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Rare and Other Cancers

Archives for July 2022

Duodenal Cancer 2022
Dear all, I know this is a super rare cancer but i'm eager to know for anyone's recent experience in dealing with Duodenal Cancer after Whipple Surgery. My dad, 73 was diagnosed of Stage 3 Duodenal Cancer in May 2021. He completed Whipple and 12 rounds of FOLFOX chemo, CA 19.9 recently marks at 27, and with recurrence this…
Malignant Acrospiroma (sweat gland cancer)
My husband has very recently been diagnosed with Malignant Acrospiroma, which is a very rare type of sweat gland cancer. We are told this cancer is very aggressive, and so rare that there wasn’t that much information about it. Well, that’s true. And we need help. We need to get him to the treatment center/care group that’s…
Metastatic Sarcomatoid Carcinoma
Last October, my 24 year old son-in-law was having a tooth issue that wasn’t getting better after several trips to the dentist. After pulling the tooth and a biopsy of the area, it was confirmed cancer. Fast forward 3 weeks to having emergency surgery to remove a softball size tumor that basically exploded from the area…
Metastatic Squamous Cell Carcinoma of Unknown Primary
In November of 2021, I had a biopsy of a swollen lymphnode in my Left Supraclavicular ordered by Ear/Nose/Throat Doctor at UF Shands FL . This is basically where your neck & collarbone meet. 3 samples confirmed that it was cancer. Next was a CT Scan & PET Scan. The PET scan indicated not only evidence of fast growing cells…
Mediastinal NSGCT -Embryonal Carcinoma + Yolk Sac Tumor
Hi, Earlier this year, my younger brother who is 26 years old had a large mass in his anterior mediastinum. There was a lot of problems initially to d diagnose the type of cancer he had because his biopsy samples resulted in inconclusive results twice. After a month, the mass had grown in size (it was measured to be…
ACC , Adrenal Cortical Carcinoma
Anyone else recently been diagnosed/treated? I live near Seattle and seem to have great doctors at SCCA who "have a plan". I had surgery then stereotactic radiation and now getting insurance approval for mitotane with hydrocortisone. Sounds like it is usual treatment. This is tier 5 drug so UHC only covers 75% . My cost…
pancreatic cancer treatment
Has anyone had the experience of living alone while undergoing chemo?

Rare and Other Cancers

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