Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Archives for January 2013

Taxol-Carbo over, but starting Topotecan for liver mets - a bit discouraged
I was so happy to complete 6 rounds of Taxol-Carbo Jan 9th- have been feeling rocky for weeks and ready to feel better. (Can handle all the side effects except the constant queasiness/stomach ache, and anti-nausea pills do nothing for me.) Had CT scan that showed blood clot in my lung, so started on a blood thinner. Worse…
Gemzar
Does anyone have experience with Gemzar? Am trying to decide between that and weekly Taxol Beila
Another rise in CA 125
Had repeat lab today. The CA 125 is now 505. The last one the end of November was 360. Since I hav no symptoms I am going to continue observation for now and go for a repeat lab the end of March. Last time my CA 125 went to 2700 before changes occurred on the CAT scan, so I am comfortable with waiting and watching. I will…
I have a friend who had a biopsies last week.
She's 65 yrs. old. The dr. told her husband that things look bad. The further he went with the D&C the worst things got. She was called today with her pathology report. They said stage 1 but she would have to undergo a complete hysterectomy. I am an Ovarian cancer patient, diagnosed in May '11. I wasn't staged until my…
Sharing something positive
My friend who has been dealing with a recurrence of UPSC in her pelvis and been on chemo since August receives her last "chemo lite" tomorrow. She did 4 cycles of standard big gun carboplatin and taxol, then 4 weekly treatments of Taxotere. Her PET scan in October was clear and her CA-125 last week was 6 and it has been 6…
weekly taxol
Has anyone ever heard of Taxol every week for 8-10 weeks?
Recently Diagnosed with Uterine Cancer
Hello! My mom was recently diagnosed with Uterine Cancer. We do not know which stage and are hoping that it is very early on. She has her first appointment tomorrow with the gyn oncologist. Some questions/concerns we have had over the past week: 1. She has had severe lower back pain/hamstring (ciatic feeling) over the past…
Diagnosed with MMMT - uterine carcinosarcoma... NEED HELP WITH TREATMENT OPTIONS!
My mom was recently diagnosed with a malignant mixed mellurian tumor (MMMT; carcinosarcoma) in the uterine wall. It was found when the tumor was removed after a laparoscopic hysterectomy. It was determined to be a low stage (because it was confined) but a high grade (because of the size). She underwent radiation every day…
Please help!!!
Hi, I made this account for my mother who is currently fighting cancer once again. Two years ago she was diagnosed with stage 2 uterine lining cancer. She had a hysterectomy done, and then received 3 months of radiation which was d one 5 days a week. Several months later she was complaining of sever back pains, which her…
different chemo options
Does anyone have experience with more than 2 different chemos? Tomorrow I get the results of my CT scan after 4 Doxil treatments to see if it is working I am in a high anxiety state Am trying to tell myself that if it is not being effective, they will prescribe another one eg Gemzar, ...or other agents that I have seen on…
Kathy- Surgery 28th (Monday)
Kathy- I hope and pray that everything will work out with the scheduling this time and the surgery goes perfect. Have a relaxing weekend! Please let us know how you are doing when you can. Big Hugs! Lisa
Dangers of flouride
Most everyone of you ladies is way ahead of me on all things but yesterday I went to a dentist that is fairly progressive on new ideas for health and well being. I went in due to the link of mouth health and cancer, also because I have one failing tooth that is a root canal tooth and there is a link between that and…
CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
Now Thyroid cancer....
Just finished my treatment for radiation 2 weeks ago( which I am still really tired from...) and found out I have thyroid cancer. The biopsy said papillary, so thats good, hope its not in my lymph nodes. Anyone else have this happen to them? The fatigue really concerns me.
Final pathology
I was graded-Endometrioid Adenocarcinoma STAGE 1-A The cancer is only in the endometrium, which is the uterine lining. GRADE 2- Intermediate With Peritoneal Washings positive for malignant cells This is the first time my husband was able to go with me to an appt. with the GYN/ONO. He was not impressed with the doctor…
Symptoms
Hello all, I found this site after I had the courage to make a doctors appt. I must say I am a big baby when it comes to drs. i have had a lot of cancer in my family, daughter had cancer three times and a grandaughter who died of a brian tumor at age 5. so, I have had some spotting( very, very light)l for several months. (…
new drug Dalantercept?
Has anyone heard of this drug or tried it? Starting a phase 2 clinical trial and its an injection that supposed to block blood and nutrient supply to the tumor? Would appreciate any type of feedback. Hoping to find someone who tried it, and would love to hear its working great! :) Thank you!
6-month checkup / NED 3.5 yrs
I'm good for another 6 months...yeah! Have a checkup with oncologist every 6 months and we generally follow the CA125 marker, as fairly reliable for me. Been 2 years since my last CT scan, doc thought lets do one since I've got a small cyst on my liver (non suspecious), but like to watch for any size changes. All is fine,…
Flaxseeds and Estrogen
I eat a lot of flaxseeds with my oatmeal every morning. I was reading about it and found the following here http://www.webmd.com/vitamins-supplements/ingredientmono-991-FLAXSEED.aspx?activeIngredientId=991&activeIngredientName=FLAXSEED Flaxseed is sometimes tried for cancer because it is broken down by the body into…
Three year check up. MMMT 1A
Hi Guys, Just went for my 3 year check up. Had a ct scan, complete blood work and chest xray. All clean. So what are those pains I still feel in my abdomen? I don't know what else to do. Any suggestions?
CA125 went up all else is good, should I be worried?
I went to the MD Anderson today for my 3 year checkup. Pelvic exam and everything was good. They poked and prodded me for a while. Dr. Levenbach said see you in 6 months. Well just got the results of the CA125 and it went up to 61. Now mine has been running a steady 41 for a year and a half. So I am freaking out. I feel…
still waiting
I received a call from my gyn yesterday. She has had the lab review my pap and they have confirmed it. She has spoken to the head gyn onc at Beth Israel Hospital in NY and he wants to review the slides. If he agrees with their conclusion, then a hysterectomy will be scheduled. I have also contacted Memorial Sloan Kettering…
A Little Advice Here...
Ok, Momma has been in rehab since Aug. She is comming home(to my house) Jan.24. She has run out of Medicare, doesn't qualify for Medicaid. and has capped out her priviate insurance. She is 87, can walk a little with a walker, cannot stand for any lenght of time,and is too shaky to dress, bath, eat,or go to the bathroom by…
Mary Ann can use extra prayers
Mary Ann is in the hospital. She had her PET scan last week, and did not get good results. Apparently the Doxil did not work for her. Her CA 125 also raised by 50 per cent. The PET scan also showed fluid in both her lungs and around her heart. They drained the fluid off one lung one day, and then off the other lung the…
Delete.
I decided to delete this, but didn't know how to remove it completely. Sorry.
ct, bone and colonscopy are in my future
17 months from last treatment and NED. Now I have some hip pain with swelling. I think it is nothing but my sister insisted I send a message to the dr. I did. Now I go next week for a ct scan then a bone scan with injections and the dr wants me to have a colonascopy. All of this without seeing her first. I have an…
I had a holistic nurse come to my hospital room!!!!! Very cool!
Yup got a lady walking in saying she was a homeopathic nurse and can she help me with my pain and nausea , this was in the hospital of course. I said, LAY IT ON ME BABY!!!! She let me pick out my scented oils for aromatherapy, she turned on soft cool music and soft lights and she did breathing exercises with me and laying…
shaving head
Okay, had the first infusion last Friday. Not too bad. nothing that I couldn't handle. Had the shot for white blood counts and that appears to be uneventful. So I am approaching the next step. Shaving my head so I can get this over with and start moving on I was wondering if anyone has any advise as to how close. I went to…
Anniversary Question
I hear people talk about 2, 1, 10 years NED.... is that the Dx date or the stop treatment date?
Surgery Rescheduled!
Hello Everyone! I am SO glad I have this board to sound off on b/c I am SO pissed off! My surgery was scheduled for this morning at 8am. I developed a cold over the weekend that got worse by Sunday so I called the surgeon to see what to do. He told me to take Tylenol Cold medicine and still report in. I am feeling like a…

Uterine/Endometrial Cancer

Discussion List