I wanted to hear just 8 weeks after returning from Germany, especially since there are no symptoms that I can point to. I have been really wracking my brain to…
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Very Good Pet Scan Results
Hi Ladies: I have some very good news regarding the recurrent UPSC cancer I was diagnosed with in October of 2016. I had a pet scan done this past Tuesday the (17th of October) and there is NO evidence of cancer or even a trace of it. My CA number came way down to a normal range in May of this year and has stayed at a…
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Team Susan-Facing Forward: Support her AND the Foundation for Women's Cancer
Ok, Team Susan - Facing Forward, I'll be running a virtual/shadow 5K with you here in Central Penna. I donated to your team on the Foundation for Womens Cancer website. <Content removed by CSN Support Team> This is how Nancy Brinker built the Susan Komen Foundation to better inform all of us about the types of breast…
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New to Forum
Hi Everyone! I tried to post a new thread to introduce myself yesterday but kept getting an error message...hoping this works...I'm not usually such a tech mess-up... I'm new here although I have been fighting UPSC for a year now...I am Stage IVB. I had a complete hysterectomy in November 2016, 6 rounds of…
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Need a name for my team for the National Race to End Women's Cancer
So my son, his girlfriend and I are ready to sign up for the walk but we just need a catchy name for our team. I know you all are a bunch of very creative ladies! Any suggestions?
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how soon after surgery did you start the chemotherapy?
Hello everyone, I had a hysterectomy (left both ovaries in) in June and subsequently diagnosed with endometrial cancer (endometrioid type, FIGO grade 2 , stage 2 - incomplete staging since no lympy node was removed) Last week I had another laparoscopic surgery where my ovaries, omentum, appendix and a 6 cm solid mass…
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Daylady from the fire zone...
Hi Ladies! I have not been checking in too much lately but it is a little crazy here! I live in Sonoma County so for the last week it has felt a little like living through Armagedon. We have been safe, but my daughter's inlaws were evacuated and are living with her and her husband right now. We all feel like last night…
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Need guidance on adjuvant therapy
Hello everyone, I am 44 years old. Always had very regular periods. One natural childbirth. Always knew that I had two fibroids but thought they would resolve themselves once I am in menopause. In May, when I visited my gynecologist due to abnormal bleeding, I had a hysteroscopy where some polyps were found and removed.…
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Ding! Ding!
I never felt like ringing the bell when I finished chemo because I still had radiation to get through and then I lost my dad without getting to see him when we were originally supposed to have gone for a visit the week I ended up having having my surgery. That will haunt me forever. My one year anniversary was Aug. 31, but…
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There is always hope
Today I saw my Medical oncologist to discuss and make plans. The only tumor that is growing is the one in my chest, so,that can be treated with radiation, and since Keytruda is keeping the other two stable, we can go back to using that again when radiation is finished. My oncologist was able to get me in to,see the…
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Paranoia Question
I'm halfway through my radiation. Today they did the scan they always do before the radiation and I waited at least 15 minutes before they went ahead with the radiation. Afterwards the tech told me there was a bubble they had to check out, that I was fine. A tech wouldn't tell me I wasn't fine. The dr. would do that after…
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From IVb UPSC to NED (Hey, that rhymes!)
I had very good news today. I've gone from stage IVb UPSC to NED again (my second time over the course of 7 years). Nothing was found wrong with me in my PET scan from last Friday. I haven't gotten my CA-125 results yet because the labs were drawn just before my appointment and they take a little longer than my other labs.…
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How about "ALL Cancers October"
Alright, I just have to vent. I HATE pink October. I just want to scream - HEY! WHAT ABOUT OUR CANCER?! I know how many wonderful ladies we have lost and there just doesn't seem to be the money or the research for us - and it is WORSE for the true orphan cancers. Vulvar cancer? These women - were do they go? Who wants to…
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The waiting game never gets easier
The last two weeks have not been the easiest. Two weeks Tuesday I ended up in the ER with severe chest pain on my left side. After many tests for a heart problem, they sent me for a CT scan to rule out a blood clot. That came back with the news that a tumor that I have had beneath my breastbone for quite awhile and that…