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Thyroid Cancer

Archives for May 2010

Possible 3rd recurrence
Hi, I am posting here as this seems like my best place to go for advice. I had my first go round with thyroid cancer (pappillary) in 2001, at that time 2.2cm of the thyroid was cancerous and also all 7 lymphnodes they took out of my neck were too. Then in 2008 I went thru alot of crap to get diagnosed. I live in Wyo where…
Childhood Radiation
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
Newbie post TT with Hurthle cell carcinoma and also papillary cancer.
I am waiting to have my RAI. Not even off cytomil yet. Endo wants to look at my lymph nodes. possibly have another neck us. 2 were accidentally removed during tt. both were benign. HCC was 3.5cm with lymphc, capsul, and vasc. invasion. Pap was only .2cm. I have an enlarged lymph node near my armpit...had it looked at last…
Post TT Body Scans
Good Afternoon -- I just have a few questions regarding the body scans. I recently had a TT (in April 2010)due to papillary carcinoma. I am scheduled for my body scan this week. My endo's nurse gave me a quick rundown of what will happen but just want to hear from someone who has experienced it. How long does it take? Did…
diet
I am seriously confused about the iodine diet. they said to have no iodine but packaging dont list iodine. how can you know what to eat. I want to do this right so i dont have to do it again. im on my own with a child and i am scared. if anyone can tell me how to know if food has iodine i would greatly appreciate it.
The best news ever!!
I found out a week ago Saturday that my thyroglobulin is undetectable, for the first time in three years, which means I AM CANCER FREE!!!!!! I never thought I would hear those words. Although I know it can still come back I thank God for answering my prayers and for all the good doctors who treated me for this outcome. I…
Has anyone been diagnosed with two different thyroid cancers?
Hello. I am new to CSN. My FNA in February 2010 showed that I had a Hurthle Cell neoplasm, sadly, so did the second opinion FNA in April. My lobectomy was on May 3, results showed I had Hurthle cell carcinoma (3.2 cm). My second surgery to remove the rest of my thyroid was May 17. I saw my Endo on May 20 who told me they…
New Here
Hi,I had my surgery on May 6. Was supposed to just take out the right Thyroid because 6 mo. ago it wasn't cancer. Everyone was so sure that it wasn't cancer that the surgeon had already starting stiching me up when the biopsy came back cancer. My calcuim levels dropped and they keep me an extra day in the hospital. When I…
Feeling like a Rollercoaster of ups and downs..
Hi Everyone! My Total Thyroid was taken out November 23, 2009 due to the Papillary Cancer. They took two of my Parathyroids, one had cancer and about 15 lymph nodes in which several of them had cancer also. I went thru the RAI in December 2009 and had a clean scan December 31, 2009 I started feeling better mentally once…
eyelids and people damage
Dear friends I am from Sweden, I had 6th operation (Medullary thyroid cancer)about one month ago, unfortunately after operation I got infection in my blood during surgery, lot of pain in my stomach, I was using pain killers like morfin for more than 2 weeks. after operation I found one of my eyelids ( left side) is fell…
eyelids and people damage
Dear friends I am from Sweden, I had 6th operation (Medullary thyroid cancer)about one month ago, unfortunately after operation I got infection in my blood during surgery, lot of pain in my stomach, I was suing pain killers like morfin for more than 2 weeks. after operation I found one of my eyelids ( left side) is fell…
question re: cytomel/thyroid uptake and scan
Hi, I am having a thyroid uptake/scan on June 7th. I have taken synthroid since 1997, but most recently stopped taking it and my doctor replaced it with 25 mcg of cytomel twice a day. My questions: 1. I know I have to stop taking the cytomel prior to the uptake/scan, but not sure if it is to stop 2 weeks prior or 10 days…
1st appointment with Surgeon this Friday
I was recently diagnosed with Thyroid Cancer and see the surgeon this Friday. I have multiple nodules on both sides, some over 1.5cm. The smaller of the large one's was the one with cancer, and I am not sure if they are taking one side or both. I am 32, have a 7 year old, and am a bit nervous about the whole thing. I also…
Swollen Chipmunk Jaw! Help, I need advice!!
In November 2009 I had a Total Thyroidectomy for Papillary Carcinoma; in December 2009 I had the RAI, 150mcgs. That day and the next from the RAI both of my glands swelled up and I looked like a chipmunk, very painful, went away after a few days. Yesterday May 16, 2010 (5month later) I woke up with pain in my right jaw,…
Monday the 17th - thyroid surgery
Oh God, I'm feeling so crazy. My surgery is set for 10 am on Monday. I'm running around trying to keep busy but have such a headache now. I'm off to visit my mom in the Bronx with my children (8 and 6) and then want to do grocery shopping so I don't have to do anything when I come home from the hospital. I want to clean…
Thyroid cancer - scared
I have to go for surgery on Monday and I have been trying to handle everything ok considering that my husband hasn't really been home because he's been working late hours, and my 8 and 6 year old have been sick for the past week and a half. I went through anger, crying and then just trying not to think about the fact that…
was anyone a breast cancer patient first?
I am being checked for some thyroid issues and just got home from another ultrasound. Wondering if anyone had breast cancer first, like me?
Frustrated....Hypo to Hyper to Medullary Cancer
OK, I know everyone has a unique story, but I am so frustrated by my Doctors, maybe it is the "CANCER" diagnosis or "standard care" or "lack of care" from the MD's??? Maybe someone out there has a similar experience or can put it perspective for me. So here is my story; In 1985, my MD diagnosed me with Hypothyroid and I…
Cost of Thyrogen
I have to get Thyrogen in July for my whole body scan marking ONE YEAR! Man, time flies! Anyways, my insurance said I am maxed out and they won't cover it. Surprise, surprise. I don't want to resort to the other option of going off Synthroid. Did anyone else face this issue? Are there any options out there for financial…
tests to determine cancer, etc.
Hi, I am new on this website....I have lots of questions and concerns... I was diagnosed hypothyroid in 1996 and have been taking synthroid all this time. After my second son was born in 2003, a nodule was found on the right side of my thyroid gland. It was sonogrammed and the endocrinologist did a fine needle…
Lid
I am having my rad on May 13 I ask my surgeon if I needed any special prep i.e. lid and he said no. Do I need to check this or is this something that is now always needed. I dont want to go and find out I needed to do the lid and have to pospone because I want to get this done and overwith. Advise please
Bad swelling in jaw, can't open mouth or close teeth together, so swollen.
I've gone through the whole process, RAI, 9 month follow up thyrogen injections, etc. I had the RAI in July, and started getting painful swollen parotid glands in December. It seems like a ways off for that to be a side effect of the RAI, but maybe? The weird thing is that it will come and go for weeks at a time. This last…

Thyroid Cancer

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