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Different perspectives
I was watching a program that followed four families dealing with the economy and unemployement. One woman explained that she felt people in an economic crisis do not receive the same kind of support given to someone who, for example, has cancer. She said, It is harder to be unemployed than to have cancer." I am in no way…
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Update, Met Dr. Lowy for second opinion
So we fell in love with Dr. Lowy!! His game plan was way different than the gastro/onco at UCI, and we liked it better! Dr. Lowy said he does not believe I need to start chemo, but rather he wants to give me about two and a half months to just heal, then he wants to go in to do the HIPEC. We explained that Dr. Bristow said…
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Cramping after surgery
I am 16 days post-op. My ovary, fallopian tube, and omentum were removed. They stopped there because the gyno/onco found it was a muconious cancer, and not ovarian. Anyhow, my question is, is it normal to have very bad cramping still. It does appear to be gas. It does seem relieved from passing it, but it can build up for…
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Rreally?Well, thanks for the reminder....DUH!
Ladies, Today I was chatting with a friend on F.B. We were talking about a job I have applied for which would allow me to live near my daughter while she is still in college. Anyway, she was encouraging about the position and said "well you don't know how much time you left!" My reply NOBODY DOES!! a I just wish people…
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Fifth session
I just had my fifth session of chemo and it seems to be tougher than the others. My legs from the knees down are really aching not the muscles but it seems like the bones themselves. Also the taste in my mouth is twice as bad as it waS. Not sleeping well either.Any similar experiences...Do not know what to expect from the…
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Words from gyn/surgeon
This is the message I got from my gyn/surgeon in response to questions I asked about my current situation. I had been in remission since my initial cancer treatment and now have a 1x2 inch tumor near my liver. I asked if I am now considered to have recurrent ovarian cancer, why no surgery, why Tamoxifen? "Yes you have a…
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Has anyone heard from Carolenk lately?
I miss her posts and comments. She was on cargo/gemzar (the same as me), and i was wondering how she did on this chemo combo. Hope you're OK and are off somewhere having fun, Carolen! Cheers, Jo
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Cymbalta
Hi gals, just a quick update. I am almost finished 6 doses of avastin and am getting my 6th/DC (taxotere and carbo) this week. My CA125 seems to have leveled off, and my body is leveling down, so I asked if I could take a month off of the treatment. My doc wants me to stay on the same combo after my break, but meanwhile I…
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Sad news
I just found out that the tumors my cousin has on his spine are inoperable and untreatable. He is 67 and has suffered with Parkinson's for many years. He was like an older brother to me when I was a child and we remained close through the years. I am his son's godmother. There were ten of us cousins and so far four of us…
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Back to chemo tomorrow
after my 5 week break. I've been chemoing for 2 1/2 years! so the time off was so very wonderful. Good news is that my counts stayed stable and I found out how strong I could get in such a small amount of time. I'm not sure what others would choose to do with time off ( for good behavior? ), but I got to spend lots of…
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sons funeral is over, thank you everyone
Thank you everyone for all the hugs, prays and well wishes, it meant a lot to me. Now comes the days of dealing with life without him. All the quest and family are gone and its quiet. Hoping each day gets easier, need to start to focus back on my health with I have neglected. It's not going to be easy. Thank you once…
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Im sooo Nervous
I am meeting with the doc tomorrow and I am hoping to findout what my treatment plan is going to be and when I will be starting it. I had my surgery in feb so I feel like I should've started treatment a while ago. Im really nervous, all I know so far is that they are planning to give me high dose chemo with stem cell…
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Worried
Hi, Some of you may or may not remember me. I lost my Mom August 17, 2011 after a 14 month battle with OVCA. In the fall I developed a rash on the right side of my face that I intially thought was adult acne. Over the last few months it has gotten worse so assuming it was rosecia I went to see my doctor. While I was there…
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JP Drain Log Sheet, printable:
http://bfflco.com/wp-content/uploads/2012/03/bfflco_drain_log.pdf
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Scalp Cooling Protects Against Chemotherapy-Induced Alopecia
Scalp Cooling Protects Against Chemotherapy-Induced Alopecia IMNG Medical Media. 2012 Jul 5, JS MacNeil CHICAGO (IMNG) - Wearing a scalp-cooling cap can reduce hair loss in women receiving chemotherapy for breast cancer, the results of a small prospective cohort study suggest. Among women who used the cooling headgear…
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JP drain increase in fluid output today, 12 days post-op
I am 12 days post-op. All healing has been just great, really no problems at all. I only had a small debulking open surgery. Today my JP drain needed to be emptied almost every hour to hour and a half to to a major increase in fluid output. The color has been an amber color for over a week. Some slight tissues have been…
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Is it OVCA recurrence or not? The more I hear the more confused I am becoming.
Hi Ladies, I met the ENT oncologist today in consulation to surgically remove the lymph node in my neck. (The needle biopsy came back suspicious for cancer). My medical oncologist says this is atypical of ovca since my ca-125 is 14.1 (two weeks ago), and two scans showed clean abdominal area. This dr. today said that it's…
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URGENT PRAYER REQUEST
I went to the blood specialist today and a test came back positive for t cell gene rearangement. i will be getting a ct scan nwxt week to rule out lymphoma. if you can all pray for me i will appreciate it so much hugs Lynda
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today is my sons funeral
God give me the strength I need to get through this day, he was only 44 far to young and so much to live for. Help me understand why he was taken from me. Kathy
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Back pain and very tight muscles 2nd week after open surgery
I had an open surgery last Mon, the 25th. It was suppossed to be a HIPEC for ovarian cysts, but when they opened me up there was a lot more going on so they took an ovary, fallopian tube, and omentum. . They "think" it is PMP, but pathology is not 100% conclusive. I am going for a second opinion with a PMP specialist in CA…
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I was told I am incureable, I may not do chemo or surgery
Yesterday I met with the new hematology oncologist as well as my original gyno oncologist. After explaining that they are not 100% certain of the cancer origin, but most likely it is the appendix, which is extremely rare, due to how much it has spread throughout my abdomen, that I am a stage 4. They described the plan to…
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message from Clamryn ( Linda )
I recieved an email from Linda this morning saying that she has decided to stop chemo and start hospice. She is having a lot of trouble with mouth thrush here's hoping that it will clear up more easily without chemo treatments. She asked me to tell you that she loves you all. (((HUGS))) Maria
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Annual July 4th "Teal there's a Cure" run... awesome
Just got home from the annual walk/run that's held each year at a beautiful park in my hometown outside of Syracuse, NY. I'm glad to say it gets bigger each year. This time we had 150 more racers than last year and the villagers along the route have hoses out and cheered on the groups as they passed by. No, I didn't run,…
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ohhh to find sweet sleep
So I have been up since 1pm Monday afternoon and it what...... 4:34am Wednesday. I am currently on two medication for sleep looks like they are working grrrrreat! My pain doctor said if I do not start sleeping better she is going to have to address it. Well address away please........ she is not the first to try I have…
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Itching fit
I recently developed the lovely itching related to taxol. I am right at my last treatment. How long does these fits last? I am taking steroids and atarax, and thinking of adding Benadryl just to control it?
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Yet another update. My mind and emotions are all over the place.. (M.D. Anderson)
Hi Ladies, I just learned that my insurance will pay for my visiting M.D. Anderson. A friend (retired chemo nurse) has offered to make the 10 hr. drive with me. Has anyone been there? What advice? What dr. did you see? The earliest appt. is the week of August 13. Thanks, Carla
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Round five on Thusday
I am mentally preparing my self this week.....in my dreams I went to Hawaii and rested on a beach..noe I am ready. I wish akk my sista's happy Independace Day and remember why we celebrate. I 'll return when I can...Peace out..Val
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City of Hope
I am currently being treated at UC Irvine for apendix cancer (PMP) and I have Medi-Cal with a MONTHLY share -of -cost of $4,750!! We don't make a whole lot more than that, but that is the only thing we qualified for without having prior ins and now having a pre-exisiting conditon. My mom is all over me to ask my specialist…
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Allergic reaction
On Thursday I had an allergic reaction to my Carboplatin. It began with itchiness on my hands and feet which spread to my trunk. Then I had this strange tighness in my chest and my breathing began to feel strange. I pressed the alarm button and the nurses gave me an oxygen mask. I think I panicked a bit and my breathing…
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Finding the right DR.
I have an appt on Tues with the new oncologist. I am not sure how I feel about him. He is young and only been a Dr. for 10 yrs. He is at UC Irvine, which is a great hospital, but I don't feel as confident as I did with the gyno/onco I had. I looked into Dr. Andrew Lowy at UCSD. Both hospitals are the exact same distance…