Prostate Cancer
Discussion List
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Things to Do When You Have Prostate Cancer
Get your picture on the front page of the paper- without getting arrested first. I am Carl Brown. http://tinyurl.com/AmmyRescueCCD http://www.cooscountydemocrat.com
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Enlarged Prostate Normal PSA
New to the board. My dad who is 56, visited the urologist last week, judging from the Ultrasound, the urologist thinks my Dad has an enlarged prostate. The urine sample showed no blood. A PSA test was done the same day, and the psa test came back at 0.2. My dad is somewhat obese, don't know if that would influence a psa…
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First PSA after RP .3
My husband who is 47 had RP on December 15th, his first PSA followup shows a level of .3 and the Dr is recomending he have Radiation treatments. Has not met with Radiation oncologist yet. Was a bit of a shock to us since the pathology of the prostate showed clear margins but he did have gleason score 9 cancer show in both…
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Nutrition and Cancer
I attended a Nutrition and Cancer seminar at UCSF today and thought I'd share what I learned, which actually was pretty much what I expected -- eat better quality food (less fat, less red meat, less salt, less sugar, less alcohol and more fruit, veggies, fish, nuts, whole grains, fiber and antioxidants) and exercise more…
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I Sure do Miss the Chat room!
It has been down for several days now. : (
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Incontinence underwear
At a DaVinci support group meeting, a nice woman mentioned she had gotten these very underwear-like garments for her husband. The incontinence pads slip right into them. They are very pleased with them so I just ordered two pair for Jesse. You can check them out at: http://www.llmedico.com/n/gentleman/
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Proton Newsletter for LLU "Grads"
This is how this month's letter from Robert Marckini begins to those who are on the "BOB" (LLU Graduates): "Dear Members, It is now almost 10 years since my proton treatment at Loma Linda. Last week I had my PSA checked and the number is in the same range it's been since it reached nadir seven years ago. Each time I…
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Psa down;-)
Just got PSA results......0.1 YAHOOOOOOOO! After surgery last May & radiation (37) that finished in late Dec. I got GOOD news! Think I'll go have a glass of red...or 2. Cheers...
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Post Surgery, Foods and Leaking
RRMCJIM mentioned in a posting that certain foods- he mentioned pizza, caffine, OJ, and a few others- seem to affact his bladder and may be connected to leaking. I was wondering what foos, if any, you can conect to leaking? Are we doomed to eating dry creakers and water? Anyway, I am looking for a discussion on foods that…
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Hello again
I wrote on the board about 2 weeks ago, the heading I believe was "Husband" I was fearful of his robotic surgery on April 10th at Kaiser west LA. Well he did have the surgery to remove the prostate and pelvic lymph nodes, all went well, no complications Thank GOD. Tomorrow he is having the cath removed and the Dr is going…
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Joined the club April 7
Hi all. These sites are wonderful to those of us dealing with this issue. I had Da Vinci robot radical prostatectomy on April 7. Catheter came out 4 days ago on 14th. I had virtually no pain after surgery - just some discomfort - I have a moderate tolerance for pain. Anyway, walked with cath, still walking lots each day.…
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Six month checkup
Just had my six month checkup post davinci. PSA is still zero, but before I get too giddy, my Uro told me about a guy that did his checkups for a year and then after all zeros, quit getting PSA tests. Then 8 years later he returned with bone cancer and died. Lesson - don't skip the checkups until your Dr releases you from…
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Just Got Home
I had my robotic 2 days ago. I'm surprised by the amount of pain I'm experiencing. The gas pain is also a special treat. Is this pain to be expected?
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Open RP vs RT + Hormones for high volume PCa
First, thank you to all the courageous men and women on this CSN PCa forum for sharing your stories and helping us newbies learn from your experience. My husband, PJD, was dx’d Feb 11, 2010. I’ve been following your entries since then and sharing them with him. We are dealing with this together as a team. Since his dx, we…
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Six week Visit-post surgery
Went for my six week post surgery visit today (actually 6 weeks and 2 days) and my urologist told me to just live my life. He was surprised that the last three week I have pushed out 50+ miles per week average and now and I have no physical restriction and I can prepare for my Half Dome climb later on this year…He also…
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Hats off to you Ladies in our lives........
In most cases discussed here, I observed one of two things (typically). 1) There is a picture of the poor sap who has PC, but in the pic, there is often a pic of his gal standing/sitting there with him. 2) If #1 above is not applicable, I hear writings/stories of the lady that is the foundation for healing & understanding…
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Coloplast Virtue sling out / American Medical System AdVance sling in. Now 100% dry for the first t
Last July I was implanted with a Coloplast Virtue sling without my consent. I had consented to American Medical System's AdVance sling or an identical design if it existed. After suffering approximately one month with continuous and horrific pain, following implant surgery, I was horrified to learn that I had not been…
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2010 JOHNS HOPKINS PAPER ABOUT PROSTATE CANCER CURE
FYI. I just found out about this. Disregard or pass it along if you have read it. http://www.johnshopkinshealthalerts.com/reports/pdfs/JHHAGuideto7keystoProstateCancer.pdf Please let me know if the link works.
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Relaxing & smile
A little humor for our forum: I found from another forum to give us some stress realease Grandma and Grandpa were visiting their kids overnight. When Grandpa found a bottle of Viagra in his son's medicine cabinet, he asked about using one of the pills. The son said, "I don't think you should take one Dad; they're very…
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Recently Diagnosed with Prostate Cancer
I have been reading some of the post that everybody has posted here trying to figure out my options. I have been battling with PSA levels for the last couple years, starting around 3 to 5.5 to 7.5 to 5 and now to 8.6, this over the last two years and had been treating it with antibiotics. I had a biopsy done last week and…
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FYI ONLY-New Proton Therapy Institute
The Hampton Roads area in Virginia will have its own proton therapy institute. It will be operational in August. I have indicated on my other posts that I'm now considering proton therapy instead of surgery. Bringing the treatment closer to home makes it even better. http://www.hamptonproton.org/
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Eligard and Viagra
Hello Everyone, Its me again, can anyone tell me where I can get discounted or generic Eligard or Viagra, my surgery is in the next 2 weeks and I want to start getting my meds now. Also does anyone know where I can get a good pump without paying an arm or a leg. I'd really appreciate it. Thanks, TonyJr
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Thank You to All!! (Surgery date in two weeks!!!!)
Hello everyone, Well I haven't been here in awhile, but I'm back now no new changes other than PSA dropped from 7.2 to 6.3 last month, not much difference but down is better than up I would say. April 30th is my judgement day...scared as all get out but SOMETIMES YOU GOTTA DO, WHATCHA GOTTA DO!!! :-) I got married over the…
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WooHoo
Well guys, something happened tonight that even before my operation I tought might never happen again, and afterwards I really thought would never happen again. I mentioned in a few posts after surgery that one of the things that was really important to me was to get back to bowling in our Monday League with my wife. I…
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Budwig Diet
Hi again Re hubby with the Gleason 9 he is now off the oral hormone treatment as it was not working for him .He had a hormone injection 2 weeks ago and it is a three month treatment. We live in Northern Ireland so we have to use the National Health Service. He was using the Budwig diet for a while last year as I had read…
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ZERO.ZERO ONE yahooooooooooooo Today
yep yahoooooooooo 0.01 I love it got my first PSA results today after 3 months wait ,from a georgeous young Female Indian Dr . She was so helpfull and very possitive finnally got the answers I wanted to here .She told me they had saved both nerve bundles and things will keep improving . ED issues starting to improve with…
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zero
Hi all, 2nd post op psa <0.03 This is at 5 months post surgery. Surgeon pleased and so am I! Cheers Mike
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Eligard, Lupron and bone pain
Hi everyone. I am 60 years old, had robotic prostetectomy in Jan 2008, had 35 sessions of radiation, and was put on Lupron, Eligard and Casodex for a year. Last shot was a 3-monther in Nov of 2009. My first 2 shots were Lupron in the buttocks. My second 2 shots were Eligard in my stomach fat. Casosdex was discontinued…
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Prostate cancer drug boosts heart disease risk..
A common prostate cancer cancer treatment may significantly increase men's risk of heart problems, according to a study conducted by researchers from King's College London and presented at a joint meeting of the European Cancer Organization and the European Society for Medical Oncology in Berlin.…
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Waiting for Surgery
I was diagnosed yesterday with prostate cancer and scheduled robotic surgery on June 22nd (first available date). I am concerned about the ten week wait. Does the cancer grow that slowly that waiting is not a problem? My brother recently passed away from prostate cancer that metastasized to his bones, so I am very…