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Cancer survivor still having side effects from Taxol?
Hello I was diagnosed with stage 1C Ovarian cancer, Stage 1a Uterine Cancer and a 1cm carcinoma on my appendix in October 2009 (I was the only triple primary cancer that year in my area, so the registrar told me ) I had a hysterectomy and had taxol/Carboplatin from February-June 2010. I felt a lump that december in my…
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Strong ladies
Hi Ladies I have been reading some of you posts, funny ones, scary ones, sad ones everything. I can really see what strength you all have. I have always felt like I was a strong person, but lately I do not feel strong. Mostly scared. Keeping the tears away has become so hard. Every little thing brings me right back to my…
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First time I've looked at my wife and thought... she has cancer
I looked at Tina the other day and for the first time sense she was diagnosed I looked at her and thought she looked so sickly but yet still so beautiful. My mind has been kind of going to the dark side lately like thinking about the possibility of loosing her. I'm not a crier but I could feel the tears welling up as I was…
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Waited too long
I had my surgery in early feb and I am supposed to start chemo on monday, but now I am having those dreaded abdominal pains again. It usually takes about 6 months for my tumors to grow back so I am already scheduled for a catscan on monday. Ugh if I had started chemo 4 months ago I would be almost done by now instead of…
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Sister diagnosed with Stage II Ovarian CA
Hi everyone, My 32 y/o sister was recently diagnosed with stage 2 OVCA. She has undergone TAHBSO last Friday and is seeing her doctor on Monday to discuss her chemo treatment. Because of this, I have been browsing the net just to learn more about this disease. The things I've read are really worrisome but I have to be…
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Coloring Hair
I have heard different things about coloring your "new" hair. I have been coloring my hair for years because of gray so I just know it is going to come back gray. I was just talking to my hair dresser today about when I can get it colored and she said anytime. Now I have read you have to wait 6 months and I have read you…
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Where Does Everyone Live
I am in Upstate New York. We live just outside the city of Rochester. Just wondering if by chance anyone is near me... Sorry to be asking so many questions. Just trying to get to know everyone :~)
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Update on Tina
She is still having many problems as of late. Still throwing up very very tired and winded and very low blood counts. She got a bag platelets had a reaction and still needed blood. Took 8 days to find it and the Dr rejected one because it was pre 95 saying that they did not scan for many things in blood back then. I have…
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IF you don't mind me asking... How old is everyone
I have had so many people tell me I am so young for an ovarian cancer diagnosis... I will be 46 in October. How old were you when you were diagnosed?
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Met with the doctor yesterday
Sorry I am just posting now but when I got home I feel asleep do to the release of emotion after talking with the doctor this is what we talked aboout. I had my appointment and the tumor has grown so after 8 weeks they took me off the new trial. I am going on Gemcltahine and Carboplatin to get it under control and then we…
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where are hizzy fitz and nancy
have not seen thses 2 ladies for awhile on here, anynone know how they are
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Chemo brain strikes again
I decided to make some chicken and rice for dinner like my grandma use to make. She would boil the chicken but I took a shortcut and browned it, then baked it while I worked on the rice. Since I did't boil the chicken I needed to use bouillion for the broth. I measured out 3 teaspoons of what I thought was chicken and one…
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Has anyone received the free ovarian cancer braclet?
While doing research during my chemo treatments I stumbled upon this website called ovations for a cure. While on there I saw that they give a braclet to anyone who has fought, currently fighting the battle or in remission from ovarian cancer. I signed up and got one. They are absolutely beautiful . It is a silver bangel…
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When does the hair start coming back????
Hi everyone. Im new here. I just finishe up chemo June 25th. Yay.... My scan is Monday and I won't get the results for 2 weeks because my doctor is on vacation next week and then my appt. is the following friday. She keeps telling me not to worry about it and that she is not concerned. She is no anticipating finding…
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Surgery update
Hi Ladies Thank you so much for warm words of support. They help so much. I am back in the o.r. slot for tuesday. Feels like a long time from now till then. My pain and nausea has really increased and this is what has made it so difficult. It's hard to eat much since my tummy is squished by the biggest tumor, and with…
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results of the catscan
I had my catscan yesterday and my ONC called today and said I need to be there at 9:30am. The tumor has grown and I am being removed from the study that I just started a little over a month ago. Right now I am scared out of my mind and just want to crul up and cry. Please be praying for me tomorrow as I find out what is…
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Surgery CANCELLED!!
Hi All, I have been cancelled. After a major meltdown and a long nap, I am able to focus a little better. This is what I was told. Our hospital is connected to the cancer center. Both have operating rooms. The cancer center o.r.'s are used by cancer patients and kids from the children's hospital next door. There was a…
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Letting people know cancer is back
How have you ladies dealt with telling people when cancer recurs? I only let a few people know when my CA 125 rose in April. They have been there for me the last three months. Now that I know my remission is over, I find I am not sure how to let the rest of my family and friends know. When I was first diagnosed in 2010 I…
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Surgery tomorrow
Hi all Well, I just received a call from the nurse who told me that I was wait listed in for my surgery tomorrow! I will receive another call later to tell me the time. Okay, Now I am truly terrified. I feel like I have a million things to get done and no time to do them. I am so scared. Please keep me in your thoughts…
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Questions about surgery
Hi All, I keep coming up with questions, that I did not think to ask the onc about. Maybe you have some answers. I am having major debulking surgery and wondered if I will have any type of drains after the surgery. I guess I mught have a catheter, but any thing else that might be a possibility. I know that everyone is…
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Out-patient lymph node surgery tomorrow. Why am I so scared?
Hi Ladies, The lymph node which came positive from recent needle biopsy will be removed surgically tomorrow afternoon. Since my medical oncologist is not convinced that this is OVCA, he's also having the scope put down my throat to "look around" to make certain I haven't developed a second cancer. My CA-125 from a little…
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I am so sorry
I have not been post like I should but I am fighting depression and find myself just not wanting to be online much. I am on medication we just upped it again so I hope it kicks in soon. I want you all to know even though I am not online all of you ladies are always on my mind and in my prayers. Please be patient with me…
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Recurrent Ovarian Cancer and Treatment Explained: Johns Hopkins
Interesing information about treatment of recurrent ovarian cancer http://ovariancancer.jhmi.edu/recurrentqa.cfm#definition
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Going back to work??
Hello ladies, Just wanntedsome thoughts on this. Im 44, dx stage 3c in november2011. Had last chemo May 22. Starting to feel normal again. I received first Ss check in June. I've worked since I was 16 at something. Now I'm not sure what to do with myself. I'm considered in remission at the moment. Not sure if I should put…
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New to this board
Hi All I thought I would stop by and say hello. I am not new to CSN or to cancer. I had/have two different cancers. Thyroid and Lymphoma. Now I most likely have ovarian. I have a large tumor and some smaller (as in 10cm smaller) tumors. This week has been very busy and fast. Started with visit to reg Doc and then ct…
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nancy and the teal warriors
can not find the gorup teal warriors anyone heard from nancy
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Remove central port??
After my ovary, fallopian tube, and omentum were removed, I had a central port put in because the onco (not a PMP specialist) was assuming I would do chemo. BUT, now that I am seeing Dr. Lowy, he does not want me to do chemo but just have the HIPEC in a few months. I want to have the central port removed. Dr. Lowy's nurse…
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Whats causing me to be shake in the morning?
for the past month shortly after getting out of bed I start to shake, it passes after a couple of hours be really starting to bother me. I'm on cisplatin and now it's been almost 2 years on chemo with only a break after my second surgery. This is the 8th chemo drug I've been on over the past 3 years. Kathy
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Round two
Got home a couple of hours ago from my appointment with my onc. I made a few calls and then came to the board. I will start Tamoxifen tomorrow once I have bloodwork done as onc wants a CA 125 to see what my starting point is. My son was with me and after asking a lot of questions we agreed I should try this option. As I…
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Supplement advice
Hi. Can anyone tell me what I can take for hormone balance. I am taking niacin, vitamin b12, biotin,collagen. I would like to take something called folapro and evening primrose oil. Can anyone tell me anything about these? Also, any other ideas to promote hormone balance and hair, skin, and nail growth?