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Sarcoma

Archives for September 2010

Anyone with hemagiopericytoma?
My mom has hemangiopericytoma. She has it in her heart (they think-can't do an MRI to tell for sure). She has two mets in her lungs and a few in her liver. She's tried Gemcitabine & Docetoxal, Doxil and now is starting temador & avastin. I've joined a hemagiopericytoma group on Yahoo groups but am curious if there are…
retroperitneal liposarcoma
my wife who had problems going to the bathroom felt something hard on the right side of her abdomen, and it was wd liposarcoma, they removed a huge tumor and just about the 5 year mark, she felt it again, and it was not as big this time, and another surgery with no follow up treatment, then after 7 and a half year later,…
MRI done again
Well I have found out some things since getting news on MRI I had though it didn't include the lump on my arm that is most concerning to me. But the MRI of my shoulder shows it has horrid deteriation and no wonder having problems. Surgery is the only thing that will help me I was told. Though I lost it when had MRI because…
Would like to talk or hear anything positive about surviving ewing
My son (8 yrs ) was dx Feb 2010. He is two treatments away from finishing protocol . Chemo (doxo, vincristin, cyclo, ifos & etop) surgery , radiation ( 10 rnds) . I have been by him and telling he is the strongest , he will beat it , he is exceptional ... Well he is he's been through so much and hardly complained. He's…
Anyone have a child with DFSP? Have you radiated?
My 9 year old son had a nickle sized bump on the top of his foot for only about 2 months when we had it removed (took me that long to get him an appointment). They determined it was dfsp, and admitted him 3 days later to do a wide local resection. They removed the skin and tissue on the entire top of his foot, from the…
myxofibrosarcoma
My son has high grade myxofibrosarcoma stage 3 on his left thigh. It grew through chemo and radiation, he is scheduled to have his left leg amputated on September 22 2010.
looking for others with Spindell cell soft tissue sarcoma !
Hello My name is Mari. My sister Anita who is only 28 yrs old has been diagnosed with 4th Stage Soft Tissue Sarcoma Cancer it started as a small pea size blemish on her knee and was called a "spindle cell tumor" it spread to her calf, up her thigh and into her back now in her thoracic and lumbar as well as metastasized…
Myxoid RoundCell Liposarcoma
I am new just dx'd August 28th. It is located in the right upper thigh. I have been referred to a surgeon experienced in soft tissue sarcomas and have had more MRI, and CAT yesterday Sept. I am awaiting results from the scans. I also had casting and tats done yesterday I am so scared I can hardly type and this is my first…
osteosarcoma with multiple lung mets on both lungs
My 38yr old friend was diagnosed with osteo sarcoma in the mouth (very rare),with multiple lung mets in both lungs 2wks ago.the consultants told her basically thats it she is looking at paliative.apart from weight loss she looks her normal self,fit and healthy looking.and in no need of the morphine that she was given.as…
cancer treatment centers of america
anyone have experience with these hospitals
Angiosarcoma
I was diagnoised with angiosarcoma, post radiation in April of 2004 they did a complete mastdectomy and a skin graft, using skin from my leg. I have been cancer free until this month. I found a bruse below the scar tissue from my surgery. This bruse is in the field of radiation from my first breast cancer.in 1997. I have…
Mike Leo, a good friend of my daughters passes away
http://www.strikeoutsarcoma.com/link.html Sharing with fellow sarcoma patients.

Sarcoma

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