Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Rare and Other Cancers

Archives for April 2011

Sweat gland breast cancer underarm
Had tumor taken out underarm sweat gland 2 years ago .Mayo said breast tissue origin but not any thing else found in body so far. Had many glands removed . Put on tomoxifen . Now it came back in the same place 2 years later . I don't see any follow ups from people that posted about this in the two years that have past . Is…
Phase I/II clinical trial: viral therapy
I found this on the Ohio State University Comprehensive Cancer Center web site (866-627-7616) This is biological therapy instead of chemotherapy. Viral Therapy in Treating Patients With Ovarian Epithelial Cancer, Primary Peritoneal Cancer, or Fallopian Tube Cancer That Did Not Respond to Platinum Chemotherapy Identifier…
Stage IV oral cavity cancer
Hello out there. Family member received PET Scan that revealed primary cancer cell has spread into the lungs. Doctors are saying incurable. Facing next course of chemo. Any other suggestions on treatment and/or favorable prognosis? We are now seeking a second opinion.
ON THE WAIT AND SEE PLAN....
After numerous testing, blood work, CT scans, MRI, Ultra sounds, PET scan, 2 surgerys...I was finally diagnosed CUP...at this time Oncologist wants to continue testing.. blood work every 6 weeks and CT scan every 12 weeks and just wait and see. Being that diagnosis is unknown primary mets to liver its hard to determine…
WANTED! PEEPS WHO HAVE HAD LIVER RESECTION
I am looking for anyone who has had a liver resection...I had a liver resection Jan. 2011 and still having pain. The pain is worse after eating. It hurts to walk. I'm still on pain meds and wondering if this is normal or not. I hope at some point this goes away. Please advise!
I am a 20-year Pancreatic Cancer Survivor
I am a Pancreatic Cancer 20-Year Survivor! I am a retired high school teacher, an advocate for animal welfare, a conservationist and an environmentalist. I exercise daily, adhere to a semi-vegetarian diet, like keeping things simple, and enjoy simple day-to-day life with my family. My only daughter is studying for her…
scared to death...unknown primary
I'm a 10 yr. Breast cancer survivor and in Nov. 2010 I had a gallbladder attack and had emergency surgery to have it removed. At that time surgeon noticed spot on liver and biopsyed it and it came back positive for cancer. Pathology report said breast cancer mets to liver. My oncologist wasn't buying that and got a second…
cyst with high cancer markers head of pancreas
i have been told i have a cyst on the head of the pancreas with cea of 8995 and that i should probably have a whipple procedure. does anyone have this and did they have this procedure? what are the chances it will spread? how long should i wait? canada doesn't have fast health care you can wait 6 months for a consult and…
My Mum has Primary Peritoneal Cancer and I'm lost
On April 13th, I was called around to my parents house to sit down with my Mum and Dad over something they needed to speak to me face to face. Two things in life scare me and also mean there's something wrong: 1. phone calls in the middle of the night (my family is from england so the time difference means emeregencies…
Gallbladder Cancer - 2011
I am new to the group and in radiation and chemo (Xeloda). For my story, please see my postings on Gallbladder Cancer Stage 4. I am wondering if anyone else has had hand swelling and soreness from taking Xeloda? It is a common side effect and hit me on Day 8. I had to discontinue chemo for one day. Since I have a full six…
PARP Inhibitors for Melanoma
Some cell-based assay labs have explored the biology of PARP inhibitors, alone and in combination, in actual human tumor primary culture microspeheroids (microclusters), in breast, ovarian and other cancers. In these investigations, the lab applies the functional profiling platform to understand how PARP inhibitors enhance…
Carcinoid Tumor on Lung
Is there anyone out there who has also had this type of cancer? I have searched and searched on here and can find very little. Thanks, De
Adenocarcinoma Unknown Primary - Phase 1 Clinical trials
Hello, Have you, or anyone you know, have a similar diagnosis as my wife? (Metastatic adenocarcinoma of unknown primary. Tumors discovered in liver and has spread to other areas). After 12 months, my wife continues the fight. After 5 months of chemotherapy, she is now enrolled in Phase-1 clinical trials (MD Anderson Cancer…
gallbladder cancer stage 4
I am a 65 year old woman recently diagnosed with metastic gallbladder cancer. Towards the end of February this year I began to have symtoms including pain in my gallbladder area. My doctor agreed with me that i needed to have my gallbladder removed as I had had stones for many years.However, I became very sick over a…
Going on 11 years with Chondrosarcoma Cancer. Sux!
Hi all. I am new to this website although I'm not new to having cancer! I was told I had cancer in 2001. The past ten years have been very crazy. I have had six surgeries and three years of chemo. The Chondrosarcoma start out as a lump on my right shoulder blade. In 2001 I had my first surgery to remove the timer that was…
chromogranin A test
Hi, I am glad to find this site, very helpful. I am currently being worked up for pheo/carcinoid/neuroendocrine... Have classic symptoms. My chromogranin A came back elevated from Quest diagnostic: Chromogranin A SERUM 26.0 (H) ng/mL 1.9-15.0 (normal range per lab) What does this mean, does not seem very high, are there…
Neuroblastoma
Is anyone familiar with neuroblastoma in young adults?

Rare and Other Cancers

Discussion List