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Prostate Cancer

Archives for April 2018

Crispr
Did anyone see 60 minutes last night? Anyone on Crispr trials? Looks promising.
Joining the club no one wants to belong to.
Hello, My husband was diagnosed with cancer in February. We actually were informed that he had a small shadow on his PET scan for head and neck cancer back in January of 2017. But we had to get through those treatments before we checked out what the dr saw. Fast forward to Feb of 2018. He finally had a biopsy done and two…
Post Prostate Surgery Radiation
Sat, 04/28/2018 - 7:50am — Q-Ball I am now 7 weeks post surgery and had a few thoughts I wished to share and ask about. the first is I was in a quandary about male pads and underwear. If it wasn’t for this site I would have stayed in the dark. I wanot to thank everyone for their candor and honesty, the result, boxer/brief…
My recent PSA Test
Would appreciate getting your thoughts. I was diagnosed with Prostate cancer back in 2002 with a Gleason score of 3+3. Had Radical Prostatectomy in 2002. PSA has been zero until last week. Showed 3ng/ml which was a complete shock considering I was cancer free for 15 years. Any idea what is happening? Error in PSA testing?…
5 week Post Op
Well, I have my 5 week post op with my doctor tomorrow. I am 67. Gleason 4+3=7. RP; bladder neck reconstruction; 8 pelvic lymph nodes removed. I know he is going to ask about the incontinence which I still have, but not like it was, getting better. I know he will ask about the ED part. My wife and I checked that out today…
The value of second opinions
When I was diagnosed last fall, all my test results, biopsy, Gleason, MRI and Oncotype testing pointed to Active Surveillance as the best mode of treatment. The original biopsy had one positive core with a Gleason of 3+3. The the pathology report on my second confirmatory biopsy came back with two cores, 3 & 7% showing a…
Post External Beam Radiation Urinary Stricture Questions
Folks: I just completed external beam radiation (using Varian Truebeam IMRT) on Wednesday, April 18, 2018). Total number of EB sessions was 43 over 8 weeks. Being a long-time active exerciser (used to commute by bicycle 30 miles per day before retirement, but continuing bicycling now in retirement), I never had any…
gleason score 9 with hormone therapy in one week
Just received the news from my nurologist that I have a gleason score of 9 with bone metastatic bone lesions. I guess what I would like to get from this site is some indication of how long do I have to live. I'm 64, and want to hear from all of you, just how long can a person live with this cancer. Of course using all the…
What happened?
What happened to the button to notify administrators about inappropriate comments?
Medicare coverage for second pathologist's opinion
I just checked my Medicare online account and the billing for a second opinion of my confirmatory biopsy slides by Johns Hopkins was denied by Medicare. Is this normal/usual? If their analysis overrules the first pathologist's report, $250 is money well spent. In either case, I can afford it and value the second opinion.…
Health of the Prostate Gland after biopsy
Hey guys, I was wondering if any of you knowledgeable folks can provide me with some info on the after care of the prostate gland once a biopsy has been done. How long does the gland take to heal fully? Is there anything one can take (food, supplements, exercise?) to help promote the healing of the gland? How long does the…
4 Weeks Ago Today
4 weeks ago today I had my RP; Bladder Neck Reconstruction; Bliateral Pelvic Lymph Node Dissection (8). I am still a little sore. I am still incontinent. The good news is that this morning when I checked my pad there was no urine in it. So pretty much dry from 9:00 PM last nght to around 6:00 AM this morning. Hopefully the…
Movember 2017
After my prostatectomy in Oct 2017, I wrote the following email to my adult male friends over the age of 40. I hesitated to post it online as it's a bit graphic. But I've now shared it with over 100 people through email and figure the cat is out of the bag. So, I'm posting it here for others - on the nameless/faceless…
Update 3wks 2 days after RP
Surgery: 03/20/2018; RP; bilateral pelvic lymph node dissection (8); bladder neck reconstruction. Pathology: All avenues for spread of the cancer showed benign. Exercise: Walked 20 miles in steps last week; kegel 4 times a day 10 to a set. Status: Still incontinent, but yesterday when I got up there was only urine about…
Sudden PSA jump from .04 to .10, 5 years after Radical Prostatectomy
Hi, My dad had a radical prostatectomy 5 years ago. His Gleason score was 3+4. His PSA was zero a while after the surgery, eventually it crept up to .04 and has stayed there for the past year or so. He had a PSA test at the end of Januray and it was still .04. Just the other day he had it tested again as part of his…
Fiducial markers
Hello all. I last posted on March 15, 2018. I received some excellent advice from several members. After much research and discussion with friends, my oncologists and urologist I have opted for Hormone and radiation therapies. I received my first 4 month Lupron injection yesterday and am scheduled for a radiation class…
Gleason 7 Active Survellance
Yesterday I had a consult with a very good surgeon at the UNM Cancer Center. He does a lot of prostate removals with a high success rate and low side effects. He said because of my previous TURP and bladder opening scaring he would not recommend surgery, as it was sure to cause incontinence. He thought I should try active…
Side effects of modern PCa treatments compared
http://urologytimes.modernmedicine.com/urology-times/news/side-effects-modern-pca-treatments-compared?utm_source=PFOC+April+2018+Programs+bulletin&utm_campaign=April+2018+bulletin+&utm_medium=email Side effects of modern PCa treatments compared Newer, older treatments show little difference in functional outcomes August…
Good news about HIFU for prostate Ca
https://www.medscape.com/viewarticle/894885 CIGNA started covering HIFU for PCa treatment. MK
Question about AMACR Staining Test
Hello, If a prostate biopsy was negative in the pathology, had a positive staining for p 63 (Immunoreactive, score 4+ in all myoepithelial cells present in all glands), is an AMACR staining test required to rule out prostate cancer? Thank you, Zent
enlarged bladder
I had a prostatectomy and diverticulotomy one year ago, and still am experiencing incontinence issues. I mentioned to my urologist that I can go hours without feeling the sensation that I need to pee. When the urge does present itself, it is sudden and I can have a complete flooding. Also, I can sometimes void and not know…
Surgery or Proton therapy? What do you think?
Looking for best treatment option surgery or proton therapy, so far I have completed one consult with a radiation oncologist who suggested I start hormone treatment that day. I didn’t think this was the best idea since I had other consults with two University based cancer centers scheduled. MD Anderson Proton Center has…
Underwear for Incontinence
Well, I have now tried Depends and Tena. In my opinion, both capture and contain the urine just fine as long as you do not move a lot at night. In this case, Tena is better. Tena is bulkier than the Depends. The Depends did not give my testicles a safe place to land. Actually, hurt in some cases. Tena is better. So far, I…
One week since Catheter removed RP 3/20/2018
Well, it has been one week since my catheter was removed. I am stiil incontinent. With that said, when I am not incontinent and actually make it to the bathroom, I must say I have not had a stream flow like that since I was much younger ( I could pee across the room if I wanted to). There are times when everything seems…
Another urodynamic test
One year after my prostatectomy/diverticulotomy it was suggested I have another urodynamic study. I mentioned that I can still go long periods of time without the sensation that I need to pee. Before the study, I urinated over 700ml. into their beaker after losing a little previous to that. I wear a diaper which was a…
Radiation Proctitis Argon Plasma Coagulation treatment
I had radiotion treatments that ended in may of 2017, Started seeing blood clots in my stool. Turned out to be Radiation Proctitis..During Sigmoid oscopy they were able to see the bleading and there was a lot of damage and the Dr he basically lasered the whole area. I saw the photos... Has any one had any side effect from…
MK tell us your story
MK... if you want to help the guys who come to this forum, you should tell the whole story from beginning to end. If you only share snippets in an effort to disparage robotic surgery, no one will know why robotic surgery was wrong in your instance, and how they can avoid those outcomes. You have mentioned your marriage…
Anyone hear from Rakendra?
Has anyone heard from Rakendra lately? I dont necessarily agree with Rakendra's religious views, but right now, he could have some very good input into some of the controversy in this forum. I am guessing he could give some sage advice on how to deal emotionally with circumstances that are beyond one's control. Does anyone…
Just got my biopsy results .. now what?
just got my results 14 samples, 2 were 3+4 and 3 were 3+3. Ranged from 5% involved to 15%. 1mm to 3mm. recommendation is robotic surgery, dr Patel , Florida Hospital within 6 months. He has performed more than 11,000 over 15 years. with high success rate of minimal side effacts and fast recovery. Was considering radiation…
Post surgery persistent psa
Prostate cancer diagnosed last late August, Cancer staged as T1cN0MO, 1 out of 12 biopsies sample, lesion about 0.8 mm butting Capsule boundary. Gleason score at 8; PSA 5.2 All bone scan negative. Surgery in early Jan shows 10% Tumor; Extraprostatic Extension but negative in Margin and Negative in both Lymph nodes and…

Prostate Cancer

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