Thyroid Cancer
Discussion List
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radiation therapy
DID YOU HAVE RADIATION THERAPY--WEAR A FEEDING TUBE...I AM AFRAID THANKS
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radiation therapy
DID YOU HAVE RADIATION THERAPY--WEAR A FEEDING TUBE...I AM AFRAID THANKS
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My experiance with thyroid cancer nov 2009-oct 2010 (LONG)
I have pulled info off this for multiple people to answer questions i though i would just give a year in review... this is as i keep telling doctors when my body's warinty expired. Nov 2009 through Oct 2010. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically…
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high tg levels
Hi, I would like to clarify on a point. I am a papillary thyroid carcinoma patient which was diagnosed in November 2009. Immediately I had a total thyroidectomy done and 1 month later I also had a high dose I131 ablation therapy done. The scan said I had a focus, which was previously undetected, on my left shoulder region.…
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Easy Food list while on low iodine diet
Does anyone have a list of "convient" foods while on the iodine free diet? I looked on the Thyca website at the cookbook. I know about meat portions and fresh fruit and veggies. I am hunting more for "quick" foods - eg Kelloggs Frosted mini wheats have 0 sodium. Are Hebrew National beef franks ok to eat? I read they are…
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Contamination
oh no, i thought it was ok to be around my 11 year old and my spouse after 1 week in my room. the radiologist said it was ok. i've been hugging my daughter, cooking for everyone. all the normal stuff. my surgery was on the 30th of August and my radiation was done on the 12th of October. i stayed at the hospital for the…
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A Hurthle Cell Carcinoma Case. Need some second opinion advice.
In August 2010 underwent partial thyroid removal for suspected Hurthle cell node. Post surgery pathology report from the University of Iowa Hosps. and Clinics came back positive for Hurthle cell carcinoma. The chances of that diagnosis were 1 in 5 per the thyroid doctor/surgeon. Nodule was fully ecapsulated, no sign of…
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BRAF and lymph node removal
I had a TT two weeks ago (I have papillary cancer). My doctor told me he was having a BRAF test done. He said that if it comes back positive that it is a more aggressive type of papillary cancer. This, combined with my age (49, may mean that it has spread to my lymph nodes. He then spoke about a neck dissection. Has anyone…
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Just how bad
Can anyone share the symptoms they had when they prepared to get their RAI treatment? I had a full TT in September and I get off cytomel and begin my LID on Monday. I am scheduled to get my RAI treatment Nov 10th and intended to work until then. I am starting to think I may have to re-think my plan. Any insights would be…
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WHO IS DORIS EKNIGHT??????????
Can anyone explain this post?
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Anyone else had PET scan to detect recurrance?
I was wondering if anyone has had a PET scan to detect recurrance? Two body scans came back negative, regular bloodwork shows Tg at a 1 (It was always a 0.2 post surgery) Tg level after thyrogen injection is a 5.5 Ultrasound in neck showed small mass in neck, had biopsy done and that dr didn't think it was anything. The…
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6 mos after 1st round of RAI, endo is recommending another...very upset and worried
I'm looking for some guidance from those of you who have been in my shoes or know about thyroid cancer. I had a TT in Feb. 2010 (papillary carcinoma, 1.2 cm tumor on right side) and RAI (101 millicuries) in March 2010. 10 day follow up scan showed uptake in my neck only, on the right side. They let me see the pictures and…
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Parathyroid cancer
I had a parathyroid cancer removed two years ago since then I have suffered from lots of kidney stones due to the high calcium levels.I mean seven operations to remove them and now low function of my left kidney (11%) I have had a lot of different thngs said about this problem and more tests are being done on my biopsy as…
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thyrogen injections
My husband is going for his first thyrogen injection on Monday and we don't know what to expect. He has to get 2 injections and then the radioiodine pill over a three day period. I will be going with him because we don't know if he will be sick afterwards or not. It is about a 30 min drive one way. Please let us know what…
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Thyroid Cancer....Now what?
I have recently been diagnosed with TC. I have been up and down with emotions. I am sure I will get through this, but it just sucks! I wondered about my treatment. I have to be with no thyroid hormone. Everyone says its a terrible time that they don't eat great foods. I see I can eat salt..no iodine...I can eat breads that…
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Odd Scan results, Anyone heard of this?
Hi everyone! My scan was the beginning of September, and I thought everything was alright, but now I am really confused. My Thyroid area lit up of course, but so did both breasts, which was weird. My oncologist didn't get back to me for a week, and he asked if I was nursing which I haven't for years. He said the results…
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Papillary thyroid cancer
I am 2 1/2 years post surgery and I had 2 RAI treatments 6 months a part. The last one was in January 2009. My cancer was a stage IV due to my age, size of tumor, and lymph node involvement. Does anybody know how bad that really is? My doctors are so vague. My endocrinologist just said don't worry about it. Does that sound…
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Working
I am getting ready to do my Radioactive Iodine treatment and my Dr. hasnt given me much information. Most of it I have gotten from my nurse. They havent told me when it would be ok to go back to work. I have been working up until this point, a month after no longer taking my synthroid. I have to say I feel crappy. My…
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New test to determine malignancy of a nodule
Has anyone had this new molecular test to determine if a nodule is benign or malignant prior to surgery? It looks like it could prevent many surgeries when a nodule is suspicious for follicuar/Hurthle cell cancer after a biopsy. Dr Bryan Haugen of U. of CO Hospital presented findings last month after a thyroid conference…
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Anyone have heart palpitation after I-131?
Hi everyone, Momomsa here and I'm new to posting, but not new to reading them! Been through ovarian cancer in January and now Thyroid in August. It's been a couple weeks since my I 131 treatment. I'm waking up in the middle of the night with heart palpitations since. My Endo lowered my synthroid, but it continues. Anyone…
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Did anyone have Heat Stroke before getting Thyroid Cancer and when?
I am curious if anyone else had Heat Stroke at anytime in the years before their diagnosis. I had Heat stroke about fourteen years before and it seemed like I was never the same since. Just wondering if there is any association since the Thyroid acts as a thermostat to our bodies.
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When do Hurthle cells mean surgery?
I am scheduled for a complete TT. The FNA found Hurthle cells and I was told they can't know if it's benign or malignant without removing it. I was also told these cells are common in people with Hashimoto's, which I have. So how come some with these cells get a recommendation for surgery and others not? Sue
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Isolation/ recovery
I have been in isolation for nearly 2 days, and the nuclear med Dr. wants 3 days out of me. I guess it had something to do with the dose. My question; does the constant queasiness go away? I sleep quite a bit, and it's there. I try to eat and I feel nauseated. I am drinking plenty of water, and the ocassional hard candy,…
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external beem radiation, papillary thyroid cancer
im going to be getting external beem radiation 5 days a week for 7 weeks. area is neck and nodes, had a reocurance on left side had neck discestion. pet scan revealed node in sternum , dr side zapping the nodes could help no more reoccurring, Can any1 give me there experience thru this, success, side effects. Thanks greg
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Dr. Oz says thyroid cancer is becoming the "fastest growing cancer in women"
Did anyone watch Dr. Oz last week? Dr. Oz stated that thyroid cancer is becoming "the fastest growing cancer in women." This means that thyroid cancer is becoming an extremely common occurrence in women. The discovery of thyroid cancer is becoming much more prevalent everyday. Their theory is that the radiation acquired…
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No lymph nodes taken during TT
I find it weird that I don't know if my cancer was contained to the thyroid or not because no lymph nodes were taked during surgery. There was one thing that was labeled as a lymph node, but turns out it was an extra-thyroidal extension (or something like that) and no lymph node tissue was detected. I had 5 tumors in my…
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reoccurance tyroid cancer
In may of 2009 i had a complete tyroid removal.And again in june of this year i had to have lymp nodes removed on both sides of my neck called a radical disection. My doctors told me they got everything and to my big surprise that did not happen... I went in for my routine follow tests of a whole week of injections and…
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Menstrual Like Bleeding Post I 131
Hello All I had my first round of I 131 on Wednesday and was giving 100 mci. My menstrual cycle has been somewhat of a mess over the last four years with two pregnancies and breastfeeding for almost 2 years and now an IUD after the birth of my 11 month old. I am on day 2 after my treatment and I have started having some…
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Airports and RAI and security alarms
Hi All, I have a concern about RAI treatment. I was told that I will receive a letter stating what dose I had and that should get me through the detectors at the airport. I was told that I will set of the alarms for 90+ days. Thats a very long time. Anyone experience setting off alarms at the airport and how did you handle…