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HAPPY NEW YEAR!
To everyone on this board - patients, survivors, caregivers, family, friends - may 2013 bring you health, joy and renewed strength. And may we continue to be able to meet here to share, uplift eachother, and discover hope and friendship. (((HUGS))) & PRAYERS TO YOU ALL, Monika
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What could this be?
Hello, had my right ovary taken out last April, of course, menopause kicked in with a vengeance so I started HRT first of August. Everything has been fine. I did start an anti-anxiety med about 1 month ago. About 2-3 weeks ago I started to have sharp pain in the lower pelvis (about where my ovaries are) - they only last a…
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Pain
Has anybody experienced a lot of pain due to the extent of their disease while still being treated? My mother has a lot of uppe ab pain/pressure - and I am hoping that if/when chemo shrinks things, the pain will subside, and her appetite will increase.
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Can someone please tell me what tests suspected your cancer?
Hi! I've been recently having tests for many symptoms of ovarian cancer and feel as if something is being missed along the way. I don't know if the drs have performed all proper tests or if they just don't do anymore because ovarian cancer is so hard to detect? I amallergic to ct scan dye so I had Pelvic/ abdominal mri Tv…
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Is IP Port an option only with first line chemo?
I did not have IP during first line treatment last year. I was just curious as to whether or not it is an option now that I have a recurrence. thanks, Carla
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To IP Port or Not IP Port - any feedback?
My mother is currently facing the decision of whether or not to have an IP port installed when her debulking surgery takes place in two weeks. We are grappling with this decision because her first 4 chemo treatments (via IV with Carbo/Taxil - not sure if I'm spelling that correctly) went great. Her numbers came way down…
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Re-occurance question
Has anyone had a re-occurance in their diaphram? Going for a biopsy next week. Wondering what to expect. More chemo? Taxol again, or a different kind? Radiation or surgery? The first 6 rounds of taxol seemed to work really good and my ca 125 was down to 8, but it didnt last long. Already after 3 rounds of the low dose…
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Felicia.. How are you?
Just wondering how you are doing. I have not seen you on in a while.
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Good news
I may be taking my last carbo treatment for my first recurrance that did not respond to Doxil. I am allergic to it so I have to have it in the hospital and get desensitized. Takes about 24 hours but works well. My CA 125 is 11! The Dr would like to give me a couple extra treatments as it works so well but on the other…
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Vitamix? Is it worth the price?
I am seriously considering purchasing a vitamix. I want to hear from those who have used them. Both positive and negative comments. Thanks, Carla
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Confused - CA125 increased after debulking
My Mom was diagnosed with cancer in November 2012. Her CA 125 was 5,338 November 24, 2012 after a tumor was discovered in her abdomen from a CT scan. She had ascites, too, and had 3.5 liters drained (red color). She had surgery the last week of November and had 95% of the cancer removed and another 4 liters of ascites…
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Has anybody had an experience like this?
My mom was dx w/ stage 4 on Dec. 2. She completed her first round of taxol/carboplatin 10 days ago - and has been in the hospital ever since. Her nausea and pain and pressure(upper abdomen ) are awful. She really isn't eating and has been on and off of IV fluids. Also, had NG tube for a few days. She gags a lot, and vomits…
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Mom checkup in January - hoping for sustained second remission
Hello all, I'm new here! My mom was diagnosed with stage IV ovarian cancer in October 2009 at 69 yrs, had successful surgery and chemo and remission for 2.5 years with CA125 below 10. Recurrence in May 2012 with only one small tumor, went through carbo/taxol series and it vanished and CA125 went below 10 again- Dr.…
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Bucket List
I just read an article about this 47-year-old woman in England with terminal bowel cancer and 6 months' prognosis, who posted her “bucket list” on Facebook. With the help and donations from friends and strangers she is going through her list, which included things like: Go to music festival, Learn to salsa, Limo ride with…
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Merry Christmas
Merry Christmas to all teal sisters. I hope the new year bring happiness and health for everyone. Love you all.
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Research if you are interested
Two things have been brought to my attention that I would like to pass along to everyone. I've not researched it very much but both sound encouraging. 1. Soricimed company is currently doing human trials on the spit of a shrew. Has shown in animals to kill ovarian ancer cells. 2. cbapharma company is awaiting FDA approval…
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Merry Christmas to All!
Well, I made it to Christmas! There were times this year that I didn't think I would! I am so grateful for all the women who have gone before, who taught the doctors better ways to treat this dreadful cancer. I'm grateful I live within a few miles of a great cancer center...2 in fact...I had a choice between 2 of the best…
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nausea
My mother is now 9 days past her first taxol/carboplatin tx, and she is still in the hospital. She was on NG tube and not moving her bowels, but that has cleared, she moves her bowels now, and the NG tube is out. She is still soooooooo nausous. She was like this before the chemo too. She is keeping down clear liquids…
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My brother passed away yesterday from Cancer
Hello everyone....Below is what I posted on facebook about my brother. My brother passed after a hard 9 month battle with Acute Panamyelosis with Mylofribrosis. His body finally gave out. I informed everyone about 9 months ago that my brother was diagnosed with a very rare blood cancer. He underwent a bone marrow…
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Traveling alone?
Hi Ladies, My son lives about 9 hrs. away from me. His fiance is about 6 hrs. from me. She seems to not understand that I am not comfortable in traveling that long distance alone. I am currently on Doxil for recurrence. Since my husband died 2 1/2 yrs. ago I am not comfortable traveling alone. I go to see my daughter in…
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Traveling alone?
Hi Ladies, My son lives about 9 hrs. away from me. His fiance is about 6 hrs. from me. She seems to not understand that I am not comfortable in traveling that long distance alone. I am currently on Doxil for recurrence. Since my husband died 2 1/2 yrs. ago I am not comfortable traveling alone. I go to see my daughter in…
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How long until chemo shrinks tumor/ascites
It has been 7 days since my mother had her first tx of taxol/carboplatin - and no changes that I can see. Is it too early to expect anything? They drained 2 liters of fluid a few days ago, and it is back. She feels so uncomfortable - like her upper abdomen is being stretched. I guess I need to be more patient.
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Latest CA 125
Received results in mail yesterday. Rose again from 31 to 40. Onc says we will do the January test and a petscan to see what is going on. I wish I would've thought to wait until after Christmas to open the letter. Last month I got the bad news the day after Thanksgiving. I must admit it is harder to keep upbeat. I am tired…
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carcinosarcoma
Apparently, this is what my mother has. I just found this out yesterday. The cancer has 2 elements, the sarcoma part being very aggressive and resistive to tx. It is rare to see a mixed tumor like this - I think less than 1%, and it makes the prognosis very poor. She said it may take up to 6 weeks to see if chemo is going…
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Another IT-related rant by an angry cancer woman
As I posted my previous comment, I also noticed that - it got cut off mid-paragraph, even though the full text is visible in "Edit" mode - it did not update "last user posted" on the board The part that got cut off reads: "Since there is no way to contact tech support, if anyone is reading this PLEASE roll back to the…
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First cancer and now this!
This is an angry rant about CSN maintenance performed today and the new format. OMG what a disappointment! In the first 5 minutes I noticed the following glitches (I am sure there are hundreds more) - Content of Inbox disappeared; - Contact CSN link does not work - Pictures and friend status disappeared next to posts in…
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Sarcomatous
Has anybody heard of this component in ovarian cancer? Apparently, my mother has a mixed cancer, and this component is more aggressive and takes longer to respond to chemo, if it responds at all. She is getting slowly better, one week past chemo. Still in the hospital, no ng tube, moving her bowels and eating light foods.…
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Question for Tethys (fat flush plan)
Hi Tethys, I read your recommendation of the fat flush plan on another thread. Have you used this? I found the website and it looks very interesting to me! I am on Doxil for my first recurrence. However, I need to do something. I lost a lot of weight when I first become ill last year. I've already re-gained 20 lbs. of it.…
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Erika Beth a.k.a. Erixka
Erika is a young mother with 5 small children living in Israel. She was diagnosed with stage 3 ovarian cancer in July 2012. She posted on this board a few times. She writes a blog called "Mama Bla Blah". Judging from her recent posts she is having a hard time with chemo. If anyone wants to show their support, blog address…
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Planned CSN Outage
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff