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Enlarged Lymph nodes after TT
Hello all I need your support. I had a TT July 2011 which showed papillary cancer then I had RAI Oct 2011 and my PET scan came back clear. Then in Sept 2012 my Surgeon saw a spot in the isthmus area and was convinced it was scar tissue as he had removed 6 lymph nodes and they were clear. So of course he said let's watch it…
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New to the Forum and scared
Hello! I just found this site and have so many questions and can not wait to browse through and see what others are saying/feeling etc. I had my thyroid removed last Thursday and was told they did not remove any lymph nodes as they did not think they needed too. Yesterday I missed a call from my Dr and new when I called…
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Animal thyroid supplement
Has anyone out there made the switch over to a natural animal thyroid supplement? I am having massive medical problems since having my thyroid removed and going thru RAI. I am thinking maybe having my body process too many chemicals might be the problem. Also my levo seems bo have stopped working.
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Muscle and Joint pain
I had a total thyroidectomy 2 years ago because of Papiloma Cancer. Parathyroid was damaged and never recovered. I did not have RI. I have struggled with spasms the first year. Balancing my calcium levels can be frustrating. Any suggestions for that would be appreciated also. The past 3-4 months I have joint and muscle…
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High level of Thyroglygobin
Hi My sister went a thyroidectomy and after that she underwent radio active iodine treatment 6 months before.Now she had her utra sound scanning in which 2 nodes were found out in the lymph nodes.and also in the blood test thyroglobulin was high (239).But in the full body scan nodes were not seen.To make it more clear FDG…
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Follicular Thyroid Cancer and a Blood Disease-Hemoglobin H disease
HI: I have two teenage daughters, ages 15 and 17 diagnosed recently with Follicular Thyroid Carcinoma. One daughter more extensive than the other, the 15 year old. She is due for RAI treatment in 12 days. She also has a genetic inherited blood disease called Hemohlobin H Disease(In the family of Thallassemia). i cant seem…
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Relay for Life
Hi everybody, So it's time for Relay for Life again, and I'm debating whether to register for the Survivors' Lap. I'm a senior in college, and I haven't told a ton of people at my school (not that I don't want people to know or am uncomfortable talking about it!), and I'm worried that it would be a very rude awakening for…
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Life after total thyroidectomy and RAI
In January I had a totaly thyroidectomy followed by a high does of RAI in February to try and kill off 2 remaining spots of cancer that didn't show up till the scan before the RAI. Since then I have been having major muscle weakness, muscle spasms, shortness of breath and major fatigue. My thyroid level has me out of the…
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Zelboraf (Vemurafenib)
Has anyone with thyroid cancer that is resistent to RI-131 treatment ever been treated with Zelboraf? If so, please let me know your experience and results. Thanks,Bill
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Post Papillary Carcinoma of the Thyroid - scared now -recurrent?
Hi everyone, new here, trying to post this properly. In 2002, I was diagnosed with Papillary Carcinoma after years of undiagnosed symptoms but I did have Hashimoto's . I was taken seriously when the biopsy needle refused to enter the nodule. I had a Total Thyroidectomy with a Neck Disection and removal of about 150 lymph…
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Prayers needed
I am havering a right neck dissection for recurance of papillary thyroid cancer... surgeon said my case is one of the more advanced she has seen.. There will be a thorasic surgeon in on my case because of the location of some of the lymph nodes... Greatly appreciated... Kimberly
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looking for other antiplastic thyroid cancer survivors
In my view if the doctors would not be so bleak , and always not very hopefull a lot more people would do better. I am on my 8 month when they gave me 3 maybe 6 feeling good, they really did not want to treat me, i told them to throw the kitchen sink at me. Told them i was going to prevail the first day and ifeel the same…
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Scared.......How can you tell if cancer is back?
I had TT (+ 2 paratyroids removed) in 2008, and been monitored since. I now found out that I had papillary cancer, and the last few blood tests have shown my thyroglobulin levels slowly going up. I am awaiting tests results of a stimulated thyroglbulin levels. I did have a ultrasound that shows I have two swollen lymph…