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Went for consultations today
Today at 9:31 PM My first consultation was with the thoracic surgeon. My lymph node is too big to do the surgery with a scope. He said the node could be removed that way. The two surgery options he gave me was one a thoracotomy. He would make an incision on my right side and go through the ribs to remove the lymph node.…
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Possible long term effects of radiation
All, this is from the UK and talks about long tern effects of radiation therapy for cervical cancer patients. Since most of us have had radiation for our uterine/endometrial cancers, I wanted to pass along the information as it could be applicable to us as well. A friend of mine has had a lot of issues and in her searches…
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Post menop bleeding after BC
I have a question. I was diagnosed with IDC hormon + Her2+ in November 2009. I had 6 rounds of Chemo and 32 radiation treatments. My periods stopped after my 2nd chemo treatment and never came back until last month. I was on Tomaxafin until about a year ago with no side effects. They put my on the post menopausal drug and…
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OTC Pain Killers
Hi. I've been relying heavily on Tylenol (6-8 extra strength a day) for moderate arthritis pain in my knees and chronic lower back pain (weight related!). Before I got sick I used to take one Aleve a day, but then I heard (online I think) that Aleve and Advil affect estrogen levels and that my sort of cancer-- Endometrioid…
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Greetings.
In March of 2013 my wife and best friend of ten years lost her battle with Stage 4B uterine cancer. It's been a while since I've posted on here, but i have read a lot of posts. Like many of you my wife was scared when she was diagnosed. I think i was more scared than she was to be honest. Michele was a fighter and one of…
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Endometrial vs UPSC
I'm getting myself confused. Need some help out there sisters. My first pathology report shows the words Endometrial and serous. The GYN that did my colposcopy said I had Endometrial cancer. Looked small and they felt it was caught early. I get to the GYN Onc. and he tells me I have a rare type of uterine cancer. UPSC…
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Survival with UPSc stage IV
After reading the UPSC roll call, I'm now wondering how many of you have survived with stage IV of UPSC longer than I have. I had my surgery May 11, 2010 and I remember seeing some people in the past who had survived it longer than I had, but I haven't seen any recently. Are there any others left who have survived longer…
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Stage IIIC2 endometriosis
Hello, I am new to this group, I have completed 6 rounds of chemo 25 rounds of external radiation and 3 internal radiation As of 4 weeks ago. I was told by my oncologist, that my cancer is heritatary. I will have my pet scan in sept. But currently I am stressing over being approved for disability. But other than all this I…
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Bleeding after intercourse and Post cervical cancer treatments
Hello, I am new and I was diagnosed with Stage IIB cervical cancer in late February 2014. I went through all my radiation/chemotherapy treatments and just last week got my 3 month post checkup and was given a cancer-free diagnosis. Praise God. I was told to use a dilator and have regular sex three or more times a week. But…
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I got the appointments for my consultations
I got a call today that I will see the radiation onocologist and the thorasic surgeon next Friday the 29 th. I will get a repeat CAT scan of the chest that morning. The surgeon likes the scan to be within 30 days. So I hope that means I am a candidate for either the cyber knife or surgery. I am hoping for the cyber knife.…
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Monitoring UPSC
Good Morning, Ladies, I saw my gynecologic oncologist yesterday for a three month checkup and so far so good- I am 5 months out from my last treatment and am presently showing NED. My doctor said that there are three things he monitors regularly: 1). How I am feeling physically; 2) my CA-125 (11 now) and 3). my…
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Sara Zipora
Has anyone heard from her? It's been awhile. I miss her positive, upbeat posts.
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I am grateful
I want to say thank you to all the wonderful women who post on this forum and tell you how grateful I am for the kindness and caring that you show for us all. Since Jan's passing I am aware more than ever how important it is to acknowledge each other and be thankful for those who are there for us. It is so encouraging and…
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Trying to find answers
Hi Everyone, My mom was diagnosed with endometrial cancer back in 2008 and my husband and I had been doing everything we could to help her out throughout the years (and to help ourselves cope)...including joining this site. We never would post anything, but we would read the boards and found so much hope and comfort. So…
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The P word
Hi everyone, I've been reading your posts for a few weeks. You're such a lovely and supportive group that I decided to post a message. Ten months ago I collapsed at home after a massive blood loss in the shower. I was taken to hospital for emergency surgery. In my uterus they found a large tumor, 24x16x14cm. I was given a…
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Various immunoassay methods for CA 125
Good Morning, Ladies, I have had three CA-125 immunoassay tests done and each one used a different method to obtain the results. It is confusing and frustration because I don't think these various methods for assessing the CA-125 can be compared with one another. My first CA-125 test was done in November, 2013,…
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Roll Call For UPSC only
Would like to find out the number of women on here who have UPSC, stage, NED or not yet status, age at discovery, and treatment. For such a "rare" cancer, there seems to be quite a few of us on here and showing up recently. Debra, Vidor, Texas, 57.6 years at dx.,UPSC 1a/b, grade c, treatment at M D Anderson in Houston, six…
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Very Scared High White Cells
Dear All, I always read Uterine board from 2009. I never replied due to lack of knowldge. My mother was diagnoised stage 3c and grade 1 in may 2009. she had 6 rounds of chemo and surgery. She was fine till May 14 when they found recurrence in her right lung. luckily she had only 1 spot which they resected. She has gain…
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RO !! I know how you are feeling!!!
So sorry Ro, I know you knew Jan for a long time and it must be difficult for you. But think of her as being in a deep sleep. No more pain, no hospital trips, no tears no more worring and waiting for results thinking what chemo next. She is resting.
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Vanderbilt doing new drug treatment
My sister-in-law, Kelly, has carcinoma sarcoma of the uterus stage four. She has METS in her lungs, stomach and colon, she is still doing very well. While she was in Nashville at the conference she met a doctor who knew that a doctor at Vanderbilt was doing some experimental drugs. She got in touch with Dr. Todd Bauer at…
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Sad News - Jan
It is with a heavy heart that I share this; Jan passed away yesterday, surrounded by family. I believe her name here was Jazzy1. She had a wonderful spirit and fought hard. She will be deeply missed. My prayers are with her family.
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Abdominal pain after eating
My mom has upsc 3c and finished her treatment in Feb, chemo and radiation. She is now complaining from abdominal pain after she eats certain food. She had a scan and nothing was abnormal. I just want to know if anyone have the same problem??? The docs first said it could be virus infection but it has been two weeks now. We…
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Found Incidental Thyroid Nodules
Hi, I have UPSC and am very fortune to be NED at this time. I had my yearly CT scan. This time it included the chest....usually just the abdomen/pelvis area. However, it showed a thyroid nodule. I was then scheduled for an ultrasound, which I had 1/1/2 weeks ago. I had an oncology appointment this past Monday. My doctor…
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Wigs and what to do with them when done.
My aunt passed away in April of this year. My cousin is trying to find out what she can do with the wigs my aunt accumulated. Is there a place that will be able to pass them on to someone else who needs them from chemo.? I suggested she contact Gilda's Club. Any other suggestions? Would appreciate any thoughts. My aunt…
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To keep ovaries or not - new endo cancer, grade 1
Hello. I'm a newly diagnosed uterine cancer (endo adenocarcinoma, squamous differentiation). I've gone to two gyn oncologists and both offer slightly different options. Both encouraged me to test for Lynch because I got this way too young (40) and I don't "fit" the typical case. But one felt he could possibly use the…
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Brachytherapy - Long-Term Side Effect
Hi All: I have just encountered one of the long-term side effects of brachytherapy. I had surgery yesterday for a placement of a ureter stent. At first, I thought it was due to the soft tissue mass that I have wherein my left ureter passes through it. However, after surgery yesterday, my urologist indicated that she feels…
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Radiation Tx change
I have had a hysterectomy and the 6 chemo treatments. 9 of the planned 25 internal radiation treatments are done. Until today I expected to have 3 internal ones. I was staged w Endometrial Adenocarcinoma stage 3C grade 2. However, today my external radiation Dr told me that he and the internal specialist have talked. They…
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Taxol Sensitivity
I had my second round of chemo today. I am getting the standard Carbo/Taxol. During the first round I had a reaction to the Taxol, flushing red face, cramps in my legs and feet, cough, a little difficulty breathing. They immediately stopped the IV and then gave some additional Benadryl. Its a big deal with the nurse…
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Gastropareisis from chemo
I had TAH 11/8/11. Had lymph nodes removed by my para aortic, I have been fine, now since April of this year problems with gastritis and pain and couldn't eat anything rough, just a bland diet. Well I had a test called gastric emptying test, you eat eggs with a nuclear tracer on it, and every hr for 4 they monitor where…
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my 47 year old friend found a lump in her belly
Regular check up dr. found this tumor in the belly, said it is outside of the uterus. Going for advice from gyn/onc. Any info would be appreciated.